Nancy – at last someone who has "been there", it seems a little rarer than other symptoms of the disease. I did start this with a little apparent swelling in my feet and a bad case of the orange-peel skin on my ankles and about halfway up my legs, all the way around, not just on the front. The legs finally eased off and now the rash is concentrated around my ankles (and up about 4 inches above them), but the protein deposition is severe in my feet. I have grown 2-1/2 shoe sizes, and my big toes are so swollen that my physician fears I might lose them. Prednisone doesn’t touch this – I use Ultravate, under plastic, every night for 5-7 days and then have to do a taper to stop. I’m good for a few days (still 2-1/2 sizes too large for my regular shoes), then the hard skin returns.
I am also thankful that this is not concentrating on my eyes, and also that itching is not too much of a problem. I sure was hoping to hear that it might someday disappear completely…
