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in reply to: what to do & how will I feel after?? #1065590

Corinne, Your post made me feel better….I’m having RAI next week and am a bit apprehensive. If you read my other post you’ll see that I tried ATD’s first. Anyway, I really agreed with the part you said about how you used to be…energetic and happy…I’m so sad that I have no energy, feel lazy and snap at my family all the time. I hope my kids don’t look back on their life and think their Mom was a crab and no fun. I used to be very energetic and fun! I still try to be, but it’s hard when you’re going on a terrible night sleep and have no patience. I’m hopeful that I too can get back to the nice person I used to be! I’m also glad that there’s something I can do about this, as at first I just thought I was becoming a crab as I got older! : ) Thanks, Mary

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in reply to: PTU and Liver failure #1065624

I was diagnosed with Graves in September. I wanted to try anti-thyroid drugs first to see if maybe by some small chance I could achieve remission. I started with tapazole and I had a terrible itching reaction. I was scratching my legs bloody and couldn’t sleep. My endo switched me to ptu which I was on for a few months. He was cautious at monitoring my levels and liver enzymes. I had to stop taking the PTU because my liver enzymes were dangerously low. He said it was just too dangerous to stay on the drug. The bummer thing is that it was working and my tsh and t4 levels were coming into the normal range. Now, I’m on to plan B. My plan B is RAI. I’m taking the pill on Wednesday. Any advice out there on this? My endo described this disease as a nuisance disease and I agree. I’m thankful that it is something that is treatable! I’m hoping after RAI and then most likely going on synthroid or something similar, that my levels will be okay and I will feel better. My pain problem is the irritability and hand tremors! I’m hoping I’m not so crabby and will have more patience with my family!

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in reply to: Allergies to Methimazole/ Tapozole – how long will it last?! #1068961

Hi, I was reading your old posts about itching on tapazole. I read you switched to PTU. Are you still on it? How’s it going? I also was on tapazole (the generic) for three weeks and developed the excruciating itching. My doctor said it probably wasn’t the generic fillers and didn’t have me try to name brand either. I switched to PTU and also agree that I don’t feel it’s working as well. I know I have to give it time. I just wondered how you were doing. Thanks.

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in reply to: My choice of treatment and a question about it #1068065

Thanks for the input ewmb. I’ll check into that if in fact the PTU does make me itch. I think that the tapazole (I was on generic) was beginning to work better than the PTU is. Thanks.

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in reply to: My choice of treatment and a question about it #1068063

Thanks for your input James. I appreciate any of it. I did switch to PTU since the tapazole made me itch after three weeks. I’m now on week four of PTU and I think the itching is starting again. It is beginning on my feet, shins and hands. I’ll take some benadryl to see if that helps. I guess if this is strike two on atd, I’ll do RAI. I’m not nervous about it being dangerous or anything, but just had hopes that I would be into remission and not have to be on medicine for the rest of my life. I’m curious if anyone else has had an itching reaction to anti-thyroid drugs and whether they fought through the itching and it subsided. If I knew it would end, I would try to deal with it. Thanks.

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in reply to: My choice of treatment and a question about it #1068058

Mamabear, You said you’re in remission now. I tried to search back through entries to see your treatment. Did you take PTU? If so, how long? I was diagnosed a few months ago and didn’t want to jump right into RAI in hopes that I might go into remission and not need medication for the rest of my life. I tried tapazole for about three weeks until I had a terrible itching reaction. I stopped that for a few weeks and just started PTU. I was curious to people’s outcomes with PTU. People tell me to just do the RAI, but for some reason I want to try the drug therapy first. Thanks. Mary

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in reply to: New here…TSH low & waiting on endo appt. #1067991

Melanie, How was your endo appt? I’ve been on tapazole about three weeks now and just started having a terrible itching reaction. My doctor said to stop taking it and I had blood taken yesterday. He’s checking on my levels and also white blood cell count to make sure nothing else is wrong. We’ll decide what to do when we get the blood results. Either try again, different antithyroid drug or RAI. Let me know what you’re doing and how you’re feeling. Mary

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in reply to: New here…TSH low & waiting on endo appt. #1067989

I called an opthamologist today. Hopefully I can get in soon. I haven’t worn my contacts for a few days as my one eye is red and also has a pink eye like discharge in the mornings. I also forgot to say that I’m 43. In retrospect, I was tired, irritable, anxious, not sleeping, hot when I’m usually cold and had hand tremors. I had a bigger appetite than usual and didn’t gain weight (maybe lost a few pounds). I’ll let you know how the tapazole works for me. Did you get to the endo yet? Thanks, Mary

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in reply to: New here…TSH low & waiting on endo appt. #1067987

Melanie, I am in a very similar situation. Just went for my annual ob/gyn exam and she thought my thryoid felt enlarged. Ran the blood test and my tsh was .005. The t3 and t4 were very high. I also wear contacts and have been complaining that I can’t see out of them, but am do for my eye exam. I don’t think I’m getting the "bug eyes" and I really hope I don’t. I also am on yasmin (ocella), but nothing else. I did the rai uptake test and it showed graves disease. I just saw the endo today and we’re trying tapazole, as I didn’t want to jump right into rai…it seemed a bit extreme. I’m hoping it might go into remission, but it sounds like it will be a waiting game. My tsh was very low, so he’s not getting my hope up that it will go into remission, but I wanted to give it a try. I wish you luck and keep me posted what happens with you. Anyone else out there on tapazole? Has it shown improvement in your numbers? Did it help your mood and sleeplessness? Does it make you gain weight? Thanks, Mary

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