[sharon01]

in reply to: Too many doctors & I hate steroids. #1180719

I can relate to everything you are going through, have been on predisone twice since February, down to 10 mg a day now, hopefully down to 5 in a week or so, and eventually off, had TT April, am suppose to get decompression surgery sometime in fall, have to see eye specialist again end of September,,,, nerves are shot, lots of stress and anxiety, my eyes are a mess, tear all the time, and my face is still moon shaped, started on anti-depressants two weeks ago to help with depression and anxiety, it has been a really hard year….. good luck to you,…

[sharon01]

in reply to: Well, here goes! #1173637

I also have graves, had total tyroid removed in April, have been on predisone two separate times since February, down to 10mg a day, take Xanax, Lexapro, and seraquil, for nerves and anxiety, nothing is helping,,,,, I don’t understand how the docs can say it does not effect you emotionally, I am a total nervous wreck, and it gets worse every day, cannot get apt with dr’s for at least a month to go over meds…..feel like I am coming out of my skin….everyone says it’s just nerves, but I feel like I have no control over this…feel like I’m loosing my mind, and feel so alone….

[sharon01]

in reply to: predisone #1180770

thank you for your reply, I feel like I am never going to get better, impossible to calm down, feel like I am loosing my mind, cannot get an apt with any dr’s for a month or more to go over all the meds I’m on, internist has me on them, but I don’t feel better, feel worse every day, scared the meds are all working against each other…..I have had anxiety lots of times before, but meds always helped, this time they are not…… feel like I’m coming out of my skin…….loosing faith

[sharon01]

in reply to: Well, here goes! #1173635

I can relate to the anxiety and depression, diagnosed with graves last march, have thyroid removed in april, anxiety levels off the wall, blood work comes back ‘ok’ trying to get apt. with good physch doc to help with meds, but have to wait a month to get in…… does anyone else have these feelings of anxiety and depression, seeing surgeon, waiting for orbital decompression surgery sometime in fall, antibibodies are still elevated,,,,, this is an awful disease,,,,,

[sharon01]

in reply to: Pins and needles #1180684

I am new to this site, diagnosed with graves eye disease in March, put on steroids in February, first round did ‘ok’…… then in May optic nerve pressure went up and put back on steroids, not doing well at all this time, started at 30 mg, tapering down to 15 mg, very nervous, anxiety depression, had thyroid totally removed in April, antibodies were still high last blood blood work, very scared I will not get through this, my eyes look awful and tear all the time, moon face from steroids, but the anxiety and depression are the worst, on Xanax, seraqauill and Lexapro, nothing helping much….. so many doctors, but no one seems tso help….. does anyone else out there, feel so helpless, like they are never going to get better….. I need some kind of support, before I loose my mind

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