Hello Wendy!
I read your post just as I was walking in to church last night and immediately said WOW! I then said a quick prayer for you and your sufferings with this disease. I, like you, know little about the acropathy other than I have ugly fingers! The very first endo I saw as he introduced himself to me took me by the hand and in the same breath said Hello, I am Dr. so & so, how long have your fingers looked like this and how long have your eyes been bulging? Other endos observe my hands but are more interested into the oddity of the rest of the stuff (i.e. continued TSI levels elevating). I will look for the info I’ve dug up and get back to you. I will pm you with my info. This is a refreshing sight. I have felt like I’ve been on a deserted island for so many years. Thank you ever so much for your post.
