[Robboford]

in reply to: Progress toward TT #1180205

Hi all,
I will be another one to share the TT Journey. I have finally got a surgery date for 19th August. Still waiting for final ok from cardiologist, but he along with my Endo and Surgeon are working together on a pre-op course of withdrawing the blood thinners and replacing with an aspirin a day and combining this with a course of the drops to reduce the vascularity around my thyroid. I am so glad there is finally light at the end of the tunnel as it will be 2 weeks short of 2 years and 23,500 pills later since I started this journey. I am also hoping the surgery will help the TED which has gotten worse in the last couple of weeks. Wishing you both a successful surgery and recovery and will be following your stories with great interest as well as appreciating others who have taken the time to write about their surgeries and recoveries. Stay well all.
Cheers
Deb

[Robboford]

in reply to: TT complete #1180014

Hi Talley,
Best wishes for a speedy recovery. Glad you were brave and made the decision to have TT at the same time, with hindsight it was the best decision to make. There will be plenty of time in the future to catch up on the things you are not doing now, don’t feel guilty the important thing now is to give yourself the best chance at a speedy and full recovery.
Cheers
Deb

[Robboford]

in reply to: no medication “prep” prior to TT? #1179953

Hi Talley,
Thinking of you, hope all goes well sounds like you are in great hands. Look forward to reading an update when you are well enough.
Cheers
Deb

[Robboford]

in reply to: theory for one sided TED #1179978

Hi all,
Nothing surprises me with this journey we are all on. My left eye has always been the worst affected side, but in the last 4 weeks my right eye symptoms are gradually increasing also. So many strange things have happened to me, my left eyebrow was always thinning quicker than my right, same as my underarm hair (unfortunately my hairy legs haven’t had this happen, if anything I think it has been growing quicker than usual – LOL, just my luck, I wouldn’t complain if it had stopped growing completely), and yet the pretibial myxdoema (spelling??) mainly affects my right shin and only very rarely and not as severe on my left shin. A few other symptoms only occur on my left side but not sure if this is coincidental or related – who knows so many unanswered questions etc., I just go with the flow now, life is for living even though my quality of life has suffered and not at it’s best; after all, I’ll be dead for a long time. (Sorry if my warped outlook on life offends some – it gets me through the days and nights and keeps me fighting on). Stay well all.
Cheers, hugs and kisses
Deb

[Robboford]

in reply to: Double-barrel good news ! #1179803

Great news Bill,
Will be thinking of you on Friday. Best wishes for a successful surgery and a quick recovery.
Best wishes
Deb

[Robboford]

in reply to: To Boomer #1179538

Boomer,
I agree with the previous posters. You are human after all! LOL ;)We have all made mistakes and said things we are not proud of and your apology was sincere. Please come back – your sense of humour was a shining beacon and a breath of fresh air that really made my day/s. I haven’t even had the chance to ask how you got your screen name. Not sure if you know it or not, but in Aussie slang Boomer is another name for kangaroos and our national Basketball Team are known as the Boomers. (Us Aussies are a weird mob -we have nicknames or Aussie slang names for all our National teams), so I felt like we had a link in common. Please come back – miss ya heaps!
Cheers, hugs and kisses
Deb
(A.K.A. Robboford)

[Robboford]

in reply to: ** Words of hope and needing good advice … please ** #1179525

Hi Caro,
Sorry for not posting yesterday, but had a busy day and stayed at work for longer than I should have and was pretty wiped out by the time I left work. Maybe your Endo was having a bad day (we are all human). I have found throughout my journey that I have become stronger in voicing my own opinions and ideas on what my treatment should be. I have also found the best approach is to be respectful at all times, as the Medical Professionals have studied long and hard and base some of their treatment ideas on the way they have treated other patients. As we all know, unless people have travelled our journey themselves, we all have individual needs and degrees of symptoms etc and are really the best at knowing how we are feeling. I am lucky to have a great relationship with my Endo and although he may sometimes suggest different treatments that I disagree with, I am lucky that I can discuss his reasoning and then offer my reasons in support of not agreeing with his views. Sometimes, I have had to be quite vocal about my treatments (ie when the radiologists wanted to use Contrast for my eye CT Scans and I flat out refused), by staying calm (well mostly) and acknowledging that although they were experts in their field and I am not, I am still well versed on the effects or harm that could or could not have happened to me as a result of the Contrast. Hopefully you can present your reasoning for staying on ATD’s and then he can go into more detail on what he has based his reasons on and you will both arrive at a happy medium. Best wishes to you, keep us all posted on how you are going and stay well.
Cheers
Deb

