[PolishTym]

in reply to: Anyone suffer Generalized Anxiety or OCD? #1182928

Wilson, I bought an insane number of hats when my hair was coming out and thinning. During that time I used shampoo and style product that were each a thickener too, both made by Every Man Jack. However, there should be other brands out there.

It has been three years since my thyroid surgery, and for the last few years my stylist has kept thinning my hair because she says it is too thick. So keep the faith.

[PolishTym]

in reply to: Comtemplating TT #1181868

The TT was the best decision I made regarding my thyroid. It helped choosing a specialist surgeon I trusted and felt comfortable with. I especially felt good when other doctors said they’d choose the surgeon, if they needed the surgery too. So if you go this route, find one you really like.

[PolishTym]

in reply to: Anyone on Methimazole and experience hair loss? #1181625

I had really thick hair until the methimazole and then bam, it started going away. The timing of loss might not have been the same as your situation, but similar result. The hair came back after the surgery, although not to the same thickness as immediately before the methimazole.

A thickening hair shampoo and thickening styling cream helped to make up for the loss, kind of. For men, I recommend the Every Man Jack line of thickening, but I don’t know products for women.

[PolishTym]

in reply to: Medical Alert Jewelry for People Without a Thyroid #1181428

That’s my approach, too. I just have a bracelet, no system connection. I wear it when I am out of town just in case something happens, but I should wear it more often. I went with one that looks cool for guys but is heck to get on and off. Next time I am going for a stretchy one.

[PolishTym]

in reply to: No sleep driving me insane! #1180941

The air purifier in allergy season and the humidifier in winter helps me because of the white noise.

[PolishTym]

in reply to: How long did you have symptoms before you got the diagnosis? #1180989

I guess I was lucky that the worst symptoms showed up months before a physical. My GP didn’t notice my tremors but the nurse did while taking my heart rate. The GP wrote it off to some inherited cause of a tremor. The thyroid score on the physical initiated the visit to the endo. So looking back I can see that the tremors were there for months and months before the nurse noticed but to a smaller degree.

I will take later than never on the diagnosis.

[PolishTym]

in reply to: I will be helping this weekend while Kimberly attends a meeting. #1178322

Good to have your participation, Ms. Patterson. I miss the foundation being in Williamsville–I used to go to the mall there as a kid and eat at Roy Rogers!

[PolishTym]

in reply to: Could This Be True? #1176355

That’s a new one to me. I was initially interested in being on meds long enough to go into remission, but my endo warned me about the risks. From what I read, some doctors think insurance companies prefer RAI to get it over with quickly. My endo said, and there seems to be agreement, that it is easier to manage hypo than hyper.

[PolishTym]

in reply to: Singers and TT #1176280

I don’t sing but my job requires lots of talking, so I was worried about potential damage. As others suggested, find the best surgeon possible. I was fortunate to have a great one about 90 minutes away, but I would have traveled far for the same guy.

[PolishTym]

in reply to: One Month; Feel Horrible #1176016

I felt worse before I better. It was a real shock to the system getting Graves and then trying to bring things down. The ‘it is a marathon, not a sprint’ mindset helped, and stills helps, me get through. Give yourself time and do not hesitate in telling your doc how you feel.

[PolishTym]

in reply to: So Graves’ Disease is a frame of mind??? #1176077

Do you think your mother’s reaction is connected to your late father’s condition? How did she react when he was ill? Is she in denial? Is she afraid that accepting your condition will lead to a similar result for you, even if there are differences? Some people who don’t get that ill can’t look from another perspective, or they refuse to accept reality after a bad experience.

I have a sister with cancer and she and our mom don’t get along. The best news I heard was that they weren’t seeing each other on Christmas. Sometimes minimal contact is best. Don’t feel guilty avoiding others if not a positive experience. We all deserve our breaks from human contact at times like this.

If I remember right, you are in the upstate area, probably closer to WNY/southern tier. If so, you may want to look into help in the Amherst area. I think there are some psychiatrists around there who work with patients having medical conditions, and they may be more understanding than the one you had. I am not trying to be pushy–just a thought. I could have used someone early on just help me sort things out.

Best wishes.

[PolishTym]

in reply to: Graves and Dating…possible? #1176042

My brother-in-law met his future wife through the old style matching service when people went to offices to watch videos. I do not know if they still exist, but I think they could weed out the strange characters.

I wonder about support groups because similar issues mean chance for greater understanding, yes or no?

[PolishTym]

in reply to: 504 Plan for school accommodations #1175434

From what it looks, 504 seems to be for access. There are some fundamental differences between k-12 and university in relation to support, and this tends to be in accommodations such as a learning disability needing a quiet place to take an exam.

My advice is to have her doctor write a letter identifying specific problems. Provide this to the dean of students’ office, and have this office connect with the office that handles students with challenges.

Encourage her to speak up for herself but also respect the rules and process in the institution. It is important that she gets used to communicating with the faculty herself. However, some disciplines are less inclined to be flexible in providing extended time if completing projects in timely fashion is demanded in their professional fields.

[PolishTym]

in reply to: Back from Cleveland Clinic #1175245

vanillasky wrote:

Well, good luck, that’s all we can wish for. I’ve been to so many and they were all very uncaring and uninterested. Now I have to drive 4 hours one way to Cleveland OH to see top notch doctors that finally understand me and know what’s going on!!!!!!!!!!!!!

Too bad you have to go that far, especially with UR and UB having medical schools in the region. But I once had a Buffalo doctor tell me I had a sprained wrist when it was really a fracture, so I believe it.

[PolishTym]

in reply to: Back from Cleveland Clinic #1175238

I see you’re from upstate NY. Hopefully you aren’t still there, because that is a haul to Cleveland. And Erie has poor weather half the time!

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