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  • savtanee
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    Post count: 7

    I had the RAI and had to stay away from my husband and other adults for several days and from my grandchildren for longer (don’t remember exactly how long). I also had to carry a note from the hospital as to why I was radioactive in case it showed up on a monitor- presumably from Dept. of Homeland Security! At first I sort of laughed but the whole thing was not at all funny and actually upset me. be that as it may, the RAI worked very well. I think the key is to find a doctor that you trust. The internet can be overwhelming and although you want to be educated and informed, the best advice should come from a trustworthy medical professional. And btw, it is relatively easy to get information on doctors. A good rule of thumb is to go to a doctor who is associated with a hospital that has a medical school and if you want a second opinion, to go to a doctor with a DIFFERENT hospital/med school affiliation.
    Wishing you best of luck and good health!!!

    savtanee
    Participant
    Post count: 7
    in reply to: GRAVES AND FAT! #1064415

    I also have gained weight that I thought I would lose more quickly. Between that and the hair loss (very bad), I feel hit in the most vulnerable places for a woman! Someone mentioned sweating which continues to be a big problem for me, too, esp. during this awful NYC summer! I was not prepared for the assault on my body that this condition causes and feel that the doctor did not adequately address the possibilities. He said that things should be pretty much OK a year after beginning treatment (w/ synthroid). I am hoping that will work out. I keep saying that I am grateful it’s not worse….

    savtanee
    Participant
    Post count: 7
    in reply to: hair loss help #1064851

    I am happy o hear that the hair should grow back. Mine became so thin that individual hairs can be seen from the scalp and my hair line completely receded on the sides. It was also brittle and fly away. I did consider the stress on the remaining hair but the balding made me so nervous and panicky each time I looked in the miror, and especially seeing all the hair in the drain, on the floor, etc., I feel calmer from this…It made me look like my "old" self which relieves a lot of my emotional stress. Seems worth it for now.

    savtanee
    Participant
    Post count: 7

    I am also a new member as of today. Had my RAI in November, became severely hypo and have been on incresing does of Synthroid since Feb. Not fine yet,
    I wanted to suggest that you use Syntrhoid rather than the generic. My endocrinologist specifes it as the 15% allowable difference in a generic from a brand-name can make a difference with thyroid disorder.
    Hope you find answers and feel better.

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