[Naisly]

in reply to: Synthroid Recall #1176481

I thought this is a new recall and the last one was for stability of the tablets at the end of shelf life?

~Naisly

[Naisly]

in reply to: Can’t get into new endo til mid-March–now what??! #1176415

Looks like your still a bit hypo as per your labs and possibly why your having heart palps and anxiety. Don’t go from your TSH, dr’s need to dose according to your FT4. 0.69 (0.93-1.70) Your TSH is moving and that’s a very good thing, and it will even out as your T frees do.

It’s a good thing he lowered your dose to 100mg. But for some reason I’m under the impression your endo is dosing according to your TSH. I sure hope not because according to your last labs, you were almost right on Q with were your TF4 should be.

~Naisly

[Naisly]

in reply to: PTU effectiveness vs Methimazole #1176429

I will try to explain a bit more clearly.

PTU has a half life of about 75 minutes. One hour after you take it you swing hypo because PTU is at it’s strongest. After about 8hrs you start to swing hyper, TF3 starts to climb, for 4 more hrs you are quite hyper before your next pill.

amosmcd wrote:

The endo is not sure why the anxiety and palpitations are still hanging around

. A lot of endos don’t understand the dosing (believe it or not). Years ago, they used to only suggest twice daily.

So, what happens is you are swinging both hypo and hyper every day and this leads to more blood flow to your thyroid, which causes more antibodies. This is why it is important to take it 3 times a day. And NO, I don’t mean add to your dose, I mean SPLIT the dose your currently taking. I use a pill splitter.

And if you don’t believe me, thats fine, look up PTU manufacturers instructions -they all say 3x times a day.

Talk to your doctor aout it.

Oh and remember, just because your labs are ‘normal’ doesn’t mean they are normal for you – your ‘set point’. Most people do well with TF4 in the upper 1/2 mark.

~Naisly

[Naisly]

in reply to: Please help. Debilitating fatigue, unable to work. #1176167

You might be right Bobbi, and why I think it woud be imperative to have the levels checked sooner than later.

~Naisly

[Naisly]

in reply to: Please help. Debilitating fatigue, unable to work. #1176164

Hi there,

I would not wait till Feb. but I suggest get lab work done and see where his levels are. If you can get them on line, once you do, call the endo’s office and ask if your husband should raise/lower his dosage, this way he doesnt have to wait to see him.

He sounds a tad hypo to me. The average person responds within 3-4weeks to ATD’s, some 6 weeks. For me personally I responded within 2 weeks. So as you can see if differs from person to person. And yes, he wil feel lousy if he is hypo.

~Naisly

[Naisly]

in reply to: Post RAI hives, possible thyroid storm? #1176144

Do you think it is possible you are allergic to iodine? Some people are, that could be it. How are you feeling otherwise? Blood pressure, pulse, fever, etc. I would recomend to keep daily tabs on those while you wait for your blood work and if they go abnormally out of wack, go to the ER because thyroid storms are life threatening.

~Naisly

[Naisly]

in reply to: Starting PTU today or tomorrow #1175850

Hi there,

Yes Bobbi is correct. According to the manufacture, PTU only has a life of about 8hrs, so it is best to take it 3 times daily.

[Naisly]

in reply to: Tremors, what to do? #1175759

vanillasky wrote:

thanks for your concern.

My TSH is 0.66 and they consider that “normal.” I am on Tapazole 10 mg and atenolol 25 mg but it doesn’t seem to be working for me.

Morning, are you feeling any better today? How are your FT4’s? I hope they are not dosing you just on your TSH. Do you have those numbers to share?

Ask your doctor about splitting the Tapazole in half to take twice a day. The manufacturer suggests 3 times daily. Depending who you ask Tapazole has a life of about 6-8hrs so your probably feeling pretty bad when that wears off.

What I don’t get is why the doctors don’t follow the manufacturer’s recommendations and only tell us to take it once daily.

If you can’t talk to your doctor, at least get an earlier appointment with him, then talk to your pharmacist (that’s what they train for).

