[sdlips]

in reply to: anyone have Pretibial Myxedema? #1074913

I have had severe pretibial myxedema for over 20 years. I was only recently diagnosed through a biopsy that my dermatologist did. I knew it was Pretibial Myxedema but he wanted to do the biopsy for medical proof.

I would love to talk with ANYYONE in the world who also has this illness. I feel all alone. Whenever I go to a Doctor, I get the same response; "I have never seen anything like it in my 30, 40 or 40 years in practice." That really doesn’t make me feel confident in my choice of Doctor. I have gone to the best hospitals in Boston, New York, California and Florida to no avail.

PLEASE contact me and let me know if anyone is out there. I would really appreciate any response.

Thank you,
Ellen
email: sdlips@gmail.com
858-869-4006

[sdlips]

in reply to: anyone have Pretibial Myxedema? #1074910

I have had Pretibial Myxedema for over 15 years undiagnosed till last week.

I am having severe pain and swelling and redness in both feet. It started in just my right foot and has now spread to my left foot and most recently my left calf. It is so painful I am on Percocet for the pain. Every single Doctor I have been to said there is no treatment except the steroids which I had tried in the beginning. I am way passed the beginning stages and have found that nothing makes it feel better. I do know that I can’t get a closed shoe of any kind on, not even my Uggs!
HELP…………………………………….

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