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I’m actually doing fantastically well since I started going to the Naturopath. What I’m afraid of is getting sick again going to a new doctor after I move if they change my medicines and supements completely around.
I did notice that, with speaking with multiple NDs in Atlanta, they have MDs in the office as well!
Yes I lost weight after my diet switch but we’re constantly checking my vitamins and hormone levels. I already had vitamin deficiencies and was already taking supements.
My endocrinologist who said I was diabetic didn’t believe my ups and downs and that i had anxiety. Only checked TSH and at a level of .40 said i was fine, when it was still dropping from there, and just told me I was diabetic. Put it in my chart and had me checking my blood sugar all day for months. My blood sugar was consistently checked and always normal and the blood tests always came back normal. I eat better than ever actually and have eliminated almost all processed foods.
My ND is a licensed midwife. she can write my scripts. She has special labs she works with and has studied how they work and what they test for diagnosis to determine the best ones for her patients. I have done my own extensive research on the subjects. I’m not here to argue about diagnosis and what’s right. People and some doctors also don’t believe in Lyme disease, Fibromyalgia, or chronic fatigue syndrome. Endocrinologists around here also don’t “believe” that testing anything other than TSH will do any good when it has been proven I don’t convert T3 like I should. For some people and standard treatment this is probably fine but I’m definitely not a standard case.
I’ve called a lot of endocrinologists who are not accepting new patients, out of practice, or want to put me back on synthroid and it must say something if I don’t have T3 I’ll have serious pain when put on synthroid… so I gave up. And now with the treatment I’m getting I’m feeling better than ever! I was NEVER stable with endocrinologists. I was in and out of work for 2 years, out the majority of the time.
I think integrative medicine is what I was looking for. I know many NDs are specific to diet, acupuncture or chiropractic but that’s not what I’m looking for. I wanted one who has good references and also assists with these additional things and well studied. They are few and far between. I know Bartonella is extremely hard to diagnose and Lyme can be as well, but based off my upbringing, where I lived, it’s all very possible too.
Yes it was a TT, nothing left behind. I’ve had issues alnost immediately after surgery. I have ALL my reports because I’m fighting with Long Term Disability still! Almost 3 years later. I’ve never done well on synthroid. I’ve been hopeful every time I was on it and every time they upped dosing but the pain would just get worse and worse.
So it’s still a journey! I need doctors to work together because for me it obviously wasn’t just thyroid but that’s what was jumped on. It was a major part though i still wonder if my TT was completely necessary. More time was on treatment of lab numbers than actual diagnosis and how I was feeling. I really thought my TT would make me all better and I was worse than ever right after and for a long time only up until about 6 mo ago!
I did notice a lot of places are in Alpharetta. I’ll definitely research Emory as well!
Thanks for all the info and responses!
Amanda
in reply to: RAI vs Surgery #1182899I always thought both were personal choices. My endo went back & forth between the 2 but we ultimately decided on the surgery because I was having trouble responding to the medications and they said the recovery with RAI would take longer. (Though the TT actually took me 7mo recovery before I could go back to work.)
I had an AMAZING surgeon, no keloid scar at all (I have them from other surgeries) but still a slight scar after a year that I seem to only notice and others don’t really notice unless I point it out to them. (If you want to come to Buffalo, NY I can recommend him!) If you have the surgery done well and don’t pick at the scabbing you shouldn’t get one.
Regardless of if I would have had RAI or TT the battle was the aftermath, getting my hormones in check and getting the right dose of meds to make me feel better. I can say though, after the TT I never had a panic attack until I got way too anxious going back to work. But my anxiety is SO much better! I AM on 5mg of Lexapro now but that’s even less than a normal starter dose and I only started that after I went back to work so next doc appointment I’m going to see about getting off of it.
I don’t know how you can convince your doctor. They can’t force you to do the RAI. Since ENTs do the surgery maybe it would be best to consult with one of them. See if they have before/after pics (or patient testimonials) of their surgeries & necks also!
Good luck!!
Amandain reply to: Stressed and needing a pep talk … #1182879I’m sorry to hear about everything that has gone on & may be going on in your life. *hugs*
Stress is a huge factor. I was actually being treated for Hashimoto’s when I had a huge flip to Graves’ but during a high time of stress between family, my job, and a surgery not related to my thyroid. I’ve finally seemed to level out a year after my thyroidectomy w/my doc only checking Free T4 and TSH now but I still have issues with a mix of hyper/hypothyroid symptoms when I’m in higher stress situations or if my routine changes.
