[sarah]

in reply to: Empathetic employer #1170659

That’s awesome Barb! I wish you the best! You are in my thoughts.

[sarah]

in reply to: A question about Thyroid Storm before my dr appt tomorrow #1170599

Thank you Shirley for all of your kind words to me. I cannot even begin to tell you how much better they make me feel

Yeah these welts (hives) are blistering. It’s pretty miserable. I’m doing all I can to keep my mind off of it. I was a little angry, I must admit, when I got to thinking about the fact I told the tech I was allergic to latex including latex bandaids when she asked if I was allergic to adhesives. I didn’t have the blisters until after the doctor saw me. My doctor saw the welts but they didnt appear this bad. I will be glad when these are gone! But you are right, it’s not worth the energy…thank you for saying that. I nodded in agreement when I read your words.

The only issue with my doctor and being admitted is she admits through the e.r. She has doctors who round for her so once I’m there I’m in someone elses hands. Weekends are definitely not the time to do this but I see her at 1pm so maybe I will be the rush if that is what she chooses to do. I really like her. I don’t care much for her rounding docs though. But I just want to feel better so it’s worth it.

I will definitely take my computer and an overnight bag. Thank you for suggesting that as I hadn’t even thought of it.

I agree with you that if my heart rate is still 160 or over I don’t need to be at home. At the same time I am so used to it that I don’t stop and think that it isn’t good for me. It is great to have things put into perspective. I get so consumed that my thoughts get clouded so thank you for the perspective too

Thank you for telling me I am super normal in regards to the hospital fears.

I really do appreciate you taking the time to encourage me and talk to me. I look forward to some day being able to be a beacon of hope to someone else.

Thanks again Shirley!

Sincerely,
Sarah

[sarah]

in reply to: A question about Thyroid Storm before my dr appt tomorrow #1170597

Just an update:

I turned the holter monitor in today. I discovered that all the itching I was having is because I am allergic to the adhesive. Just what I need huh? I was politely informed that I should have asked for sensitive stickers. Like I would have known to:rolleyes:. so anyway I have five very raised welts now that itch like crazy had have tiny bubbles intermingled with them. Sorry if that was tmi.

I stopped by my doctor’s office rather than call her because I was having trouble scheduling a follow up. Plus I felt worse today. Needless to say the results aren’t back so I’m not flying out tomorrow on my trip.

I’m kind of sad about that and disappointed but she had a good point when she asked me if I really felt like running through the airport. I told her no. She still feels I would benefit from hospitalization but she agreed I don’t need another monitor over those welts. Yikes. I can’t imagine.

So I return to see her on Friday. At that point if she says go to the hospital I won’t bargain with her anymore. I will just do it.

Is anyone else out there afraid of hospitals? Or am I just weird because I do all I can to stay away from them? It’s ok to say I’m weird. lol

So that’s where I am at.

Ty all for listening to me.

[sarah]

in reply to: A question about Thyroid Storm before my dr appt tomorrow #1170596

Thank you! that helped tremendously!

[sarah]

in reply to: Why do they call Graves patients “survivors”? #1170635

Oh I like that……Grave’s Warriors:D Thank you for sharing that Bobbi, you just made my night!

[sarah]

in reply to: New Dr. Tomorrow, What to ask? #1170583

I’m wondering how your doctor appointment went……I hope it went well.

But most of all I just wanted to say hello…and that I am thinking of you.

[sarah]

in reply to: A question about Thyroid Storm before my dr appt tomorrow #1170594

Thank you both

Yes I am discovering the holter is a pain as I sit here itching lol. I cant imagine sleeping with it but I will try. I kind of laugh because my doctor spoke of a longer monitor. I can’t imagine!

I was able to push the holter button once today. I probably should have more than that but I have lived with this so long that, like I said, it seems normal.

Who knows maybe they will find this is just all my thyroid. I can hope. I’m worried I have had such a high heart rate for so long that it has done damage.

Anyway, I am taking my meds and just waiting.

I don’t know if I will go on this trip or not. It won’t be a taxing trip but I will see what my doctor says. I would prefer a straight yes or no from her. Rather than a “what do you want to do”. Maybe I am weird but sometimes decisions are not so easy for me. I go back and forth on so many things.

I also was wondering if anyone has ever applied for disability for Grave’s; if anyone has an experience with that

I’m really glad to have this forum to share thoughts no matter how redundant or rambling I may get. It is nice to meet people who share something similar. I have felt very alone for so long.

I thank you for listening to me and talking with me. I really do appreciate it more than words can say.

Sincerely,
Sarah

[sarah]

in reply to: A question about Thyroid Storm before my dr appt tomorrow #1170591

Thank you both for your replies.

I had my doctor visit today. I am currently wearing a 24 hr holter monitor. She is hoping to get an idea of what else is happening with my heart since I have been having random episodes of other things besides sinus tachy possibly. Anyway we are seeing.

I don’t have health insurance but I decided the best thing to do with money I inherited is take care of this. So even though it isn’t alot maybe it is enough to get me better. We shall see.

As of today my doctor would prefer I not fly because she does not want something happening with me on the plane. She is leaving the final decision up to me though. I really don’t know what I feel at this point. I am tempted to count my ticket as a loss and just stay home. I guess I will see what she says tomorrow when this holter comes off.

The good thing is my doctor does not seem as worried about me as she did friday. She made me promise I would go to the E.R if I have any of the symptoms she listed for me. I promised so we are good. She really does care.

I feel very exhausted today but that is nothing new. I feel like I am always running a race even when I am sitting still. So much of this has just become such a part of my life that I sometimes forget it isn’t normal. sounds kind of crazy saying that.

I will just be glad to feel better. I guess I am at the point where I’m sick of feeling sick. So whatever it takes….no matter how scary.

At least now I know I am not alone…I have you all here. And that means a lot.

I will update tomorrow ty all for caring. and for letting me ramble

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