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  • sarabear0508
    Participant
    January 3, 2009 at 6:37 pm
    Post count: 66
    in reply to: PTU QUESTIONS! #1074759

    Well Everyone,

    I’m doing better with the nasty taste!lol I take it with caffeine free Pepsi and just drink and drink!!! It really helps!
    For some reason to day the body aches are gone as abruptly as they came. THANK YOU GOD! I was at the brink of screaming my body hurt so bad. So I’m not sure what they deal is but, I’m not complaining!!!! I still have muscle weakness but thats no big deal. Pain was the big deal and …well it’s gone!

    Good Luck to you all.

    sarabear0508
    Participant
    January 3, 2009 at 6:33 pm
    Post count: 66
    in reply to: How do you to find a great endo? #1074730

    hello zzzesty.

    I live several hours from Southfield, but thanks anyway! The advice was great! I’m going to make some calls. I’ve heard the UofM doctors are really good. I’ll let you know what I find!

    Thanks Again!

    sarabear0508
    Participant
    January 2, 2009 at 8:58 pm
    Post count: 66
    in reply to: PTU QUESTIONS! #1074753

    Hey!
    Yay it’s pretty gross. What is the new prescription he gave you? Is it the same as PTU, and does it taste better!!! lol It is pretty funny to hear from other ppl. It feels GOOD TO COMPLAIN OUT LOUD…cuz I know it’s not just me!

    sarabear0508
    Participant
    January 2, 2009 at 1:18 pm
    Post count: 66
    in reply to: PTU QUESTIONS! #1074751

    grasshopper

    HI! How are you feeling? I haven’t heard the grape fruit thing. I don’t eat grape fruit tho. I drink it with Pepsi, that helps too. I’m glad I’m not the only person who thinks it tastes like crap! lol How long have you been on it? When do you take it?

    sarabear0508
    Participant
    January 2, 2009 at 1:04 pm
    Post count: 66
    in reply to: PTU QUESTIONS! #1074749

    Thanks Bobbi!
    I just talked to the pharmacist. She said that it can cause body aches. You should see me take the pills. It’s so funny cuz I count down-shove um in and swallow as fast as I can. Somehow I still get that nasty taste. So as soon as the pills are down (GET READY THIS IS WEIRD!) I love pickled beats, so I eat a few of them and it cuts the taste emmediatle!I also found that on the pills you should avoid Calcium Bicarbonate-Ant-acids and iron. My mom gave me some of her peppermint Altoids and they are strong enough to help also.

    Thanks A lot!

    sarabear0508
    Participant
    January 2, 2009 at 10:30 am
    Post count: 66
    in reply to: HELP ME! #1074780

    Thanks Bobbi!
    I’m going to look through my schedule and start planning ME time, because if I don’t I’m just hurting myself. I haven’t seen an endocrinologist because my doctor feels she can handle it and the truth is she doesn’t know enough. A asked all these questions and got vague answers. When I looked up the answers to the questions I asked I got all the answers books and the internet. I was reffed to a new pc doc yesterday by a friend who is hypo-thyroid. I just called the office and have an appt on Tuesday! That way this new doctor can give me the referral needed to see an endo. How do you explain to family and friends what your going through? My friends think I’m depressed or lying to them because I don’t want to hang out. Truth is besides being unbelievably busy, I don’t have the energy to take a shower let alone give up a nap to hang out with them. I mean my family knows I’m sick but they get exacerbated when I sleep more than usual or I move as slow as snail. My three year old can run circles around me. He makes so many messes because I can’t chase him. Then because my body hurts all over I don’t get up to clean it! I’m living at home with 7 siblings until I can save enough for a new apartment. So when it gets messy ( even tho my mom is the sweetest) she freaks out and forgets that I’m not being lazy, I’M IN PAIN or TIRED! The other bad thing is I called to talk to the nurse at my pc, because I don’t see the new doc untill tue. I asked the nurse if my PTU could be causing the body aches. THE NURSE DIDN’T KNOW WHAT A PTU WAS! SHE HAD NEVER HEARD OF IT. So …ummm.ya I’m definitely excited about this new doctor. My friend she is up on the very latest in thyroid!

