I have this same problem also. Was diagnosed with Graves eye disease on March 4, 2009 (my 40th birthday – what a gift!), CT Scan at Jules Stein institute at UCLA showed swelling behind the eyes. So far, all the blood tests taken have come out normal (although I do experience hyperthyroid symptoms – rapid heart beat at night, excessive sweating, eating all the time throughout the night also). My biggest problem is the severe migraines I have experience, almost on a daily basis, ever since I got pregnant in 2007, so it’s been two years of constant headaches and migraines behind my left eye. I am going to see an ophthalmologist this coming Friday to talk about treatment of the Graves eye disease, but I am now scared about any of the eye treatments, given what I have read. It seems that steroids are the first treatment option, oral or injections behind the eyes. But has anyone had any sucess on this treatment? So far what I have read seems that it doesn’t work. If not, then are orbital decompression or radiation my choices? Does the opthalmologist do radiation, or is a different type of doctor that would do the radiation? Sometimes I feel like I cannot go on with this pain. I don’t know what to do. Thanks.
