[sarawebberdurnell]

in reply to: Could it be I’m there? #1182221

Thanks for the responses Barbra and Kimberly. Most of the “rules” surrounding the synthroid were given to me while I was still in the hospital and on pain medication, so I was a little loopy and don’t recall all of them. I just don’t want to mess anything up taking the medication so I can continue to feel well.

Sara

[sarawebberdurnell]

in reply to: Could it be I’m there? #1182218

It’s fantastic to hear you are doing so well. I hadn’t ever thought about the difference of how the Levo and Synthroid may effect me. I keep referring to my med as Synthroid, but it actually is the Levo and so far it seems to be doing it’s job. I guess we’ll see for sure in 2 weeks when I see my surgeon for a blood draw and follow up.

I too, am trying to knock off the extra weight now that I am feeling tons better. I’m trying to not eat after 8pm as that is my downfall. Good luck!!

Evidently we have the same idea about taking our meds. I keep mine next to my bed with water too and take it when my alarm goes off at 6:30 am, then I get up at 7 to get ready for the day, but make sure to not eat anything until after 7:30.

Out of curiosity, do you know of any foods that I should be wary of that may counteract the levo/synthroid? Or it is all in the timing?

Thanks,
Sara

[sarawebberdurnell]

in reply to: And…it’s done :) #1182161

So, I am week post op now and other than a minor mishap on Saturday requiring an ER visit, I am feeling really well. I was having strange bouts of nausea/hot flashes/dizziness that lasted about 45 min to an hour and my dr wanted to make sure my blood work was ok, so I went to the ER. Everything looked good and I was told, for lack of a better way to say it, my body was adjusting to not having my thyroid and getting used to the medication. I see my surgeon for follow up tomorrow and am going to head back to work probably Wed or Thurs. I am tired and somewhat weak, but feel so much better than before.

The rash on my face is completely gone, the muscle weakness is gone, the joint pain is gone, and the last 2 nights I have slept completely through the night!! My incision looks fantastic and I have been told that I probably won’t even be able to see the scar in a month or so.

This is certainly the best move I could have made. I know it will take some time to find the right dose of synthroid, but dealing with those symptoms seem so minimal compared to before. I am not scheduled to see my endo until early April to check my levels and possibly adjust my meds. Until then…

Sara

[sarawebberdurnell]

in reply to: And…it’s done :) #1182159

Thanks everyone Woke up today and have really sore neck and shoulder muscles, guessing it’s from the position they had me laying in on Monday for 2 1/2 hours. My neck is a little tight feeling around the incision, but everything appears to be looking good.

I got up and did a load of dishes and started some laundry, which may be the most I do accomplish today. We’ll see… If I take it in spurts and be sure to rest in between, I may get more done I have a hard time sitting around, especially since I am feeling so good. I just have to keep reminding myself to slow down.

So far, setting my alarm an hour earlier in the morning and rolling over to take my synthroid, then going back to bed, seems to be working well.

I’ll update as things progress and if anyone has any questions, please feel free to ask Happy Valentine’s Day all!!

Sara

[sarawebberdurnell]

in reply to: Withdrawal from Methimazole — Three Weeks In #1182134

Ever since my first appointment with my endo 8 months ago, I am that patient who cries hypo I talk to either her or her NP almost every week or every other week to give them updates on my symptoms. I’m ok with being that patient, especially now because I may not have to call so much. I had my thyroid removed on Monday and now just have to battle the synthroid and what symptoms pop up, but I know it will not compare to what I felt before. Best of luck to you, know you aren’t alone.

Sara

[sarawebberdurnell]

in reply to: Aye caramba! #1182123

Wow everyone!! Thanks so much Your words of encouragement mean so much. Sue, I only started doubting my decision when my endo brought up her doubts. I’m glad that my dr isn’t the only dr who isn’t a full supporter of a TT and that you know what I am talking about. AZGravesGuy…thanks so much for your post. Reading how you are doing post op has been extremely helpful and is setting my mind at ease. Having the support of all you wonderful people has made this a somewhat easier road.

I’m ready for the next step. And yes, as Monday approaches I am getting kinda freaked out, but I know this is intensified by the Graves (plus I’m not super excited to be knocked out for 3 1/2 hours, it’s a control issue I have ). I’m ready for the smaller challenges. I want myself back and I know this is the way to do it…no matter what my endo says.

Thanks for all the support and cheerleading!! I need it Bless you all!!

