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Oh I want fried chicken now! And they had the undercover boss on TV tonight where they were from Popeyes! LOL! That didn’t help.
Finally got a hold of my eye doctor who said to stay the course with the prednisone until I go in mid September where they can physically check out my eyes. So I didn’t really get the answers that I needed but I do know I need to be looked at. I’ll be on 10mg prednisone by then. Luckily that same day I will see my eye doctor, then my endocrinologist later in the day.
Amanda
Thanks. It has all really been a learning experience, though some things I think I end up knowing, then get all confused again about.
My very 1st endocrinologist was a numbers don’t lie kind of doctor and this forum & other groups have really taught me how different everyone is & even though my numbers may seem “standard” that does not mean I am ok.
My new doctor is much better. I saw him 2 days ago & he checked me out. We did different post op blood work & yesterday he thinks I should be able to go off the atenelol, I can lower my calcium from 10K to 5k, be he did up my levothyroxine from 100 to 125mcg though he said what was tested was in a normal range. It was over the phone so I didn’t get the numbers. I’ll ask for them next time I’m in. Time to wait now!
The symptoms all really started within 2 days post-op. (The Graves’ was what ended up being the TT factor for me.) I was confused & concerned because I really couldn’t decipher if the new problems I was having had to do with calcium deficiencies or the hypothyroid, because I never experienced the hypothyroid/Hashimoto so severe before. Then, after surgery, I had my ENT saying one thing and my primary office calling for another, then my health insurance calling & saying other things. I was all like, let me just call my endocrinologist & leave it in his hands right now.
We discussed a T3 replacement & non-synthetic T4. Of course, synthetic does work for some people & he is open to to the non-synthetic but, being within 2 weeks post-op, I just have to be patient and wait. AND pay attention to my body & symptoms. I’ll see him again in another month.
My doctor thinks the prednisone my ophthalmologist put me on for the TED in my left eye could be contributing though, & even hinder my healing a bit. The TED is the thing I am MOST impatient about! Since my right eye has not been affected by the TED, just my left, there are times where I feel like going and getting a patch for it! LOL Just cover it up and pretend it’s not there. Ugh!
I definitely have been trying to get up & move around a lot more lately. The joint and bone pain/aches has been hindering my mobility a bit though. Though I’m tired & feel kind of crappy I do feel like I have more energy but I also am getting depressed. Working through it. It’s been hard to explain because it has been so different, like shock.
Thanks again everyone for their words! I can’t even go on to how much of a struggle things have been to get me to this point & this group has really helped me get a more positive look at things to come! (& I have to keep telling me to stop being so impatient!)
XO Amanda
THANK YOU SO MUCH! I will bookmark this now. Still think it needs to be a sticky under announcements so I don’t lose it again!
Amanda
I am actually in the process of looking for a new endocrinologist. I saw him on Thursday & he made me feel awful. He said I just have bad anxiety & he was going to send a note to my primary that I needed to be put on medication for that & that the “lump” in my throat was just GERD & I needed medication for that also.
I mentioned before that my neurologist studied at the Mayo Clinic so I take her word over anyone else. I talked to her after my terrible appointment with my endo on Thursday & she told me because the methimazole effects the central nervous system that it could most definitely be affecting me & causing anxiety. My therapist works with my neurologist & wrote an additional letter to my primary advising that an anti-anxiety medication will just mask the Graves’ & that is what needs to be addressed 1st and not to prescribe it to me.
A friend of mine who suffered from Hashimoto was seeing an ENT here who specialized in thyroid disorder treatments & even surgery. He goes both ways as far as treatment with medication & surgery. I will be contacting them to see if I can set up an appointment with this doctor.
Reading other posts I see people with this need to make sure their levels are “stable.” My current endocrinologist was only checking my levels 1x every 6 weeks. I read other people, including my friend, were having their levels checked weekly. My endo advised my levels weren’t changing, I’ve only had blood tests with him about 3x since the end of October, beginning of November, when I was 1st diagnosed with a “severe” case of Graves’. So I questioned why he upped the medication & he advised because my levels changed, though in the same conversation he told me they didn’t change! I no longer trust his judgement as he became very condescending & nasty toward me after I pretty much called him out.
It’s a much longer & more involved story but I can’t have a doctor not listen to me & then also contradict his decisions. I have no clue why he changed the dosage to take all the pills together at once. I still was unable to see my numbers, even when I asked, he just said that the levels were in “normal” range. I think he was also looking at a “previous” white blood cell count by the way he worded it.
I understand that medical advise cannot be given here but the information that is given will definitely help me understand my condition more, know what I need to look for in a doctor & help me be educated enough to discuss the affects of it & my treatment options with them.
Thanks!
Amanda