[Robboford]

in reply to: ** Words of hope and needing good advice … please ** #1179516

Hi Caro,
So pleased to hear from you. Glad that things have been going wellish for you. I am still at work at the moment and it is a busy time close to the end of the month. I will read your post and think about it in more detail a little later today. Once again, great to hear from you – will post later.
Cheers
Deb

[Robboford]

in reply to: Post Surg “forgets” #1179497

Thank you, I am having a crap day and needed a laugh. You all filled the void.
Cheers
Deb
:D:D:D

[Robboford]

in reply to: Do I need a Psychiatrist too? #1179429

Thank you Shirley.
Deb

[Robboford]

in reply to: Do I need a Psychiatrist too? #1179427

I also agree with the latest posts. I am so grateful for this Forum and it’s contributors and for the Moderators who probably give their time and knowledge for not much (if any) monetary reward that I would hate to see it hijacked by arguments about the things that my parents told me you should never discuss in public (politics, religion, money and sex). I would also like to mention that as an Australian and under the care of the Australian Medical profession, RAI, TT and the possibility of remission are all avenues open to me. Not one of the Professionals I am being seen by have pushed me in any direction. I have chosen TT because of TED involvement and diagnosis already of TED. Stay well all and remember that it is because of our brave Servicemen, Women and their families that have fought for our freedom that we can all have our own beliefs and lead our lives the way we choose.
Cheers,
Deb

[Robboford]

in reply to: Diagnosed @ 49 y/o #1179158

Hi Boomer,
I could tell you that this will pass to make you feel somewhat better, but this is part of the roller coaster that we have all referred to. All of us are different though and for some it does indeed pass once they are stabilised. I don’t want to be a sad sack though, but for me; I experience what you are talking about at least every 4 – 6 weeks. I am on a block and replace regime so not only on hyper medication, I am also on hypo meds and swing from hyper to hypo and god knows where else. All I wish for is to wake up feeling “normal” although I can’t really remember what “normal” was like or, some might say I was never “normal”. (I am grateful that at least I wake up though – although how would I know if I didn’t – LOL). Hang in there, you are a fighter and you will get over this, it is just the unknown of how long it will take. Fight on fearless Warrior!
Cheers
Deb

[Robboford]

in reply to: new labs after CT with contrast #1179245

Hi Talley,
I am happy the contrast hasn’t seemed to have any impact. Please be aware though, through my own Research and subsequent discussion with my Endo, the impact of the contrast may not show up for anything up to 3 months, it also may not show up at all. I hope the latter is the case for you, but please be aware of any changes or hyper symptoms you may notice yourself. Take care.
Cheers
Deb
(A.K.A. Robboford)

[Robboford]

in reply to: Meds: once a day? #1179221

Hi all,
Based on my own journey on this Graves’ rollercoaster (that started 5th September, 2011 – but hey whose counting – LOL!), my Endo prescribed my Neo Mercazole (that’s Carbinmazole for all my fellow American Warriors) twice daily – morning and night.
Cheers,
Deb
(A.K.A. Robboford)

[Robboford]

in reply to: Diagnosed @ 49 y/o #1179145

Hi Boomer,
Welcome to the Forum, thought I would drop in and g’day from down under. Love, love, love your sense of humour, hopefully you can keep it up and rise above it on those crap, awful, I feel like slashing my wrists days that we all have every now and then. I also had the crab walk problem severely and since my wonderful amazing Endo (Thank the lord I got a good one (and I am not religious)!) put me on Vitamin B1 100mg 3 times a day, those crab walk runs are now few and far between. Not sure if it will help you, but no harm in trying. (I don’t think you can overdose on Vitamin B1, but please correct me if I am wrong anyone). Take care and welcome to our battalion of Graves’ Warriors and keep fighting on!
Cheers
Deb
(A.K.A. Robboford)

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