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in reply to: graves eye disease #1075693

I was diagnosed with Graves in 1997 treated with RAI basically after that my numbers were in line I am taking 150mcg of synthyroid. Now I have developed Graves’s ophthalmology double vision, blurry vision, bulging eyes, dryness, resulting in my first orbital decompression in September 2008, then needing the second decompression in March 2009 which minimal positive results. Meeting with another ophthalmologist at the Mayo Clinic I had eye muscle surgery on three muscles August 2009, on both eyes helped with the correcting of my crossed-eyes but then I got twisted vision then I needed a second surgery to correct the twisted vision and double vision a month later and lucky me I developed scleritis of the left eye and Oh my Gosh the pain that I had with that makes childbirth seem like a piece of cake so now I am on an anti-inflammatory drug to help with that. I now still have double vision, extremely droopy lower eyelids and very swollen uppers, my left eye is now turns outward causing more eye issues Dr. now thinks I have Myasthenia Gravis which is a condition that attacks my eye muscles. Maybe I am crazy but I sure feel like if it’s going to go wrong it’s going to happen to me. I don’t drive, go out of the house much because I feel like everyone is looking at me because of how bulgy my eyes are, I live with lubricating eye drops, anti-inflammatory eye drops and the fear that I will have more surgeries that may or may not fix my vision. I am scheduled for lower eyelid surgery the end of October 2009 for my right eye then 2 weeks later the left. I just hope the inflammation is gone so they can at least try to correct my droopy lids and that surgery is going to interesting as I’ve been told they harvest cartilage from the roof of my mouth to put in my lower lid, great a hole in the roof of mouth and eye patches sounds wonderful doesn’t it. Sorry if it sounds like I’m whining but I have very few people who can understand what I am going through.

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