[runlacie]

in reply to: Hyper / Exercise / Joint Pain ? #1070153

That’s exactly what my Mom said about muscle can’t really turn into fat. That my stomach just looks different (fatter) because I am losing muscle. I guess my doctor figured that the exercise I am doing now is much less intense than what my body is used to, so it would be okay. I promised to keep my heart rate under 140 (181 is my max) and actually only am averaging about 105 when I walk and under 100 for the core exercises. I can jog slowly and stay under 140, but mostly am mainly walking as jogging just makes me want to go faster. I have a GPS/heart rate monitor that I wear and surprisingly, in the past couple days, I have noticed my average HR is actually dropping a bit on my walks, makes me wish for a spontaneous remission. I don’t understand how, exactly, being hyper wastes our muscles. Maybe if I understood the science behind it I’d be more apt to sit on the couch. Probably not, though- I’d really go insane then.

[runlacie]

in reply to: Did you develop hives/ itching from tapazole? #1070133

The propranolol should help and I think it works quickly, so by now your HR should be lowering. Hope you feel better today!

[runlacie]

in reply to: Did you develop hives/ itching from tapazole? #1070131

Hi MIchelle!

Is it 120 resting when you take it at home, too? I hope you find relief from the hives- I’ve had them BAD before and know they are no fun. Zyrtec was what helped me, didn’t make them go away but did make them less itchy. What did they give you to bring your HR down?

Take care ” title=”Smile” />
Lacie

[runlacie]

in reply to: Hyper / Exercise / Joint Pain ? #1070151

Hi Sue ” title=”Smile” />

YES!!! I absolutely think we will get our muscle back! We better! I’ve weighed about 135 (I’m 5’7) for a year and was pretty much all muscle. No fat on my stomach, just some excess skin from pregnancies. In less than one month I suddenly weigh 130 and have FAT on my stomach and on my LEGS! I lost 5 pounds and got fat, how can that be??? I am still doing all of the core exercises I have always done (crunches, etc) I just can’t run fast anymore. I don’t really know how much of this is the disease and how much is just not being able to run like I used to. I am trying not to be depressed about it and constantly reminding myself that I am STRONG and I’ll fight to be me again.

I hope you get some answers at your upcoming appointment! Did you have any side effects from the Tapazole? I’m trying to decide what treatment to pursue.

[runlacie]

in reply to: Hyper / Exercise / Joint Pain ? #1070149

Hi! I’m new with Graves’ and very sore after walking/jogging. My PCP told me that it was okay for me to walk/jog just so I take it easy and my heart rate doesn’t go too high. I am a regular runner averaging about 60 miles per week before I got this, ran a marathon in May (I had the beginnings of Graves’ symptoms then, but did not know that’s what was wrong). Anyways, now all I can manage is a very slow jog or walking- I wear a heart rate monitor to make sure I don’t overdo it- and my legs are extremely sore afterwords. In just the short time I have known that I have Graves’ I already notice my muscles wasting away. I have lost a couple pounds and I’m getting flabby, so I think that the weight loss is my muscle turning to fat. How distressing. Right now I am not taking anything and am hyper, have an endo appt on Thursday and can’t wait to do SOMETHING about this so I can get back to being me again.

[runlacie]

in reply to: Curious about treatment options… #1070222

Well looks like it is probably "just" GD. I’m home from the ultrasound and the tech didn’t see any sign of a nodule. He showed me the pictures and the measurements and yes, one lobe is slightly larger than the other. I am confident that he’s accurate, since if there was a nodule he would have had to see it and measure it. I was thrilled that he volunteered this info since usually they make you wait for the doctor to say. Not only was he nice to me that way, he also was great with my son (who accompanied me) and explained to him what he was doing and pointed out things on the monitor to him. It was actually kinda fun ” title=”Smile” />. It’s nice when people care.

The doctor did give me a beta blocker (propanolol) and I will wait and see if I calm down now that the cancer scare is over before I take it. Still don’t have the antibody bloodwork back yet. The doctor thinks there is still a chance it could be something short-lived and burn itself out.

I’m thankful for this board and all of you. Keeps me from feeling so lost.

[runlacie]

in reply to: Curious about treatment options… #1070220

So many things to consider. I am not even taking beta blockers yet, but my HR has gone up considerably in just the past few days. I think I will talk to my doctor at my appointment today about starting them and maybe it will help me feel more normal. I’m supposed to be going on vacation on July 7 and I wonder if that will still be possible. Sometimes I feel sort of okay and other times it feels like I have surges of hormone and I feel really bad- HR goes way up, HOT, headache, etc.

Today is my ultrasound. One of my lobes looked longer on the scan and they are checking to be sure there isn’t a cold nodule that just wasn’t lighting up at the tip of the shorter looking lobe. Maybe once I know it’s "just" hyper and no cancer I will feel a bit better? Wish me luck, I’m scared.

If I opt for removal, how do I find a good surgeon who would schedule it quickly? I have an endo at the Cleveland Clinic for an unrelated problem but it takes forever to get seen there so I am just seeing someone locally for this.

