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Viewing 7 posts - 1 through 7 (of 7 total)
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  • phuffman39
    Participant
    December 20, 2013 at 11:45 am
    Post count: 8
    in reply to: What Questions Do You Have About Thyroid Eye Disease (For Our Upcoming San Diego Event) #1181811

    I would like to know about the resolution of TED. Once thyroid has been stable and antibodies have returned to normal (none) does the tissue around eye- between eyelid and brow bone and under eye bagginess – ever revert to the way it was pre TED or is surgery necessary? I took PTU for almost 2 years and just received my first negative antibody report and I know eyelid retraction must be treated through surgery but want to know what to expect concerning tissue swelling…as it is still pronounced! Thanks for taking our questions!

    phuffman39
    Participant
    April 9, 2012 at 5:12 pm
    Post count: 8
    in reply to: Sooo frustrated! and getting nowhere #1171150

    Bless your heart! (and Body!) Wishing you better results.

    phuffman39
    Participant
    April 8, 2012 at 7:29 pm
    Post count: 8
    in reply to: Survey: If you chose medication( Tapazole/PTU) results? #1171133

    Was it worse the second time? What treatment did you choose this time?

    phuffman39
    Participant
    April 8, 2012 at 7:03 pm
    Post count: 8
    in reply to: Graves Opthalmopathy #1072661

    I guess this might be a dumb question…but once your have TED and go through cycle of hot phase down to inactive, can you get it again?

    phuffman39
    Participant
    April 8, 2012 at 6:50 pm
    Post count: 8
    in reply to: New to Graves – struggling with decision – drugs or RAI #1171074

    Did you have eye issues before? Did RAI make it worse? That is my question. I keep reading RAI can make eyes worse but the opthalmologist that recognized my Graves said she wasn’t aware that it made it worse….which makes me worry. I would say my eye condition is mild (gritty sensation, swelling of tissues above and below eyes, and mild eyelid retraction) I sure dont want it to get any worse!

    phuffman39
    Participant
    April 8, 2012 at 6:45 pm
    Post count: 8
    in reply to: Survey: If you chose medication( Tapazole/PTU) results? #1171131

    What happened after 5 years?

    phuffman39
    Participant
    April 4, 2012 at 5:40 pm
    Post count: 8
    in reply to: Tapazole not working now what?!!! #1170945

    You said it gave you health back…do you have any related problems now such as eyes, etc? I am newly diagnosed and have my first endocrinologist appt next week. I thought trying drugs first instead of killing thyroid sounded smart. I am so worried about being hypo and all the problems that brings. It is hard to know what to do! I have eye involvement (opthalmologist diagnosed it) but no vision problems such as double vision just lid retraction and gritty sensation.

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Viewing 7 posts - 1 through 7 (of 7 total)