[Sandy40]

in reply to: I hate Graves Disease #1184574

Thank you Kimberley and Emmtee , I can see that many people feel better after a thyroidectomy, I am so afraid of surgery that I hate the thought of having the operation. I have the worry of dying in the procedure due to my enlarged aorta as a result of the myxedema.

I will consult a second and third opinion on this, thank you for your support, I hope that everything goes well with me.

In the following link you can read about other aspects of Graves Disease –

[Link removed]

[Sandy40]

in reply to: I hate Graves Disease #1184571

Thank you for your advise, I have asked multiple times, gone to several doctors and due to my age 40 they don’t want to investigate my slurring and stuttering, I am often told it is the weakness from the facial muscles as a result of leakage of minerals from my muscles into my blood stream.

Lets put it this way, if minerals leak from muscles and bones into the blood stream in this condition, then these symptoms should be called and be referred to as “rigor mortis” or “Graves mortis” as these chemical changes in the muscles and bones are the same a person undergoes with death, only that in Graves you are alive (living dead) when your body undergoes these changes, but no where in any journal or studies I have found anyone mentioning or calling this phenomena for what it is so I believe there is some lack of research in this area as we all know most of the research and funding is given to diabetes which is a primary comorbid.

I am off work due to hyperactivity , clicking tabs and the mouse multiple times, I was given time off work to get better. I was having problem solving issues, I could not verbalize what I wanted to say and when I said things it was not what I intended to say or what I had in mind. I was bullied because of this and the stress from this incident at work brought my condition back. I do try very hard to keep my body and mind healthy , I put a lot of effort into getting better, although there has not been a great change in my condition, I do hope that I can get my graves on remission.

Lets remember World War II during this time not everybody knew much about Graves Disease and lots of people ended up in the mental asylums, people with certain conditions could not get their medicine during war time. So it is a worry to be dependent on a medication such as thyroxine once you have your thyroid removed.

I recently could not get my medication neo-mercazole from any pharmacy as the supply was cut off due to pharma issues apparently but this obviously caused me problems as I could not get the medicine I needed. Now I have bought lots of this medicine in case this happens again, you can also find information on what herbs can treat hyperthyroidism when you can not get the medicine you need, when I was on PTU the same thing happened, no pharmacy had stock of it for a while.

I was even contemplating suicide during this time while I could not get my medication, the surgeon was very kind to me and made me feel better as he said is not me doing all this silly stuff ups that is all caused by my condition and that the condition is doing all this to me.

This condition is terrible, people with Hashimotos and hypothyroidism always say that they are lucky since they never were hyper but some of them I do know do get hyperthyroidism too.

Oh well , I hope all this nightmare of Graves ends soon as I am loosing my patience with it.

Thank you all for your support, I truly appreciate it.

Sandy40

[Sandy40]

in reply to: I hate Graves Disease #1184568

Thank you Snelsen for your help and for sharing your journey with graves, well I know people from work that ended with damaged vocal cords and did never fully regain their voice, also after removing their thyroid the swelling and the eye issues continued. The baker down the street had a few strokes after the operation and someone at the local school had two heart attacks in the last two years all caused by Graves thyroidectomy. I believe they could not control their levels of T3 and T4 and had the thyroid removed while having an excess of these hormones. This is why I believe is important to have low levels before a surgical removal however my levels are hard to control at present even with a good diet and with doing everything I can to get better.

I will be doing more research regarding my options, I have myxedema and my face shape an body shape has never gone back to normal. I had a good weight before this illness, I am now considering extreme radical measures to deal with these hormones but I will give conventional medicine a chance to make me better first. I lost 6 Kg in a month but now I have put 3 kg in 3 days with the medication increase of 10mg of Neo-mercazole 6 times a day.

Thank you again for sharing, is wonderful to know that I may return to normal one day , I am so sick and is hard to see the positve but I am sure I will get better.

Sandy40

[Sandy40]

in reply to: I hate Graves Disease #1184566

Thank you all for your help, I have been told I am in between Hashimotos and Graves while I am taking neo-mercazole.

My stuttering started at this stage so it could be the Hasihimotos, I will do more research in regards to this..

Thank you again for your help,

Note: I just found the website endocrineweb and it has articles that shows Graves Disease causes delayed speech, stuttering and slurring, If interested you can click on this link:

http://www.endocrineweb.com/community/hyperthyroidism/1179-hyperthyroidism-speech-disorders

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