[QZZznne]

in reply to: Medication/Surgery #1179546

My doctor (the practice) believes in the “definitive” solution. She actually told me the first day I went to her that I should start doing my homework on it because she rarely sees remission last. She told me when it happened last August, “enjoy it while it lasts”. So I think she believes that it is the best solution for me and I should trust her but when you remove it, your just taking medication everyday anyway.

I am going to go talk to the surgeon and see if perhaps he sheds some light on it all. I have two friends who had a thyroidectemy by the same doctor and he is very well respected in his field.

Didn’t have a lot of the syptoms this time like I had last time except for agitation. Last time I could barely walk by the time I got to the endo. No high blood pressure, nothing.

Since restarting the meds, I feel more achy than before actually. I remember right before I was taken off them, when my levels were good, I felt the very same way.

It is difficult to know what is right………….sigh.

[QZZznne]

in reply to: Update #1174785

Bobbi wrote:

Our disease is caused by antibody levels which can rise or fall for no well-understood reason. And, while stress does play a role in aggravating our condition at times, stress is pretty much a constant in today’s world, and we can still go into and out of remission.

It’s great that you can go without the meds right now. I hope you do continue to feel well.

I am one who believes that stress plays a role in a person’s well-being. I think major stress can break us down. And by know means was my recent stres at the “today’s world” level. It was a bit bigger.

I am very surprised at my test results and also realize it isn’t written in stone that I will continue to be med free but surprisingly this has happened. There may be no well- understood reason but I will take the break. I was just about ready to give up and if it rears it’s ugly head again, I know that I am not willing to go down the same road that I was just on for the past year!

[QZZznne]

in reply to: Methimazole Side Effects? #1173820

Just an update – my family doc was on vacation. So I called my Endo on Tuesday and left a message which is the protocol. Yesterday, Friday, I called again as I never heard back and spoke to the operator and explained my frustration. I got a call within an hour from a different nurse assistant as both my doctor and her nurse have Friday’s off. Explained my situation and he listened and then told me he would return my call asap after he spoke to a doctor in the practice. He did and asked come in for labs that moment, not Monday, but right away. I ran over and had them drawn and now by Monday I will get results.
In the meantime, I have just felt that although I have regulated my thyroid quite a bit from where I started, that now it is on the edge it is even more difficult to balance. I don’t ever want to feel like I did a month ago with the aches and lethargic feeling that I had because right now I feel fabulous. It was very wrong of me to stop the pill but I did and I know in my gut it isn’t right for me to take – or not to take. I guess what I am trying to say is even though it has been just a bit under a year, I don’t like the methimazole feeling and if that means that I have to lean towards thyroid removal, I am a bit closer to that after this episode.
So that is where I am at………….and you guys are great. It is nice to come here and feel understood!

[QZZznne]

in reply to: Methimazole Side Effects? #1173817

Sorry about your side effects It really is a battle isn’t it.

[QZZznne]

in reply to: Methimazole Side Effects? #1173816

Looking at my July 7th results –

T3 149.0 Norm is 84.0-172.0
T4 1.420 0.650-1.400
TSH 0.024 0.400-4.000

The BMI must have been a false reading

[QZZznne]

in reply to: Methimazole Side Effects? #1173815

Looking at my July 7th results –

T3 149.0 Norm is 84.0-172.0
T4 1.420 0.650-1.400
TSH 0.024 0.400-4.000

The BMI must have been a false reading

[QZZznne]

in reply to: Methimazole Side Effects? #1173812

I just found my labs from July 10th attached to the back of my invoice. How interesting they are although I don’t understand everything clearly, it seems that I am not that off in my levels if you look at whats normal and if I am looking at the right things.

Darcy – What reaction did you have?

[QZZznne]

in reply to: Methimazole Side Effects? #1173809

I have to say that I have learned more from this forum than in my doctors office. You are both examples of why I lurk around here so much….. knowledge and compassion. When you get Graves, you don’t realize that it is everlasting and will always have ups and downs. Not even the closest people in my life can relate to what it’s like on the inside.

I am going to turn to my family doctor to sort this out. I am making notes on your important steps Shirley and taking them along with me. My family doctor will be of great help because I love her and she listens. I am going ask her to help me find a better Endo too while asking her about lyme and food allergies. I have been gluten free mostly, I’d say 80 percent because of my family doctor’s recommendations. I found it odd but gave it a whirl and I did feel a difference in my overall health. Good enough that I stuck with it. Lately though, I have been a victim of a few summertime beers and some other indulgences so perhaps it is that also that is the culprit. The Lyme because I am outdoors and live in a “high lyme crime area”. It is so common here. Hence the poison ivy I am sporting right now and a miracle fix for that is apple cider vinegar. Takes the itch away instantly which is so awful you don’t care about how you smell!
OR I could be Hypo Caro, never thought about that and it would make sense with the way I felt. Boy that is not good either and it sure does flip flop fast.

Anyway, I will chime back in when I get some facts. In the meantime, thank you for your posts. You understand:)

Suzanne

[QZZznne]

in reply to: Methimazole Side Effects? #1173806

Shirley,

You are absolutely right. It was a pretty big knee jerk reaction to stop taking my methimazole. I just had this gut feeling. I felt awful for awhile and did mention my aches to my doctor (PA – I got assigned from the first time I called for an appointment) but she wasn’t concerned. I live on Advil. After my test week of not taking it, even though I felt so much better, I panicked and took my reg. dose and boom, four hours later I spent aching, freezing, and feeling fluish. I slept it off and by the following morning I was fine again. Now yes, could be a coincidence but this is how I felt, just much less intense, right before I stopped the first time. Perhaps it isn’t as serious as Agranulocytosis. Was thinking maybe it is just some sort of reaction but I am going to call tomorrow. I am secretly hoping she is on vacation so I can have the opportunity to see another person. It is a huge Endocrine Group.

As for my levels, have no clue. I hear it verbally from her when she moves the laptop screen over for a quick glance but I never get a take home copy. I really stink at the numbers thing and I need to get a grip on that. How pathetic huh?

Thank you for you care and concern. I am alive and well but will be calling tomorrow.

Suzzanne)

[QZZznne]

in reply to: Survey: If you chose medication( Tapazole/PTU) results? #1171134

I have been on methimazole since November 2011 with a monthly visit to the endo. This past month she told me that she will give me just 3 more months on it and that is it. My thyroid isn’t responding as fast as it should. I didn’t realize there was a time limit.

[QZZznne]

in reply to: Levels? #1170389

Bobby – That really was a great explanation and I am so thankful for it. I am going to dig out my hard copy of my blood test and read it carefully!

Thank you so much,
Suzzanne

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