Couldn’t hurt to ask for them to do a full thyroid panel just to see if anything jumps out, as well as other hormone levels. Even with my higher stress my levels have been coming back normal lately though I know my symptoms are associated with my disease. Plus your levels can change depending on the day so what I did was ask for a script and went and had blood work done on a day I was feeling particularly awful. Came back still in normal range though slightly off from what it was before.
I used to have pain also but when I switched from a T4 to a T4 & T3 (Armour) the pain went away. Still had my other symptoms but the fact the pain was gone helped SO much! You don’t have to necessarily switch the dose of your Tapazole but maybe add a T3 med to it. (Tapazole just never worked for me.) I also am on a teeny tiny dose of anti-anxiety/depression med. Only 5mg of Lexapro. Of course this is my med routine, still, entrust in your doctor’s advise but it can’t hurt to discuss everything and ask lots of questions, making sure they explain why they are deciding what they are as your plan of action and that you understand it!
I learned though that with it being slightly off, it’s not worth changing the medication dose as it could take months for that to kick in and usually after a few days of feeling like crap I’m back to normal. If you are feeling bad for a week or more I would stress to your doctor for more help. Not necessarily medicine wise if your levels are normal, but it could be ways to help channel your stress. Like I’ve found for me that taking about 1/2 hour walk every day after work helps me de-stress. (Though I have no idea what I’m going to do in the winter when it snows because I hate going to the gym.)
Good luck!! – Amanda
in reply to: Pain being hypo after TT. Might go on Armour. #1181491The last labs I had done were the only ones I listed above. I think the free thyroxine index is reverse T4 but I’m not entirely sure. I had also read somewhere in the past that somehow with other tests the RT3 can be read through the regular T3 readings. Something involving another test & math I believe…? I have no idea. Starting to become clueless again.
My neuro wants me to go to a rheumatologist so they can check other things like vitamins & see if there’s any other autoimmune problems lingering.
My chest pain became unbearable yesterday so I went to an urgent care facility to spend $75 to be told I most likely have costochondritis (lungs & heart seem fine), take 600mg of motrin 3x a day & call my primary tomorrow. I still have lingering pain. Now my neck is killing me too even with the pain meds. No clue if this is from the hypothyroidism / Hashi’s or what.
Very stressed for a multitude of reasons. Really upset. Feel like crying. Just want to be better & go back to work & not feel like hell.
Amanda
in reply to: Itching/Rash? #1181475I had Hashimoto’s with Graves’ which was a big factor in contributing to itchy rashes & hives for me before and also when I had Graves’. It started up again after I started Tapazole also but my derm doc said it was dermatitis. It got better after a few weeks with a higher dose of antihistamine. Have you been checked for anti-thyroid antibodies? Learned my thyroid problems elevated my allergic reaction to things. A zyrtec/claritin/allegra/benadryl (your choice) might help. Or you might need to see a derm doc to make sure its not some other autoimmune skin problem.
Amanda
in reply to: Pain being hypo after TT. Might go on Armour. #1181487Oh, forgot my blood pressure & pulse are fine everytime I check.
in reply to: Feeling OK but Looking Horrible #1180837SueAndHerZoo wrote:I got online and ordered myself one and it just came in. I haven’t had a lot of time to practice and play with it yet but I think I’m going to like it: Smashbox High Definition concealer. It’s got really great reviews, especially for under eye circles, and I think the most challenging part would be picking the correct shade online. Probably better off to go buy it somewhere in person but I didn’t have time this week so gambled with a shade online.Smashbox is a great company too. I tried a few concealers including theirs but found the best coverage & shade for me was the Kat Von D. I dab then blend, then let it dry, then if I feel I need more coverage I dab & blend again. Usually never need more than 2 applications. Just like the condition, it’s different for everyone! LOL I also got overwhelmed when trying to find the right color! Let the professionals do it for me. I had a friend with me too who wasn’t too helpful to curb my “retail therapy.”
I’ll be seeing my eye specialist on Thursday. I have a lot of questions for him but who knows if I’ll get any answers that I’ll be able to fully medically understand & relay back well enough for anyone else to.
