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Viewing 15 posts - 1 through 15 (of 36 total)
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  • paloma
    Participant
    Post count: 42
    in reply to: Hello #1066891

    hi mama bear! i’ve been offline too. glad to know you’re still doing well. keep us posted, and let us know what’s going on in your life. your posts are always so upbeat!

    paloma
    Participant
    Post count: 42
    in reply to: Disability #1070408

    I tried to apply for SSI, but my doctors can’t say how long I might be ill. As for my brother <img decoding=” title=”Cool” /> , he lost an arm in a motorcycle accident. He applied, was told he could be retrained. Used to work in construction, obviously can’t do that anymore. Also has learning disorder. I could not believe he was denied! :o
    He is trying to survive, but it’s really hard to work in a department store, stocking inventory and cleaning up, with just one arm. He was sent to another department b/c he could not keep up 100% with stocking milk and eggs. I’d like to see his ex-supervisor try to do it! :evil: Sorry, this still makes me VERY upset.
    Anita

    paloma
    Participant
    Post count: 42

    CALL ISSUING PHARMACY IMMEDIATELY! Could be reaction to medication, other possibility: Pretibial myxedema, according to posts here. Do search on "rash" for more info.
    Anita

    paloma
    Participant
    Post count: 42

    Hyperm, you take it easy, OK? DON"T feel guilty, as we all get sick from time to time. If it was hubby feeling ill, YOU would take care of him, right? One minute at a time is all we can manage, some days. Take care of yourself, so you can return to taking care of everyone else again! As you say, settle in for the night, hope you have a good one…
    Anita

    paloma
    Participant
    Post count: 42

    Oh, dear hyperm, you just go ahead and moan and groan. That’s why we are here! Please let us know what your doctor says about possible eye probs and depression/suicidal ideation. Sounds like you are at the end of your rope. :cry: :cry: :cry: I am so sorry.
    Talk to hubby about why he acts that way? <img decoding=” title=”Confused” /> Explain? How it hurts you :cry: that it seems he doesn’t care.
    And of course, thank God that mum is still with you! <img decoding=” title=”Smile” /> Mums are from heaven, don’t you think?
    WE ARE HERE FOR YOU!!! RANT, RAVE, SCREAM!!! :cry: :oops: :shock: :evil: Don’t be embarrassed about it, we all have our days!
    Anita

    paloma
    Participant
    Post count: 42
    in reply to: New and scared #1069341

    <img decoding=” title=”Very Happy” /> Welcome, Linda. This IS the best support group you could ask for, besides family!
    I had all of the symptoms you listed, and then some! I think the disease did disguise itself as menopause, because I’ve had symptoms for years, I just didn’t realize that they were related to Graves’. Those hot flushes are SOMETHING, huh? :shock: :oops: :lol:
    It wasn’t until the tremors and tachycardia got really bad that I saw a doctor. They have subsided with beta blocker (atenolol), but I still can’t apply nail polish or make-up. Oh, well, I didn’t use those anyway! <img decoding=” title=”Smile” />
    It’s great that you have a supportive husband. From what I’ve read here, you’re going to need each other in the months/years ahead. I have a great sister who is my main support, I thank God for her! <img decoding=” title=”Very Happy” />
    Feel free to ask ANY question you think of, you now have friends and a sounding board here!
    Anita

    paloma
    Participant
    Post count: 42

    How are you doing now, hyperm? Sorry so long since my last post. I’ve thought about you constantly. Thank God you came through OK, albeit with some problems, putting it mildly! <img decoding=” title=”Smile” /> The suggestion about your church is worth following up, I think. Maybe those kind ladies can swoop in and help a little!
    It IS trite, but try to take one day, one hour, even one minute at a time. This too shall pass.
    You probably need to speak with your doctor about the symptoms you’re experiencing, too. As someone else did mention, your low feelings could be related to the surgery, levels, etc…
    The kids could be picking up on your mood. Maybe if you can stay calm, they will, too. If all else fails, pray? :idea:
    Please keep us all up to date. I really miss you and your humor! :cry: :cry: :cry:

    paloma
    Participant
    Post count: 42

    Hey Mike! Welcome to NGDF.
    To cotton3fields: You said you experienced a "hot" sensation on your face. I have a weird sensation, too, but not on the face.
    I used to have really cold feet and hands, now they feel blazing hot, all of the time! I also have the palpitations, heat intolerance, tremors, confusion, dry eyes, :roll: etc., etc…
    Mike, I just want you to know that this is the best place to get answers about anything having to do with Graves’.
    I truly appreciate the support I’ve received. All of my questions have generated some very interesting feedback! I love this place! <img decoding=” title=”Very Happy” />
    Later!
    Anita