[runlacie]

in reply to: Curious about treatment options… #1070218

Thank you, Justin the helpful ” title=”Smile” />
The drugs scare me. More than surgery does. I wonder what makes you "normal" the fastest? I wonder what way would make me be able to run again the soonest? Sweet Irony- I once ran to lose weight and now I have this lovely disease that MAKES me lose weight and all I want to do is run again!

[runlacie]

in reply to: WHAT A CRAZY DAY…. #1070199

Hopeful, I’m new and just read about the conference since you mentioned it. Ironically, it is on the weekend I was supposed to run a marathon. Guess I won’t be doing that now since this isn’t looking like an easy fix. I have an endo at CC who I see for a benign adrenal tumor (I guess I’m endocrinologically challenged), I might take this to him eventually but am going to start out with a local (Youngstown) endocrinologist since I can get seen there next week and CC takes time. You are lucky to work at the hospital and get easy access.

I’m still pretty upset over this whole freaking thing, part 2 of my scan was this morning, it’s that new to me. I see my PCP tomorrow and also have to get an ultrasound tomorrow since one lobe appears slightly longer they want to make sure there isn’t a cold nodule on the end of the lobe that looks shorter. So I am kind of freaking out about that even though the doctor told me they think that the lobes are just slightly different but they have to dot their i’s and cross their t’s. The PCP is great about keeping me informed and doesn’t leave me wondering, I’m thankful for that.

[runlacie]

in reply to: WHAT A CRAZY DAY…. #1070197

Wow, I saw the Farrah story on TV at lunch but hadn’t heard about Michael Jackson or Ed McMahon! Crazy for sure.

Hey Hopeful- I’m not too far from you, am in New Castle, PA. Do you go to Cleveland Clinic? Crazy thunderstorms today, too, huh?

[runlacie]

in reply to: Graves vs Hashimoto’s how do they know? #1070202

Thanks, Justin! My whole thyroid lit up, so I know I’m hyper now- but when they told me I had Hashimotos they didn’t do a scan. I guess what I don’t get is- how do the antibody results differ in Graves vs. Hashimotos? Are they similar and they just dx you with the disease you exhibit symptoms of?

[runlacie]

in reply to: Curious about treatment options… #1070215

I’m new and also curious. I think RAI is the radioactive iodine they use to irradiate they thyroid and I might be interested in this option. Seems to me that doing this, going hypo and taking thyroid meds would be better than taking the anti-thyroid meds.

Do any of the treatments keep you from getting the eye involvement? My Grandma has Graves and her eyes are really bad, to the point that one rolls all the way back and all you see is white. I’m kind of afraid this will happen to me. My endo appt is next week, so I guess I will learn more then.

[runlacie]

in reply to: Very stressed out, but there’s hope… #1070234

Hi Alice, I’m also newly diagnosed and you are right, it is pretty SCAREY. My son is 7 and knows just enough to be a bit nervous about the whole thing, too. Definitely get the cobra if it’s at all possible. I’ve been in a situation where, due to a job change, I didn’t have insurance for 90 days and hadn’t bought the cobra due to the expense and it didn’t turn out well at all. Maybe you can purchase it just for yourself and not for the whole family and it will be a little less? Hang in there, OK?

[runlacie]

in reply to: Good news, and…. super powers? #1070243

Good Luck, Justin! I am new here, too, and took my pills for the scan yesterday. I told my son I would probably glow in the dark. He was disappointed last night when I didn’t.

[runlacie]

in reply to: running with untreated hyperthyroidism #1074051

Hi, I’m new here, recently diagnosed, and just found this thread while searching for hyperthyroidism and running. I am glad I found this information as I had no idea running could cause a deadly arrhythmia. I was determined to run anyways until now. What a bummer. I ran my first marathon on May 3, and then ran a half on May 17. Shortly after that I began to notice things just weren’t right with my body. At first, I blamed my slowing times on the heat. My RHR was still right around 50, so I didn’t think it was due to overtraining. Then around the second week of June I started not to be able to make it through my long runs. Pretty soon I was walking up hills. Running intervals had my HR higher than I thought my max was. I train with a HR monitor and wore it around the house one day and noticed my HR went from 55 to 90 just from standing up. Went to my PCP for help. Several years ago I’d been told I had Hashimoto’s (goiter and elevated TG) but had remained euthyroid on yearly tests, so I was very surprised when my TSH was .005 and he told me I was hyper (and not hypo like I have been waiting for). I had an uptake done and it was also high. Now I’m waiting for an ultrasound since my scan looked like one lobe was longer and they want to check and make sure there isn’t a cold nodule on the end of the shorter lobe. Anyways, I’m pretty depressed not being able to run. I’d just started 18 wk marathon training for October when this happened. But at least it looks like there’s hope. I have an endo appt one week from today and had hoped it’d be a fast fix and I’d be running in the 4th of July race I’d planned, but I guess that’s not gonna happen.

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