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Viewing 15 posts - 181 through 195 (of 210 total)
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  • runlacie
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    Post count: 222

    ewmb, THanks for that info! I am happy that you are feeling less of those BZZZZZZ’s and someday I will, too!

    runlacie
    Participant
    Post count: 222

    WELL, Grrrrr! I got there as scheduled this morning at 9 and met w/the radiologist. Now they are ordering the dose and I have to go back at 1 to take it. SO, I’m leaving to do this again!

    runlacie
    Participant
    Post count: 222

    Thank you, ewmb and hyperm and lakeview!

    hyperm- good idea, asking for written directions. I can’t seem to remember much these days.

    I have no info on whether I should eat in the morning or not. I have heard some say to have something light so as not to take the pills on an empty stomach and also have heard not to eat at all. I guess I’m just going to not eat since I normally wouldn’t eat that early anyways.

    Also, no straight info on how far to stay from my 7 year old. Only what I’ve read on here. I know I’m supposed to sleep alone (I’m booting DH to the guest room), for how long? 5 days? I need a few groceries… can I stop on the way home as long as I keep my distance??? Can I have a T-shirt with a radioactive sign on it to wear??? I definitely think the radiologist should give you one as a souvenir.

    In 12 hours I’ll be leaving for my appt!

    runlacie
    Participant
    Post count: 222

    Hope you are feeling better today, Krystal. Did you ask to get your levels checked sooner? Do you know what your heart rate was before you had Graves’ compared to how it is now? I see a cardiologist and (years ago) had to take a beta blocker to control irregular heart beats, I was concerned cause my heart rate was already on the low side and the beta blockers made it even lower. This was before I started running, and my resting HR was about 52, I would take my pulse and freak and start jumping up and down to make it go faster <img decoding=” title=”Smile” />. The cardiologist told me not to worry about it. After I started running, I have counted mine as low as 44. Now I panic cause it’s in the 70’s. Ask your doctor so you won’t worry.

    I have suffered from anxiety for many years and wonder if this thyroid thing could have been the problem all along. They told me about 5 years ago that I had antibodies, I was told all along it would be Hashi’s, but now I have looked at those test results and it was my TG that was elevated back then and it would be elevated with either disease. I’m kind of mad that all this time I was waiting to go hypo and never expecting hyper- if they had told me it could go either way I’d have been more alert for the hyper symptoms. Just goes to show you that doing your own research is not a bad thing.

    Sometimes I can feel the hyper really strong- my HR goes way up and I can’t calm down- like I’m having a surge of hormones. To describe it in a sound I feel like "BZZZZZZZZZZZZZZZZ" Does anyone else feel that way? Then there’s times I feel normal and I think that it’s going away on it’s own.

    runlacie
    Participant
    Post count: 222
    in reply to: Intro #1069623

    Congratulations, Cathy! I’m happy you are here with me on this Graves’ journey! I’ve learned a lot from you in this forum and look forward to reading more of your positive messages. Best wishes on your continuing education!

    runlacie
    Participant
    Post count: 222

    Thanks, Abigail! Graves’ is lousy, but other things are much worse. I’m thankful I "only" have Graves’ and also that this has happened to me and not to one of my children.

    runlacie
    Participant
    Post count: 222

    My Grandma has Graves’ and RA, and several first cousins have Hashi’s, so I’m sure that genetics played a part in my disease. I was training for a marathon when symptoms first became noticeable and I often wonder if the hard physical stress of running 60-70 miles a week could have played some part in this disease becoming active. I didn’t figure out that it was Graves’ until after I ran the marathon. Symptoms soon became worse and I went to the doctor a month later and found out I have this.

    runlacie
    Participant
    Post count: 222

    Thanks Krystal, ewmb, and Ski for your kind words! This morning I am wondering if waiting until after vacation is a good idea and wishing there was a way to do this before I leave, but the doctor says with the holiday that it’s not possible and to just take my beta blockers with me and call her if I get in trouble. Maybe I should stay home? Doctor says I have to meet with the radiologist one day and then go another day for the treatment. I wonder if I could meet with him on Monday and then get it over with on Tuesday, we are supposed to leave Tuesday but maybe could push it back a day. It’s an 8 hour drive, would I contaminate the other car passengers? I could have my 7 y/o ride with my Mom instead? Would my husband and 23 y/o DD be okay in the car with me just one day after I take the stuff???

    runlacie
    Participant
    Post count: 222

    Hopeful- I’m also a huge hypochondriac and have suffered tremendously from anxiety. lol, this disease sure doesn’t help, huh? When I first went to my family doctor with the symptoms and then my bloodwork came back and he told me I was hyper, I was actually happy because that meant I was not going crazy after all!

    I just came from my endo-doctor visit, it’s definitely Graves’, and I am going to do the RAI. I don’t want to take the anti-thyroids and worry about side effects. And even if I were lucky enough to have a remission with the pills, I’d constantly worry about if and when I would go hyper again. RAI is less scary to me than surgery, so RAI it is. I was already thinking this would be my therapy choice when I went there today, and after talking to the doctor and her telling me that is what she would do, I’m going ahead with it. Her husband has Graves’ and that’s what he did, too. I’m waiting for them to call and tell me when I get to go. I’ll be away on a long-planned family vacation next week, so it probably won’t happen until I get back.

    I won’t be taking any ATD’s in preparation and will only take beta blockers if things get worse. She said I might need the beta blockers after the radiation if I become more symptomatic then. I’m allowed to exercise and continue my walking and core workouts, just no hard running until my HR quits spiking. Hopefully I will be running again by next month! Maybe a fall marathon isn’t out of the question after all??? I’m going to kick this disease’s butt….

    runlacie
    Participant
    Post count: 222

    HOORAY! I’m thinking I may go straight to the rai route and this is excellent news, Hopeful! How many weeks has it been since you had your treatment???

    runlacie
    Participant
    Post count: 222

    M- I don’t have any answers for you since I’m brand new, just wanted to wish you my best. I’ll be thinking of you! Just think of how great it will be to be ALL BETTER! I’m happy for you <img decoding=” title=”Very Happy” /> !

    runlacie
    Participant
    Post count: 222

    Glad to hear about your 84, Michelle! What a relief!

    runlacie
    Participant
    Post count: 222

    Sue- I googled hyperthyroid and muscle loss and found some info. Much was too scientific for me to fully follow, but I got the gist of it and with what Ski said and what I read, I guess it makes sense and now I believe it is real. You’d understand it better, I’m sure, since you are in nursing school. Bummer. But I’m going out for my walk now anyways. Maybe I will slow down and listen to the birds now.

    runlacie
    Participant
    Post count: 222

    Yippee, Michelle! You sound like you are feeling much better! <img decoding=” title=”Very Happy” />

    runlacie
    Participant
    Post count: 222

    That’s depressing. But at least now it makes sense. Wonder what the quickest route to un-hyper is? surgery???

Viewing 15 posts - 181 through 195 (of 210 total)