Sara

[sarawebberdurnell]

in reply to: Well, here goes! #1173694

As Monday is nearing, I am so encouraged reading your posts. They are actually bringing tears to my eyes. I am so glad that you are doing so well. I can’t even imagine a good day anymore, so I have that to look forward to. I hope your voice issue resolves, but I work with some good SLP’s, so I know they can do great work if you do end up needing it.

I guess maybe I missed something in your earlier posts, were you aware that you had nodules or was that a surprise? I was just curious if they happened across it during surgery or if you had already known.

Best wishes!!

Sara

[sarawebberdurnell]

in reply to: Aye caramba! #1182117

Thank you so much Shirley That really makes me feel better!! I need a cheerleader. For the first time in 8 months, I forgot to take my meds last night because I was so rattled. One day may not really make a difference, I don’t know, but I feel like massive doo-doo today. Monday isn’t going to come soon enough and my endo (though she means well), just has to deal with my decision. I want my life back.

Thanks again Shirley, your encouragement is exactly what I needed today!! It means so much to have the support of others who know exactly what you are going through.

Sara

[sarawebberdurnell]

in reply to: Well, here goes! #1173682

Thanks AZGravesGuy I am glad you are feeling so well so soon. I’m sure everyone slips up taking new medications at one time or another. It is super encouraging that you are doing so well. I teach preschool and am only planning on taking a week or so off to recover, so hopefully I’ll have about the same outcome. I totally understand the “placebo” effect…after such a long battle, I imagine it is terribly refreshing to be “starting” over. My weight gain has been really bad since diagnosed, so I’m not too worried about that afterward. Plus, I imagine I’ll feel much like you do with a renewed sense of life

Sara

[sarawebberdurnell]

in reply to: Thyrotoxic Myopathy / Muscle Weakness / Muscle Atrophy #1182011

My muscle weakness started about a month ago along with the massive joint pain. I haven’t been able to get it to subside yet, actually it appears to be getting somewhat worse. We have adjusted my methimazole doses, but that doesn’t seem to be helping so far. I am sorry you are experiencing this. My endo said that it was do to my numbers dropping toward hypothyroid and just has me taking naproxyen for any pain associated with it. Not sure I was any help, just wanted you to know that someone was having the same symptoms.

Sara

[sarawebberdurnell]

in reply to: Well, here goes! #1173679

It has been a great comfort to read these posts and see how you are doing after surgery. I have been scheduled for my TT on Feb. 10th. I didn’t expect it so soon, so I am a little nervous, but I am ready to start feeling better. I seem to be getting new “symptoms” every week and am ready to rid myself of this part of the roller coaster. I am glad things went so well for you. I was a little worried about the incision, so it is good to hear that yours is not a bother so far. I also love your idea of the app. I’m totally going to have to “borrow” that idea from you. Thanks for your inspiration!

And bless you all for battling this for so long. I cannot imagine the strength it takes, as mine has seriously waned in such a short time. My endo keeps telling me that because I have both Graves and Hashimoto’s it is more difficult to manage the meds. So I really think the best thing is to eliminate the organ they attack and regroup. I am ready to get my life back.

Sara

[sarawebberdurnell]

in reply to: Comtemplating TT #1181871

Thank you DIY It looks like it is the route I really need to take. The more I am finding out, the more convinced I am. Your input helps tremendously.

Sara

[sarawebberdurnell]

in reply to: Another way to supress thyroid?!? #1181960

Thanks Kimberly. I was concerned about the high dose of methimazole and it’s side effects. I’m not sure I am comfortable with this option, especially since my endo even seemed like it was a last ditch effort to avoid surgery. I really appreciate the information. I’d rather have surgery to take out an organ that I don’t “have” to have, then damage my liver, an organ that I need.

Sara

[sarawebberdurnell]

in reply to: Comtemplating TT #1181869

Thank you. I have found a good surgeon, one that I certainly trust and he said if I was him, he would opt for the surgery and get ready to move on with my life and the next stage of thyroid (or non-thyroid) stuff.

Sara

[sarawebberdurnell]

in reply to: Where are all the TT’ers? #1181888

Thank you so much Shirley. It has been wonderful and so supportive to read all the posts on here. It has given me a lot of insight and helped me make the decisions I have. I got teary eyed at the last paragraph of your post as it was extremely encouraging. I am going ahead with the TT surgery, I am like you and want the quick route, I guess. I don’t want to keep playing with the meds and keep feeling like this, especially since I have been given the choice to have the TT. Now I am just waiting for the insurance approval. It believe it is the best decision for me and my son. Thanks again

Sara

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