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in reply to: Can a thyroid “regenerate”? #1171630
How about it returning after RAI? Had RAI over 2 1/2 yrs ago and lately have been getting the strange hyper symptoms again. Had bloodwork done and tsh was .7 and free t4 was 1.50. Is this common. I adjusted my synthroid down a bit to see if I feel better. Is this common after this long. Thanks
in reply to: 6 MONTHS RAI AND STILL A ROLLER COASTER RIDE #1065339Shirley, you are so fortunate to get your lab results online. I also work part time for a chiropractor and they finally faxed the results to him, but they said they can never fax directly to the patient. I live about 30 miles away from the lab so I can’t just run and get them whenever. I have even tried to give my written permission for them to fax them to me, but no way. It is very frustrating running 30 miles to get bloodwork done and then another 30 miles a day or two later to pick them up. Crazy.
in reply to: 6 MONTHS RAI AND STILL A ROLLER COASTER RIDE #1065334Ok Ski I’m taking the 100 mcg and will try to stick with it. I wish I could just sleep better and the hotness gets to me. I guess I’m just a little worn out and depressed. Thanks for the advice.
in reply to: Treating the underlying autoimmunity #1065374To Kimberly or Ski. I was wondering after you have RAI do you still have to be careful about iodine, since supposedly the Thyroid isn’t functioning like it once was? My fish oil supplements have iodine in them. Thanks.
in reply to: Went hypo..on levoxyl..when does it kick in? #1066737Well I finally went hypo. My TSH was 8.37 and my T4 .06. About 10 weeks after RAI. What a trip. So this morning I take my first synthroid and WOW! By 2p.m. my head was throbbing and my heart rate was up to 92 and blood pressure was up. So I called Dr. and they said split the pill for 4 days and then 3 days of full pill(.75 strength) and call them in week. They said I must be very sensitive to meds(I told them I thought .75 was too much) To get my head from pounding and my HR down I went back to dosing with beta blocker, motrin, and my other 1/2 of high blood pressure pill and an aspirin 2 hours later cuzz my head felt like I was going to stroke. Finally after 4 hours I feel a little better. I’m really not looking forward to my next dose. Please assure me this will be temporary, anybody. I’m worn out! I am so looking forward to feeling good someday. Maybe I should be on .25 mcg and not .75. Anybody experience this 1st time? Thanks for listening. I appreciate all the support this site gives. Patti
in reply to: Is there anybody out there? #1066437Kimberly, Are you wearing the medical bracelet because of Graves Disease? If so why? Just curious if I should be wearing one for Graves. Thanks. Patti
in reply to: Went hypo..on levoxyl..when does it kick in? #1066715Wow, Enough, I’m so glad your getting it back together. It encourages me to hear the good things. I’m still climbing the hill. My Rai was almost 7 weeks ago and I had blood work done last week and my TSH hardly budged and my T4 the same. I could tell, though, as I am still having hyper symptoms. I’m still taking beta blocker twice a day, but my heartrate is lowering if I don’t get stressed. So I may cut back on that and see if it stays down. Last time I cut back and before I knew it, it was right back up to 85-89 in a week so back to taking more. I get so very tired of the daily struggle because I so want to feel good again. Sleep is still very very hard. I really am trying to be patient, but I’m afraid it will hit hard when hypo hits and then I will have to start another battle. But I read the stores everyday and know I’m not the only one out there struggling and hoping. Thank goodness I have this website to turn to.
Enough, I’m glad your getting there. I’m just really down about my symptoms. I had RAI 1 month ago and at first my heat rate went down fast and I was feeling a little better & a lot cooler, still not sleeping good yet. That was short lived. The last 8-10 days I have felt hyper and heart rate is up again, I get hot & tremors, I increased my betablocker. Last night RHR was 89. I feel so awful when I get like this. I’m absolutely worn out. I’m so tired of this. I guess I just need some reassurance from the people that know about this horrible disease from hell.
in reply to: Hyper after RAI #1067176Oh my goodness. I took my heart rate last night and today and my pulse rate went down 20 points in over 1 day. I have been testing at 85 & higher sometimes(for years) and last night it was 65. I’m still on beta blockers. I took 50mg ext.release before treatment and it held around 85, now I’m taking 25 mg of the regular kind (as Doc thought hey would work better for me as I needed them) about every 8 hours during day only. Could the RAI already be working in 1 week after treatment or is it just the beta blockers are working differently? I’m cutting back cuzz 65 RHR is unheard of for me. I mean this just actually happened in one day. I have a BP cuff and the day before it was 85 and all the other times before it was in mid 80’s or higher for years. Any comments?
Patti
Actually, Nick it was a tool that he put up to my eyes and measured where the bones from the eye socket are and measures out to the tip of the eyeball. Mine was 16 and 17 at the endo’s and at the eye doc it was 18. He said it just could be a slight variation on the tool from each doctors. I hope so. That would mean my eyes mover 2 and 1 millimeters since my RAI.
Wow, Enough3, I didn’t realize that you had a thyroid storm. How awful. Can you take beta blocker for the bothersome heart? I do and it really helps. I forgot to take my dose yesterday until 12 hours later and oh my, I waited to long and it was awful the old hyper symptoms just came rushing in! I’m post 5 days RAI and now I wait. I did go to the Eye Doc today. He measured my eyes and they were 18 each side. Does that mean anything to anybody? What is normal? He didn’t say much other than I could get the eye involvement at any stage of the disease. Crap, something to worry about forever more. All of you take care.
PattiNick,
Was just wondering what your dose was when you had your RAI? I just had my RAI on Wed, Dec 16 and I’m really wanting it to work. Does your Doctor give you any clues as to why it is taking so long? My uptake at my nuclear scan was 37%. What was yours? The endo dosed me with 20 mil. I just can’t imagining putting my body thru it again! My endo even said at the hospital, "hopefully it will work"., after I took the pill. That would be total crap if it didn’t work. Hey guys is it possible that it takes longer than 2 months?? Nick I hope you the best, I have had issue with the heart going wacky too. It is very bothersome. The beta blockers do help. I found the beta blocker 25mg every 8 hours is so far working pretty good. My endo says I can take 100 mg a day if I needed to. I did the extended release ones before RAI and they didn’t work as good and I was taking 50mg a day and they lost their puff toward the end of the 24 hours. Anyways keep us posted.
Patti
Elf, Did you gain weight in those 5 months? I had RAI on Wed. I’m feeling fine right now and waiting for the bomb to drop. Your lucky your doc orderd blood test every 2 weeks. My first one is i 6 weeks. Seems long time to me.
in reply to: GETTING RAI ON DEC 16….I’M SCARED #1067129Well, I took my RAI today. Ski, I’m doing the garden glove thing you suggested. I’m hoping for the best! I will keep you posted. I’m sure I will need advice soon. Thanks, Patti
in reply to: GETTING RAI ON DEC 16….I’M SCARED #1067127Ski:
Wow 7.4 doesn’t seem like much to knock my thyroid out. I sure don’t want to do this thing again. Should I question the Dr about his calculation? -
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