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in reply to: TSH vs FT3 and FT4 #1180470

Hi Carol, I’m so sorry you are dealing with this especially so unexpectedly at a late date. Here’s a couple of links that refer to Graves’ antibodies affecting the TSH:
First study about antibodies and TSH
and
and another about TSH receptor in the pituitary being suppressed by Graves’ antibodies

My advice is that if your new endo also insists on dosing by TSH and refuses to look at or acknowledge any validity to the above studies, just leave, don’t try and work with them. I’ve made the mistake of staying too long myself, and trust me if they aren’t putting in the time to stay up on the latest one patient isn’t likely to make them. Your case will be challenging as well because while many endos acknowledge now that TSH can remain suppressed in the initial months of treatment, what you have is suppression years after…which makes sense given the connection of the TSH antibodies and TED. Good luck!

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in reply to: Sue’s TT – July 16, 2013 #1180335

HUGS Sue! I’m so glad the most critical part went well – the actual surgery but sorry so much misery came with the before and after parts. Now it’s time to recuperate and know that you won’t ever have to take methimazole again!

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in reply to: Sue’s TT – July 16, 2013 #1180329

Good luck Sue!!!! May you have a smooth and uneventful, even boring, TT!

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in reply to: After RAI and medicine under control – is that remission? #1180253

Hi Redmom and welcome! Remission is when your Graves antibodies are tested as being very low or down near zero. There are two tests you can get TSI or TRab which will tell you about this. Since you no longer have a thyroid your only concern with this would be if you are having other Graves’ symptoms like TED (thyroid eye disease) or skin issues like pretibial myxedema. Aches and pains or more likely to come from not being at the optimal level of thyroid replacement for your needs.

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in reply to: Armour #1180261

Actually Armour is strictly regulated by the FDA – it’s not supposed to be variable and random how much hormone is in each pill. Here’s the full prescribing information for Armour from their webiste

editing to remove ranting!

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in reply to: Hyperthyroid Symptom Question #1179897

maryintx wrote:

My point is that you can have an underlying condition besides Graves but sometimes Doctors that see you repeatedly forget that and see you only as Gravesy- emotional feelings expressed as physical symptoms like when stress brings on nausea.

I’m so glad you were able to finally get the right diagnosis and treatment. I can so relate to this bit you wrote here – I feel like I’ve lost some credibility with my doctors during this whole mess as I’ve broken down crying in front of every one of them – even the docs I didn’t particularly like. It’s embarrassing to have so little emotional control though I’m doing better than I was. It’s hard to you go from being a weepy mess to then demanding proper treatment if you question their decisions.

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in reply to: Lowering Levothyroxine for Hypothyroid? #1180215

It sounds like a mistake was made somewhere along the line, perhaps wait on changes until you can talk with your endo directly?

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in reply to: hypothyroidism after RAI and TED #1180202

I’m glad you replied Kimberly that’s good to know about the four weeks – seems like by six weeks it might be too late. It was freaking me out seeing 116 views and no replies….guess people like to read about it at least!

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in reply to: Plummers nail #1180146

It is common for doctors to allow their Graves patients to become hypothyroid during treatment with methimazole. I suspect this explains many of the problems that develop in the months after hyperthyroidism is successfully managed with MMI/PTU. I had about one week of glorious health when my thyroid levels were perfect on their way down from being hyper, but they kept sinking and it’s been complicated ever since in various odd ways including joint pain. Perhaps ask your doc to take another look at your son’s FT4 and FT3 values in addition to TSH to make sure he’s not going too low?

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in reply to: Diagnosed @ 49 y/o #1179175

Hey Boomer, sending healing vibes your way! Good to see they didn’t nuke your sense of humor Don’t forget the sour candies to keep the saliva flowing and protect your salivary glands and lots of fluids for everything else.

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in reply to: Suggestions for burning/dry mouth #1180072

I’m with Shirley on the second opinion! For the mouth symptoms look for gum made with xylitol – it produces a cooling sensation and helps with dry mouth.

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in reply to: Finally good numbers after 5+ years treatment #1170897

Thanks Harpy, I feel more Australian knowing that, lol!

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in reply to: TT complete #1180010

Woohooo!!!!

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in reply to: Finally good numbers after 5+ years treatment #1170895

Thanks Harpy! I may be having thyroid brain but what are these traps you are talking about? I’ve brought it up too many times with my endo who told me straight up I’d have to find another doctor if I want to do that. That’s turning out to be more challenging than I expected though – long story for another thread.

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in reply to: no medication “prep” prior to TT? #1179954

Wishing you a successful surgery and recovery Talley!

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