    paloma
    Participant
    Post count: 42
    in reply to: Disability #1070406

    EVERYONE has trouble getting disability.
    FACT: My brother DID lose an arm, and he was denied!!!!!!!!!!
    frickin’ government. :evil:

    paloma
    Participant
    Post count: 42
    in reply to: Disability #1070404

    Ski, I did apply for state assistance. I have an appt on the 29th. Thanks for the info. I just find it sad that there’s no way for us to get help w/o jumping through hoops. I need to get all my labwork, doctor statements, hospital bills, etc…all of this while unable to concentrate, weak, short of breath… :roll:
    I just need to pay my rent. Life sucks. <img decoding=” title=”Confused” /> :cry:

    paloma
    Participant
    Post count: 42

    Hyperm, you have been in my thoughts and prayers all day. I can’t wait to hear how you are doing, please let us all know, as soon as you are able.

    paloma
    Participant
    Post count: 42

    Hi, runlacie! I hope you are feeling well after RAI. I’m going to do it too!
    You gave me a good question for my endocrinologist. I want the largest dose of radiation possible. :twisted: As long as I don’t develop superpowers, I’m good! :lol: As for weight, I’m a big grandma, I can take it! <img decoding=” title=”Very Happy” />
    I’m still three or four weeks from actually scheduling the procedure. Did your endo have you take large doses of methimazole/tapazole? Mine said that I need to get the thyroid down to almost nothing, so that the RAI would be the most effective. If you did take a lot of the med, did you have any swelling of feet or hands? That’s where I am right now, and I was told that unless it becomes painful, I should not stop taking the methimazole.
    What I WAS given is an emergency prescription for my local hospital, for STAT treatment/labs. It explains that if I have any kind of infection, I may not be able to fight it off due to the low white blood cell count caused by large amounts of methimazole, and that they should take steps to strenghten my immune system. This is all very scary, and I’d like to hear from others about their experiences leading up to RAI.
    Thanks for listening! <img decoding=” title=”Smile” />

    paloma
    Participant
    Post count: 42

    <img decoding=” title=”Very Happy” /> Hi! I was taking methimazole 5mg tabs, one twice a day. My PCP upped that to 10mg tabs, one twice a day. My endo upped that to 10mg tabs, two twice a day. I am getting ready to begin RAI. I have noticed that I have swelling since the dose was raised. I was told that this is "normal", but unless it becomes painful, I should stay the course. I have gained 10 pounds in a month! I hope I can lose it after the RAI! <img decoding=” title=”Confused” />
    When I first started this journey, the most I ever took were a couple of Tylenol. NOW, I take the methimazole, a beta blocker (down to 1/2 tab twice daily), an antidepressant, and a sleeping pill. I’ve never taken so many pills in my life!
    Also, I had been humming along at 165 pounds for 10 years, when I suddenly began to lose weight. Total weight loss was 36 pounds.
    Why, oh why, couldn’t I have kept my mouth shut? Just when I could get into a size 8 dress, I have the water weight coming on! :lol: If we could only keep the symptoms that we want, it would be great. I don’t want to live with the "thundering" heart again, though. :shock: That was the worst. It kept me awake for hours. <img decoding=” title=”Confused” /> And the tremors! WOW! I still get those if I try to overdo it.
    Some members mention headaches. I’ve seem to get them more frequently, but they’re not like the migraines I used to have. It’s more a dull throb behind the eyes, no real sensitivity to noise, nausea, light (except as caused by GD). I have noticed that my joints and muscles are hurting more, and I have bad lower back pain.

    paloma
    Participant
    Post count: 42

    Not being preggers can be sad, but as you say, it is in God’s hands. Did you get to ask your doctor if having your period would affect you during or after the surgery? I think that it would probably be wise to at ask! You never know…
    Good wishes and prayers are coming your way. <img decoding=” title=”Smile” />
    God Bless.

    paloma
    Participant
    Post count: 42

    First of all, there’s NO history in my family, and I got Graves’. My doctor says there is no rhyme or reason for it.
    It sounds as if your wife is going through the stages of grief, currently in denial? Her life will never be the same, and deep down, she knows it.
    The disease itself can cause emotional problems, especially if levels are not where they should be. Perhaps you can accompany her to see her doctor, don’t take "no" for an answer!
    I hope that you are able to keep her out of court before she does something she regrets. Please let us know how you are doing. We care.

Viewing 15 posts - 1 through 15 (of 36 total)