Hope you have a better day!

~Naisly

[Naisly]

in reply to: Tremors, what to do? #1175753

vanillasky
When was the last time you had labs/Dr’s visit? Sounds to me with all your symptoms your still hyper – anxiety, drepression, tremors, hot flashes.

Call your dr’s for an earlier appt. and see if you can get another set of labs done right away. You might need a dose adjustment.

~Naisly

[Naisly]

in reply to: Graves’ and anxiety. husband making me sick? #1175711

vanillasky
My partner thinks this site is making me sick Lol. He even told my internist that the other day. He does come to all my appointments with me because I make him come – Only because I want him to hear exactly what the dr says, and perhaps he can understand a bit more. Anyways, I will tell the rest of my story one day soon.

I know there seems to be a lot of questions on anxitety and stress, and ‘graves rage’ I’m sure you have heard the term ‘Fight or Flight response’. Well this is very real in our world. I did find a link for University of Texas for stress. This site might help explain the fight or flight response as well as give you ideas how to destress your life, because right now that is the most important thing you can do for yourself and something you can ask your husband to help you with.

~Naisly

[Naisly]

in reply to: Help with understanding test numbers please #1175729

ewmb
beach45 is correct when she said TSH is not a good indicator for your levels. What you want to look for is Free T4(FT4) and Free T3(FT3) – Not Total, or uptake, they can be misleading. If my computer wasn’t broken, I would reference this for you, but I’m currently using my partners.

I wrote a small explanation here –

http://www.gdatf.org/forum/topic/43090/?page=1

Kimberly also has an article from this site explaining labs I believe.

If you don’t have those results then when you see your dr next week, ask him to give you a copy and talk to him about dosage. If your FT4 is low, you are hypo. But make sure he isn’t dosing you just for your TSH. There are tons of articles out there about this subject. ATA has a few as well. Just sometimes GP’s don’t keep updated on all the diseases, so it’s not his fault if he doesn’t understand (if that was the case with you).

Hope this helps,

~Naisly

[Naisly]

in reply to: Remission #1175658

goodfriendjen
Fact 1: Antibodies pass through from the mother to the baby – So no matter the treatment option, it’s important to have very few antibodies.

Fact 2: Just because your thyroid is gone, doesn’t mean you won’t have antibodies. Basicaly your fighting the antibodies, not necessarily the thyroid.

Ref: The article I posted.

Quote:

Surgical thyroidectomy of patients with Graves’ hyperthyroidism does not lead to immediate remission of the autoimmune abnormality, and the combination thyroidectomy+withdrawal of antithyroid medication+l-T4 replacement of the mother involves a high risk of foetal hyperthyroidism.

So basically my take on it is, since your endo believes your ‘close’ to remission at this time, then by all accounts if you want to get pregnant right away, then continuing on this path with ATD’s will probably be faster than a TT. Just my 2 cents.

~Naisly

[Naisly]

in reply to: Remission #1175639

Welcome,

Just the opposite of what Shirley had said, there are plenty of others on this forum who have had successful pregnancy’s while on PTU.

But I do suggest you read a lot about it here’s a link to get you started:
http://www.eje-online.org/content/160/1/1.full?sid=06d8f1bc-d3f2-48de-ba65-ce8b445598b8
This is probably why your endo pushed back your TT. It is very good news that you might be on your way to remission in deed.
But educate yourself, take notes and bring them with you the next time you see your endo. So you are sure of your treatment option.

~Naisly

[Naisly]

in reply to: Levoxyl Dose Changes with weight gain/menopause? #1175595

Weight gain is explained in the article I posted Adult Hypothyroidism. It explains a bit about it – Basicaly it is due to water and sodium retention.

~Naisly

[Naisly]

in reply to: FT4 and FT3 question #1175532

catstuart7
I sure hope that article answers your questions.

I do want to thank you for noticing my levels. I’ve posted them a few times, and no one else has noticed, so thank you!

I have a huge headache which I’ve had all day. I’ll post something more tomorrow. I get my labs back as well.

~Naisly

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