[msmissy00]

in reply to: Autoimmune Disorders #1073361

Since 2004 I have had 4 different doctors tell me I either had RA, Lupus or Cancer. I was hospitalized for 5 days and they ran more tests than I care to remember. My symptoms were sporatic joint pains. High sed rate, fever everyday. My skin is always HOT. My feet and hands feel like they are on fire at night. And at any time I can take my temp and it will be 99+ and at night it will be in the 100’s. My WBC is always elevated, sometimes up to around 17000. Never normal. I was diagnosed with Hyperthyroidism and GD in oct 08. My endo thinks it could have all stemmed for the GD. I feel blessed after reading posts here, I have all the symptoms of GD except the TED. Beta blockers are working well on my heart rate. I have a lil anxiety but nothing like other victims of this disease are having. Not long after my diagnoses my dad was diagnosed with Leukemia. He passed away in jan 09. During the time he was being treated for AML my RUDE endo said I HAD to have RAI because my levels are off the charts. I asked him if I could wait he said NO. ( Rudely ). I couldnt have RAI at that time because I wouldnt have been allowed near my dad when he needed me. He had radiation treatments 6 yrs before he developed leukemia. So RAI scares me. I changed endo’s and she says I need RAI also. I had reacted ( I thought ) to the methimazole. I developed a rash on my shins.. and then reacted to the other anti-thyroid medication PPU. I still have the rash on my shins but now they say its from the graves disease. So Im having another uptake and scan tomorrow and then I am going to ask that my endo try me on the methimazome. Because I do not want the other treatments that are offered.

[msmissy00]

in reply to: Headache/Intermittent Low Body Temperature in Euthyroid Pt. #1073631

Wow this is amazing. I have had headaches for over a yr, At night, they wake me up. So bad Im even dizzy when i get up to use the restroom. But mine go away when I go back to sleep. It never occured to me it could be my thyroid. Well i thought maybe it could be that my thyroid is larger and could be causing some sleep apnea, which is still very possibe.

[msmissy00]

in reply to: Graves Disease Options #1073474

Well, I have graves disease and have probably had it for yrs but was diagnosed in oct 08. I decided not to go thru with the RAI. I cant take the ATD , reacted to both. I am taking Beta blockers, and that has decreased my heart rate back to normal. Im feeling great. Wt loss is slow. Hair loss is so-so.. But endo doc keeps saying RAI. Im like why trade 1 problem for the other. I am overweight already. Even though I have lost wt. I am reading and havent heard many good things about becoming Hypo.So for now I am taking the beta blocker and feeling fine.

[msmissy00]

in reply to: Anyone that tried natural methods/diet? #1073647

I have been diagnosed with Graves Disease since Oct, but im sure I have had it a few yrs. My worst symptom was hands shaking,and the graves rash on my shines. Im a nurse and it was getting hard to draw blood or start IV’s so I went to the doc. After test after test and changing doctors. Unable to take the ATD, I did start on beta blockers that has helped my heart rate. Overall I feel well. I have decided at this point not to take the RAI ( which both doctors want me to have). I figure as long as I can keep my heart rate down and keep my rash under control and I feel well, why trade one problem for another. I have heard Hypo is just as bad. I have lost 60 lbs but that was 60 lbs I need to lose. I am overweight, and the weight has come off over the past several yrs. So as of now I plan just to wait.

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