[msmanatee]

in reply to: TED symptom relief? Hot phase #1061370

I had the same experience with side-sleeping and swelling, experimented with switching sides and the lower side was always more swollen. I now sleep almost sitting up straight but if my head keels over, the eye on that side looks like I got punched.

I’m afraid to put any kind of cream or cosmetic near my eyes but I go through a lot of ice cubes when they’re really HOT. The swelling does not go down but they feel a little numb and cool, which is better. I too notice that swelling recedes some the longer I’m up and about.

[msmanatee]

in reply to: another newbie (subclinical hyper TED) #1061356

That is an incredible saga, Shirley! I can’t even quite take it in and can’t imagine how difficult it has been for you but thanks for sharing. I do have osteopenia but not sure about my heart. How crazy is it that Prednisone mimics the heart symptoms and makes me as jittery as a cat.

There is no doubt I have moderate (to mildly severe :” title=”Question” /> hard to say) TED. My eyes do not bulge out but feel as if they do. They were rather deep-set to begin with, and on the small side, so only people who know me are shocked. My pressures keep getting measured at 30. They ache a little all the time and sometimes I get sharp pains in them. At times they get very aggravated and teary, other times very dry no matter how much artificial tears I pour into them. I get other weird visual effects (dimming, odd light) but so far they always recede.

On the other hand I would say I don’t have double vision unless I try to look up or sideways so the range of normal is decreasing at a noticeable clip. One of the reasons I’m now living on this board is because I’m afraid I soon won’t be able to visit. I’ve spent the weekend printing and writing notes.

So far I’ve only seen a regular ophthalmologist, fortunately a very sharp one. Tomorrow I’m to see a neuro-ophthal who is also an oculo-facial surgeon, who I’m told wants to do more testing and order the CATscan. I see both tomorrow because this second doctor doesn’t check eye pressures!?!

To be honest, as terrifying as all of this is, the worst is not knowing how to gauge my prognosis or rather, to plan for the future. I’m really in a bad situation to be going blind, with no adults to depend on and a teen dependent on me. Reducing stress seems impossible at the moment.

[msmanatee]

in reply to: another newbie (subclinical hyper TED) #1061354

Kimberly wrote:Hello – About 15% of patients experience eye symptoms *before* they end up with thyroid involvement. There is some controversy over whether subclinical hyperthyroidism should be treated, as suppressed TSH can be associated with bone density and heart issues.

Thanks for your reply, Kimberly. I think I read that on another thread, too. I guess I need to understand the connection between TSH and bone density and heart issues better. As well as the pros/cons of ATDs vs. surgery. Back to searching!

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