[prknight]

in reply to: kind of excited #1063551

Sounds so familiar. I have been off methimazole since July. So far so good!! I was on it for a year. There is hope! Praise God! Praying I will not go back hyper!! I feel great!

[prknight]

in reply to: Hi everyone, we are back! #1065212

Please explain to me her treatment before she did the block and replacement. My endo took me off my methimazole recently and mentioned this form of treatment. What is she taking?
How long has she had Graves? Just curious.

Thanks!

[prknight]

in reply to: Off methimazole again #1065239

Thank you so much for your comments! Kimberly, I have not had my antibodies tested. He hasn’t mentioned that to me. I am eating healthier, exercising more, and feeling normal. Last year at this time, I felt awful! I feel like I am getting my life back. I will keep you all posted!

[prknight]

in reply to: Anyone get increased liver enzymes or testosterone w/ GD? #1065793

I had elevated liver enzymes when I was first diagnosed. Once I started taking my medication (methimazole) my enzymes became normal again. That is very common for hyperthyroidism.

Good luck to you!! It will get better!

[prknight]

in reply to: Have been taken off the methimizole also #1066963

I have been off of mine for three weeks and feel great!! Praise God! I will have my levels checked Jan. 20th. Good luck to you!!! Hope you feel as good as I do!!

[prknight]

in reply to: Endo has taken me off the methimazole #1067101

Thanks to all of you for your posts! I went to see my endo today. He took me off my medication since my TSH is so high. He wants to see if my Ft4 will go up. He is afraid even if I change to a low dosage 5 mg. that my number will go even lower. I already have gained 10 pounds and feel so tired all the time! I teach first graders and I need some energy!! He will check my levels again in a month. I am going to pray that the symptoms don’t come back! Scary!!!
Have a Merry Christmas!!!
Pam

[prknight]

in reply to: A year later…good news #1067380

Thanks so much for posting something! I am also on methimazole and after 5 months my TSH has moved from 0.01 to 0.11. I am praying that the meds will help me. I am feeling much better! My heart rate is finally down and I have stopped taking the atenolol. Thanks again!!

[prknight]

in reply to: So tired of this… :( #1067772

We have all been where you are! I don’t like being sick! God is helping me through it as He will with you! I take my anti-thyroid med. right when I wake up in the morning. God has blessed you with a precious one year old. Your child needs you to get better! It will not be an over the night experience. Please share with your doctor how you are feeling! It will get better! Hang in there!

[prknight]

in reply to: New to Grave’s Disease #1067973

"Princess" wrote:

Since I have gone hypo I luckily have not seen any weight gain. However, I am barely eating because I have that very same fear. I know it is probably my vanity kicking in but I just do not like to gain weight. This is why I am considering the "doing nothing" treatment. I know that I am going hyper again because my hair is beginning to fall out in the shower. This website is great because we all can feel each others pain and others cannot feel the sense of frustration. My endo sends me for bloodwork every six weeks. I get there at 7:15 am and have to wait over a half hour behind all the senior citizens that do not have to drive 40 minutes to their jobs which also adds to my frustrations.

What are you planning to do?[

Hey Princess,
I think I am going to give it a year. I heard there is only about a 30 percent chance that I will stay in remission at that time. If it comes back, then I will zap it. What did your endo tell you about taking medication? I have a friend who gained 30 pounds after she did RAI. She is now on a supplement and has lost the weight. Most endos will zap the thyroid. I am thankful that mine did give me options. I went to my endo on Tuesday. I told him I felt like I was going hyper. I have noticed my hair falling out, too! I am having a few heart palpitations. He increased my dosage to 10 mg. I will have blood work done in a month. I try to get to the clinic when it opens, which is 6:30 a.m. I know how frustrating it can be. I was hoping it would be a quick fix and it is not. Hang in there! So glad to have someone to talk to that can relate to how I am feeling! Thanks!

[prknight]

in reply to: New to Grave’s Disease #1067971

Princess wrote:LaurelM,

Thank you for sharing your story. My friends and family want me to find a new doctor and I am just tired of going for blood test after blood test. Then my blood pressure now is an issue and I must deal with that. I have gone from never taking medication to forgetting if I have taken all of mine. Now, I wait to see what my thyroid decides to do next. My family does not understand sometimes the effects this can have on my body. I have been off the medication for one-week and my heart palpitations have returned. I guess if I thought I ignored the problem it would just go away. My husband wants me to have the RAI but I have a real fear of gaining weight and do not want to consider that option unless I was not given any choice.

It helps to talk to people who can understand what I am feeling. I truly appreciate you sharing your story.

I can relate to you, Princess. I have been on methimazole since the end of June. The first month after taking 30 mg a day my free T4 went from 2.19 to .78 so my endo halved my dosage and a month later I went down to .68. I have lost so much hair and have gained 9 pounds in 6 weeks. I am now taking .5 mg. I had my level checked again two weeks ago and it went up to 1.00. I am still taking .5 mg and can feel hyper coming back. I am starting to have heart palpitations again. I am frustrated, too! My TSH was .001 at the beginning and hasn’t gone up since. I just wondered if I will ever get regulated and off medicine. I don’t like gaining the weight. I am exercising and eating healthier. Just keep putting the pounds on!

[prknight]

in reply to: How much Tapazole is too much? Results tomorrow… #1068950

Hi!
I was diagnosed with Hyperthyroidism two months ago. At that time my TSH was 0.01 and Free T4 was 2.19. My resting heart rate was also 120. My doctor put me on a beta blocker. It took me 3 weeks to see a endocrinologist. I felt horrible! After a month and being on 30 mg of Tapazole, my levels are TSH 0.01 and Free T4 is .77. I responded well to the treatment, but it has now put me in Hypo. The doctor halved my dosage and I will have my levels checked in two weeks. I am now off the beta blockers and my pulse is back down in the 60’s I have lost a lot of hair through all of this. Have you all experienced hair loss? I am also have trouble concentrating and with memory. I am also wondering how long you all have taken the tapazole. This all scares me! I wonder if I should have done the radioactive iodine treatment. Are you satisfied with your treatment?

Thanks!
Pam

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