[PaulaK]

in reply to: I think my son has a thyroid problem #1072809

My son, Eric, DOB 4-24-93, has been diagnosed with Graves’ disease, since March of 2001… First seen by his GP, his first TSH was <.001, with a t3 of 555. He was immediately sent to a pediatric endocrinologist. I hope there is a good one for you in your ares.
He’s been being treated by tapazole of some form for the whole 8 years. He just had RAI treatment just last week.

[PaulaK]

in reply to: Graves film #1072844

I am knew to this site. I just seen your post, and I’ll let you know that my son, Eric, will be 16 on April 24th, and has been diagnosed with Graves’ disease for 8 years, and he just went through RAI this past Thursday. He’s been on tapazole in some form the whole time with no remission. He feels pretty bad right now. I’m hoping for better soon. He starts the tapazole back up tomorrow. He didn’t feel that bad when we started this all on Feb. 18th …

[PaulaK]

in reply to: I feel so helpless #1072917

My son has never had any stomach problems of any kind before this…. he’s been in the same school for 3.5 years now, and just went to the school nurse for the first time.
Eric has been on tapazole for 8 years now, and just went off them cold turkey in February to start these tests and do the RAI treatment. I don’t think we knew what was going to happen to him, and I’m not sure why we didn’t know what toll it was going to take on his body
I’m sure we needed to do the RAI finally, we tried to go 2 years ago, and the adult endocrinologists wouldn’t take him at 14… actually, they still say they don’t see under 18. This Dr. Phillips talked with Eric’s pedi endo on the phone and agreed to take Eric as a patient.

[PaulaK]

in reply to: I feel so helpless #1072916

Amy, My son, Eric, who will be 16 on April 24th, he took his RAI on Thursday, 3/12… he has been diagnosed with Graves’ for 8 years and has been taking tapazole of some sort the whole time, never gone into remission, the pedi endo don’t deal with the radiation, and the adult endo’s wouldn’t see under 18. We just got into a new endo (young man dr. phillips) on feb 18th… his uptake was high, and he only had a 15mcii? dose of the RAI… he’s been off his tapazole since the 18th of feb. and he’s going to start taking it again tomorrow, at 15mg’s a day.. and repeat labs in one week. He was not feeling real bad back in January regular labs he was elevated again, his TSH is mostly ALWAYS <.01 and his free t3 started at 555 back 8 years ago. They added the propranolol at 60mg’s for the first time ever at beginning of Feb, when the pedi endo’s office called with the latest labs… they had brought him to one 5mg tab in the am and one in the pm… he’s gotten down to 1/2 tab (2.5mg) a day at one time…
Even though Eric’s had this for 8 years, I’ve learned a lot more, it seems, in the last couple of weeks. Eric has felt super bad off the tapazole, (3 weeks now) and it’s 2 days past RAI, he’s like your son, with the nausea…I guess we should of waited until June for school to be out… as he’s signed up for high school baseball team (again) and is a real good student too (honor roll every quarter) he’s missed most of the last 3 weeks do to the elevated symptoms he’s feeling.
I just stumbled onto this web page from my FaceBook pages. You & your son are in my prayers. thanks for being here to share my son’s experience too. take care. Paula

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