[Momof5]

in reply to: Another newbie question #1178190

I’m three weeks in and am still waiting too.

[Momof5]

in reply to: TED again? Double vision again? Not sure I can do this again #1178169

I’m so sorry, Shirley! It breaks my heart to read of your troubles. I am praying for you!

[Momof5]

in reply to: Selenium #1178162

Well, that is a good question! The answer is I don’t know. Back in early March, I took a photo with friends and I had the wide eye startled look. My right eye looks normal now, but my left is still retracted and feels “off”. It doesn’t hurt, and I still see fine, but I feel it. My endo says its fine and I don’t have any eye issues. She measured them both at 16. I stare at my eyes for hours every day.. u have an eye Dr appt on the 19th. But it still sounds subjective. I dont remember my eyes feeling different until after I started meds. I did read that people have had dry eyes or swelling of the eye lids when taking beta blockers although it is less common than other side effects. So, maybe it’s just that. My left eye is definitely open more than my right, but most people say that can’t see it until I point it out.

[Momof5]

in reply to: Selenium #1178160

Well, I did some radical stuff when I was diagnosed three weeks ago. I stopped drinking milk except one small glass a day. I wasa milk and water junkie (thinking I was doing my body good). I cut out most processed foods and a lot, but not all gluten andsweets. I think I did it more because I was in shock more than anything else.

But, sadly, no….I don’t feel much different. I don’t feel the vitamin change did anything either. But, maybe it is too early to tell. I go for blood work again next week, but I still won’t know if it is the meds or the diet change or both. I am trying to be positive that m numbers will decrease a lot. I’m praying….a lot. I also saw a naturopath on Saturday and did acupuncture. I don’t feel like I am “out of ly body so much anymore and feel more in conyrol, but still feel shaky. My bp and heart rate have come back down and I only took 25 mg of atenolol.

[Momof5]

in reply to: Selenium #1178158

I switched to an iodine free vitamin and it has 200 mcg of selenium as one of the ingredients.

[Momof5]

in reply to: GO disease progression #1178068

Thanks, Christina! That is quite the story. I’m sorry that it took so long to get a good diagnosis and treatment. Makes me feel lucky to have gotten such a quick diagnosis (lucky to get graves????).

[Momof5]

in reply to: GO disease progression #1178065

Christina, how long ago were you diagnosed and hoe long have you had the eye problems?

[Momof5]

in reply to: Exercise #1178136

My endo said exercise was ok, just to take it easy and don’t overdue the cardio. In truth, I miss exercising and know it helps me feel better, so I am doing mild to moderate exercise

[Momof5]

in reply to: Uncaring husband(have to share) #1178094

I don’t have any words of wisdom, just want to say I’m sorry and give you a big (((HUG)))

[Momof5]

in reply to: Auto immune trigger – questions #1178038

It could be – and I may never know. But, I have taken better care of myself this past year than I have my entire life and I cut out a lot of processed foods, soda, etc, so I don’t get it.

I guess going back to my original questions is that I wonder if there was a “specific” trigger that someone could identify and if you can identify that trigger, and eliminate it (we all know we can’t completely eliminate stress), will you improve your immune system to the point of resolving the GD.

[Momof5]

in reply to: Labs #1178058

So, when heading into remission, is TRAb the one to watch or both TRAb and TSI?

[Momof5]

in reply to: GO disease progression #1178062

I’m curious too. Thanks for the link, Kimberly.

My question is more of how do is TED diagnosed? It’s a bit confusing because I have some lid retraction (not bad – it hits the top of my iris) and possibly some swelling of one eye, but my endo and several other people say they don’t see it. The endo measured my eyes at 16 – both of them. I’m seeing an eye specialist to be sure.

But, when I read the symptoms, I see swelling and lid retraction as signs, but then I read posts where people go to the eye dr and the dr says no TED, just swelling and lid retraction. It’s all very confusing.

[Momof5]

in reply to: Labs #1178056

Still learning myself, so I don’t have any thoughts, but am glad you asked.

[Momof5]

in reply to: Auto immune trigger – questions #1178036

I also don’t think it was stress because I have lost three family members in the last six years. Bloodwork has been normal up until February and it went out of control.

This has been one of the least stressful years of my life in the last 10. So, I am looking elsewhere for triggers.

[Momof5]

in reply to: Auto immune trigger – questions #1178035

My “fifth” was actually my third and they are triplets. That was over 7 years ago. Hence, why I don’t think stress is my trigger.

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