I am asking for any information, suggestions, ideas, etc. that you can offer about your pre and post surgery. How many days are you in the hospital? Did you have to take SSKI before the surgery? High levels of vitamin D? How soon did you start taking meds again? Any and all information would be greatly appreciated.
My 11 year old daughter is scheduled to have her thyroid removed July 1st at Yale. Initially we were looking at RAI but was told her thyroid was too large and we were told the level/dosage gor RAI would be too much (she is a tiny girl). I do feel comfortable with the surgeon – there are two – a pediatric surgeon and a thyroid surgeon. Also Dr Rivkees, at Yale, established the Peidatric Thyroid Center at Yale as well as publishing a lot of information. I did suggest to him that there needs to be a book for parents who have children with Graves. FYI
I hope all has gone well for you and thank you for any information.
