I was diagnosed with Graves 2 years ago. Went to several Endocrinologists who all wanted to cure me with pills. I finally ended up taking Radioactive Iodine pill that threw me into a thyroid storm. Thought I was going to die. This only happens to 1% of people treated. After 90 days and no relief, I had total thyroid removed. Day after surgery, I felt better… no fatigue or muscle weakness. Best decision I ever made. Then the Graves attacked my eyes. They "popped" outward and within weeks the double vision started. I have now had 7 IV Steroid Infusions and one radiation therapy today. Steroid treatments make me hyper but after a few days without treatment…. I crash. During Radiation treatment I felt a burning sensation… no pain and lasted only seconds. Worse part is the making the mask and then the mask being strapped down to table but I can endure anything for 15 minutes. Eyes are moving better and don’t feel so tight in the sockets. Still having double vision but grateful to still have my vision. I went online and I thought the eye surgery was done thru the outside of the eye around the temple area but seems like all of you had it done thru sinus area. Is that true of all the surgeries?