Amanda
in reply to: Recently Diagnosed with TED #1180961I don’t think any steroids are good long term nor any smart doctor would put someone on them long term… oral or not.
As with me, the steroid eye drops helped tremendously with the appearance & skin around my eyes & I was on them only for a temporary time at a low dose. My eyes were starting to get bad though. Tired warm/cold compress, I even had other doctors going back/forth between a low hydrocortisone cream for the skin around the eye & petroleum jelly. Nothing worked for me until I started the steroid eye drops. In conjunction with the steroid eye drop they started me on an allergy eye drop, Patanol, which is all that I’m on now but I’ve had allergy problems in the past. I’m now on an oral steroid but that’s due to surgery & I’m weening off of it. I still have vision/tearing complications & will be back at my eye specialist this week. You can’t tell by physically looking at me that I have TED.
Of course, I would hope you can trust your specialist to make the right decisions for you & they monitor the condition closely & regularly to help.
Amanda
in reply to: No sleep driving me insane! #1180931adenure wrote:When I’m very desperate after many days of 2-3 hours, I would take a Benadryl, but if you’re hyperthyroid, you have to be careful with it as it will raise your heart rate. If I take Benadryl now on occasion, I do not suffer from any heart rate issues now that my thyroid is gone. Maybe if you’re thyroid hormone levels are stable, Benadryl would be okay sometimes, but I would ask your doctor. My doctor was fine with it (even before surgery).I do the Benadryl when I am desperate also! LOL I agree, ask your doctor 1st. I know I have to be careful because of all the other medications I’m on for allergies & asthma.
MeeMee it was good to see you got some sleep but I’m sorry to hear you had another bad night. I’ve noticed as far as my heart racing/pounding it’s more right after I wake up & right before I go to sleep. Weird. Mid-day I’m “uppity” but my pulse & pressure are in normal ranges. Because it’s not constant, my docs took me off the beta-blocker. Are you on a medication for your heart rate already? I would keep tabs on your pulse & blood pressure & keep a log (maybe morning, mid-day & night) even if you are on a beta-blocker & discuss it with your doctor.
Otherwise, things that have helped me. Lavender essential oils or products with that in it. In a bath at night, in a lotion on my skin before I go to sleep. I don’t even like lavender! haha But it really does help calm me! Diffusers in my bedroom or a lavender pillow spray might help.
doTERRA also makes this essential oil blend my friend got me called Serenity which is calming & you can either diffuse it or use it topical. It’s expensive but I love it!
I also LOVE Sleepy Time tea before I go to bed by Celestial Seasonings. For some reason, straight chamomile tea bothers me, but this has a bit of mint in it & it really helps calm me too.
Hopefully you’ll find the right thing to get a good sleep consistently!
Amanda
in reply to: Recently Diagnosed with TED #1180957Maybe not an oral steroid but what about a steroid eye drop? It won’t be as strong as the oral & no side effects like the oral steroids have. Could be helpful.
Before I was diagnosed with TED the skin around my eyes started to get irritated & even scabbed because of it. It was awful. Then they diagnosed me with the TED put me on a steroid eye drop called Lotemax & it cleared up in about 2 weeks though I still have other vision & tearing complications from the TED still. Even on oral steroids.
Good luck!
Amanda
in reply to: Feeling OK but Looking Horrible #1180817I actually went to Sephora the other day because I had a groupon & had to pick some stuff up & I guess the Kat Von D line has been expanded so she has this concealer called Lock It Tattoo Concealer, which you can actually cover up tattoos with! Problem is it’s so popular in my light shade it’s not in stock on-line & I had to call around to different stores to find it. finally sound it in the JC Penny Sephora. So now that’s my new thing but I also got more of her eye primer for above the eyes.
But yeah, the Sephora girls were really helpful finding my right shade for me. A friend of mine got mugged once (she was ok but a bruised mess for a while after) & I don’t have permission from her (I wouldn’t even ask her because I know she’s still sore on the subject with how she looked after) but I WISH I could have posted the pictures of her before & after. They did a fantastic job on her & she had some terribly bad bruises on her face. She’s fully recovered now.
