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  • QZZznne
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    Post count: 33

    Glad to see your doing well Sue.:)

    Suzzanne

    QZZznne
    Participant
    Post count: 33
    SueAndHerZoo wrote:
    QZZznne wrote:
    Hello Sue – What are the drops and does everyone get them?

    Suzanne:)

    Hi Suzanne.

    SSKI (Saturated Solution Potassium Iodide) is something my surgeon instructed me to take 7 days before surgery, 3 times a day. Apparently it shrinks the thyroid and makes it less vascular, making my upcoming surgery safer and resulting in less blood loss.

    I don’t think all surgeons prescribe it, but mine did and who am I to argue.
    Sue

    I have an appointment a week before my TT. I guess if he prescribes them I will be prepared! Good Luck Sue as I know your day is coming up.

    QZZznne
    Participant
    Post count: 33

    Hello Sue – What are the drops and does everyone get them?

    Suzanne:)

    QZZznne
    Participant
    Post count: 33
    in reply to: Well, here goes! #1173629

    Thank you……that post did me wonders.

    😎 happy for YOU!

    Suz

    QZZznne
    Participant
    Post count: 33
    in reply to: Aches #1179879

    Christine –

    I am hoping for the best but this happened at the end of my last bout with the Tapazole. Took a few months before I had the aches. Now, round 2 and it was almost immediate. I am looking for an end too. Surgeon on Tues morning to see when and what not. I actually can’t wait even though I am scared as hell!
    I am 49 and PMS is bad enough now, I don’t need this again!
    Suz:)

    QZZznne
    Participant
    Post count: 33
    in reply to: Aches #1179876
    Boomer wrote:
    Hey there!

    When I started on Tapazole (Nethimazole) as well as a few days after any dose increase I had joint pain, muscle pain, and more cramps than I’ve ever had mostly in my feet of all places.

    I was told by my Endo that this is indeed a normal side-effect and that rash, nausea, vomiting, and fever are the ones to call him about right away.

    I swear the cure feels as bad as the cause sometimes. Just think about how tough this makes us though. The Graves Gang: Fear us.

    Hang in there and stay positive!

    Health and good vibes comin’ atcha,

    Boomer

    Graves Gang! LOL…..thanks Boomer.

    QZZznne
    Participant
    Post count: 33
    in reply to: Aches #1179874

    Thanks for the encouragment. I can’t wait to see the surgeon on Tuesday. He has no personality whatsoever so I am told by previous patients but he is one of the best so I can deal.

    Took today off from work just to chill out. I love to run and miss it so much more for mental than physical. For now I will just hang out.

    Sick of the aches and pains………been reading a lot!

    QZZznne
    Participant
    Post count: 33

    You will be fine if you hang out here with these great people. You learn so much and you feel like your not alone. As far as finding out the “why”, it isn’t going to happen. I recently asked that question in a post called “causes” and got some great responses so check it out.

    Suzzanne;)

    QZZznne
    Participant
    Post count: 33
    in reply to: Causes #1179752

    Naisley – Intersting perspective. Thanks for sharing.

    QZZznne
    Participant
    Post count: 33
    in reply to: Causes #1179751

    Karen – So glad to hear you are doing well :)

    QZZznne
    Participant
    Post count: 33
    in reply to: Causes #1179745

    Thanks Boomer. It’s great to be here on this board considering our circumstances!

    QZZznne
    Participant
    Post count: 33
    Naisly wrote:
    Euthyroid means normal thyroid function and does not mean Graves disease is in remission (The thyroid gland is the victim, not the cause).

    For Graves to be in remission, you must not have any (or very very little) TSI (thyroid stimulating immunoglobulin) which causes the production of the thyroid hormone. TSI is the direct cause of hyperthyroidism in Graves’ disease and TED. TSI will continue to be elevated if there are still environmental triggers.

    There are 2 things that stimulate your thyroid:
    TSH
    TSI

    TSI ‘pretends’ to be TSH and your thyroid makes more and more thyroid hormones all the while your TSH thinks you have too much so less and less TSH is made – Hence, Hyperthyroidism.

    The goal is, is to get those nasty buggers to leave. You can do this with the ATD therapy. Where as RAI will only make them angry (sorta speak) and they will search for something else to attack ie: eyes. Same thing with surgery, but not as bad as RAI. With TT there is ‘some’ thyroid tissue left. Obviously because of nerves, vocal cords, and parathyroids. Some believe that removing the thyroid will in fact remove the antibodies. I wish this was true. Fact is, TSI can be found in the brain, skin, bones, eyes

    Thank you for that explanation. I am going to print this out and bring it along with me for discussion with my doc.

    QZZznne
    Participant
    Post count: 33
    Naisly wrote:
    QZZznne

    Did your doctor test for antibodies? They would be TRAb and or TSI. A lot of doctors miss this and it usually takes a patient who advocates their health to ask for this test.

    If she hasn’t tested this, then I would look for an new endo as well. Because if she is not up to date, then how is she going to continue to treat you when you go Hypo?

    My doctor has never even mentioned TSI’s to me. WHY?

    QZZznne
    Participant
    Post count: 33
    bigad wrote:
    A large percentage of Docs seem to recommend RAI- is that an option for you? I’m scheduled for mine next week.

    Good Luck you to you:) I hope that you feel better.

    QZZznne
    Participant
    Post count: 33
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