    Thanks for your response!

    sarabear0508
    Participant
    January 1, 2009 at 9:18 pm
    Post count: 66
    in reply to: Questions I Have #1074826

    HI!
    I am new to this group also. I don’t have a lot of answers BUT I have the best answer. I found a book EVERYONE should read. It has been my thyroid bible. It has everything and anything you need to know. I found it at my local library. It’s called THE THYROID SOLUTION by Ridha Arem M.D
    I can’t recommend this book enough! It will answer all your questions. It’s written with exact expertise and has a mind and body plan for beating the disease and regaining your health and your life! It also has a STRONG emphasis on Depression- and all the side effects the mind goes through and has MANY solutions. It’s easy to read and I found it extremely comforting. It’s for both hypo and hyperthyroid patients. With sections for each. It even talks about thyroid cancer and it’s treatments. It has the following:

    PART 1
    * THE EMERGING MIND-THYROID CONNECTION: HOW A TINY ENDOCRINE GLAND INTIMATELY AFFECTS YOUR MOOD,EMOTIONS AND BEHAVIOR!*
    ~ Thyroid Imbalance: a Hidden Epidemic
    ~ Stress and Thyroid Imbalance:
    ~ Hypothyroidism: When the Thyroid is Underactive
    ~Hyperthyroidism: When the Thyroid is overactive
    ~ Thyroid Imbalance- Beating Depression, Anxiety and Mood Swings
    ~Medicine from the Body: Thyroid hormone as an anti-depressant.

    PART2
    *NO- YOU’RE NOT MAKING IT UP! COMMON EMOTIONAL AND PHYSICAL INTERACTIONS.*
    ~Weight, Appetite and Metabolism: The Thyroid and your sex life
    ~Hormones of Desire: The thyroid and relationships collide.
    ~Overlapping Symptoms and Syndromes: Fatigue-Chronic Fatigue Syndrome-Hypoglycemia and Fibromyalgia

    PART3
    *WOMAN’S THYROID PROBLEMS. YOU’RE SYMPTOMS ARE NOT ALL IN YOUR HEAD!
    ~ Premenstrual Syndrome and Menopause: Turning the cycles
    ~ Infertility and Miscarriage: is your thyroid a factor?
    ~ Postpartum Depression: The hormonal link

    PART4
    *DIAGNOSING AND TREATING COMMON THYROID DISORDERS; THE JOURNEY TO WELLNESS
    ~ What you need to know about thyroid tests
    ~ Treatment and Imbalance
    ~Curing the lingering effects of thyroid imbalance
    ~ The New t4/t3 Protocol- " It made me feel better ALL over!"
    ~Living with thyroid eye disease
    ~ Thyroid Cancer: Curable and Anguishing
    ~ Eight Steps for the future- How to promote a better understanding of Thyroid,Mind, Body and Mood.

    I hope this helps!

    sarabear0508
    Participant
    December 30, 2008 at 10:29 pm
    Post count: 66
    in reply to: sleep disturbances; restless leg syndrome and Graves #1074869

    HI! I was diagnosed with Grave’s several days ago. I had restless leg so bad I couldn’t sleep and felt like I was going nuts. The constant moving and that awful feeling like you can’t stop. I found out that Magnesium takes it away immediately. It was my savior. I don’t like taking pills unless it’s necessary and I prefer natural things with no side effects. I’m on a PTU – Beta Blocker and migraine meds. I also have a bad back and take medicine for that. If you have restless legs try take magnesium before bed. Take it long enough before you plan to sleep so you get the full effect.

    Hope it helps.

    ~ Sarabear0508

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