As far as “fixes” to reduce puffiness & the circles w/out makeup, if anyone ever finds one, LET ME KNOW. I’ve tried too many things. So many I can’t even remember or list them, nothing ever worked, so that’s when I started experimenting with makeup just to cover it up. I know I haven’t tried the Earth Sciences stuff.
I did a little search also & found this:
Hypothyroidism
Hypothyroidism is a thyroid hormone deficiency disease. Hypothyroidism may occur at any age and is common in older adults. According to the Merck Manuals of Medical Information online database, obtaining a diagnosis for hypothyroidism may be easier for younger adults, because it may be more subtle or atypical in older adults. You may develop dark circles around your eyes, because hypothyroidism can cause an infiltration of complex sugar molecules in your face, which leads to swelling and discoloration in your face and around your eyes.
Read more: http://www.livestrong.com/article/294197-pathologic-dark-circles-around-the-eyes/#ixzz2eCyEgpHY
Hmmm… if that’s the case, how can these “molecules” be treated to rid us of this!? More research needed.
Amanda
in reply to: New here….Just Diagnosed With G.D #1180875I’m so sorry about your relationship but if that person could not support you after that long they are not worth it. I know it’s easier to say but I hope you can realize that. You definitely need a good support system around you right now. My true friends & family have been there for me but even I know they can’t really comprehend what I am going through so this group has helped me a lot! Before I had any answers & diagnosed with Graves’ I thought I was going crazy. Luckily, I was already being treated for Hashimoto’s so my routine blood work caught the switch to Graves’ sooner than most.
Before I was diagnosed I had terrible pain also. My blood pressure was dangerously low & pulse was dangerously high. Once I went on a beta blocker the pain went away within a few weeks. But everyone is SO different with their symptoms & what will help them. I had awful hot flashes, sweating, exhausted but awake and I even thought I was pregnant at one point. It was all because of the Graves’!
Everyone is right, do your research! It helped me realize that my 1st endocrinologist was not right for me. When I would question things he would not give me answers that I would understand & I got the “I’m the specialist, don’t question my decisions,” from him. With my numbers being in “normal range” I still felt awful & to him that was ok! Yet every few weeks the dosing always had to be upped, which led to me finding a new endocrinologist that listens to me & answers my questions and eventually led to my TT last month because they realized the medication was not a working option for me.
Good luck & take care!
Amandain reply to: Is this common for TED? #1180869Luckily, my specialist works with the local university & the place I have been going to is a learning/teaching facility so they told me they are not even billing my insurance! (Because I kept asking if they were putting the claims through as medical instead of just optical because of the condition.)
I could REALLY use a new pair of glasses, though I think I need more answers & to get this more under control before I do.
Amanda
in reply to: Feeling OK but Looking Horrible #1180826I’ve always had problems with dark circles. The best that has worked for me is a primer (Sephora perfecting eye primer or their anti-shine foundation primer is good & cheap) then the BEST cover up w/eye primer I have was with the Kat Von D High Voltage Eye primer. I use it above & below my eyes for the dark circles. If the shading doesn’t blend well with the skin tone, then use your regular foundation on top of that, then I use powder for matting.
It can be time consuming but I would suggest if you have a Sephora or Ulta close to you go in & ask someone to help you & try the stuff out. (Sephora peeps seem better at makeup consults to me.) Little bit can go a long way so they have been worth the $ to me.
I’ve noticed after my TT the circles seem darker also. I really don’t think it has to do with my TED. (Karen, I’m the same way w/my TED) The circles could be from allergies, eczema, thinning skin, rubbing your eyes. So… maybe it could somehow be brought on by the disease.
Know all too well about the “Are you ok?” My supervisor would ask me EVERY DAY and I gave him the same answer EVERY DAY.
Good luck! Amanda
in reply to: Is this common for TED? #1180867Nancy & Karen thank you! At least I’m not going crazy. Which every new or progressive thing with this makes me feel like I could be.
I’ll make sure I ask & know those things are being checked when I get my blood work done next Monday & be prepared with my questions when I see my doctors later that week.
Unfortunately, last year at the end of October was our open enrollment & I dropped my separate eye coverage. I do have minimal coverage, like 1 appointment per year, with an ophthalmologist & terrible discount plan under my main insurance. The only thing the eye coverage was good for anyway were the glasses. Who knew 2 months later I would be diagnosed with Graves’!?
So frustrated!
Amanda
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