[Momof5]

in reply to: Share your Success Story! #1183873

The biggest things I did was cut table salt out of our diet (family) a f switched to pink himalayan salt, not eat any super high iodine foods, and cut down on sugar intake. I’m not perfect, but had a pretty decent diet before this even happened. Just became more aware of what I was eating and how it made me feel. I don’t drink soda or coffee except on very rare occasions but I was already doing that before I was diagnosed.

I exercise 5-6 days a week, crossfit style and run and so obstacle course racing too. It took awhile to build all the muscle strength back up, and it was a slow process so be gentle with yourself. There are still days where my body doesn’t want to do anything and I try to listen as much as possible.

I also included magnesium, acetyl l carnitine, vitamin D and CLA supplements into my diet, and iron for a short time due to some low iron bloodwork.

[Momof5]

in reply to: Share your Success Story! #1183871

Hi! I was diagnosed in March 2013 and am currently in remission! I had a lot of trouble in the beginning with doctors trying to push RAI and not being knowledgeable in how to treat GD well with ATD’s. After 4 endos and learning how to advocate for myself, I’m happy to say I am in remission. Just had my labs done after being off meds for a while year and my antibodies are still “normal” and at thr bottom of the ranges, and all my thyroid numbers are normal and at good ranges for ME. I’ve had plenty of checks along the way to make sure I was continuing on a good path, but that one year mark is music to my ears. Things have definitely changed since my diagnosis, but I think it made me more aware of my health than ever before.

[Momof5]

in reply to: Runners with Graves? #1183678

I wasn’t a runner prior to Graves, but after 2+ years on meds and stabilization after about a year (the first year was quite a rollercoaster), I am running a half marathon on Saturday. So, yes, there’s hope.

[Momof5]

in reply to: What if we never do RAI or TT? #1179100

I have personally talked to at least 10 people who have had long term remission. Newer info is coming out to watch your TRab levels…and with negative TRab you can have successful long term remission. It may not be possible for everyone, but there are also several who take small maintenence doses of MMI or PTU and live happy, healthy lives.

[Momof5]

in reply to: Dose increased yesterday/feeling worse today (?) #1178284

I guess it was transient or being somewhat hypo because I got blood tests run on Saturday by my GP and they have barely moved at all. Whew!

Still have heart palps and bp is still slightly elevated, but will deal with that next week.

[Momof5]

in reply to: Found this while researching and thought it interesting #1179026

Lots of things stuck out for me, but the use of ATD’s prior to RAI reducing the effectiveness of RAI was something I hadn’t stumbled upon before.

Also, that after 5 years of remission the chances of having it again or negligible. I wonder why.

[Momof5]

in reply to: Dose increased yesterday/feeling worse today (?) #1178283

Flora! That is what I am hoping and kind of took it as a sign that your post got bumped to the top today.

[Momof5]

in reply to: Dose increased yesterday/feeling worse today (?) #1178282

Yes, I could probably get her to run labs, but I don’t wanna be one of those patients.
If I can wait til Monday, I can probably wait til Thursday when I am supposed to run them again. It’s only been a week, and I highly doubt I am hyper again as pulse is normal, bp is good, just a bit higher than optimal (both numbers are elevated, not just systolic).

I have read others stories of transient symptoms and needing time to adjust….I guess I didnt believe I would be one of them.

[Momof5]

in reply to: Dose increased yesterday/feeling worse today (?) #1178279

I’m in the opposite boat….My initial dose worked so well, it sent me hypo…reduced my meds to half the starting dose and now after a week, I feel like I am all over the map….and it’s driving me crazy. I’m cold, exhausted, heart palps, but good pulse, and bp has increased a little again after being normal range for the past three weeks. Argh…

I’m contemplating trying to get labs tomorrow even though it’s only been a week on the dose decrease, but I’m switching endos and can’t ask the old and won’t see the new until the 22nd.

[Momof5]

in reply to: Thyroid disease and diabetes links. #1178675

It was enough for me to NOT take any selenium supplements. I had bought an iodine free vitamin, and it had 200 mcg of selenium in it. I switched my vitamins AGAIN because of that. There is no diabetes in my family history that I know of, but I don’t want the increased risk, no matter how small. I understand it may do wonderful things for people with the eye disease.

It would be interesting to know if that “increased risk” group had a history of diabetes or not. Diabetes in on the rise, so it’s hard to say what influenced it. Is it bad eating habits, history, poor health??? Who knows.

[Momof5]

in reply to: Thyroid disease and diabetes links. #1178671

It took me a long time to find it. I don’t remember how I stumbled on it..through a link of a link of a link or something..

Selenium and the thyroid gland

[Momof5]

in reply to: Thyroid disease and diabetes links. #1178669

I also read an article about Selenium increasing the risk of diabetes too. I don’t remember where, but now I have to find it.

[Momof5]

in reply to: WHERE IS THE SEARCH BOX? #1178632

Shirley, I sent you a PM.

[Momof5]

in reply to: WHERE IS THE SEARCH BOX? #1178630

Mine is in the upper right corner in the same place I log in. It says Search Posts.

[Momof5]

in reply to: Low Dose Naltrexone #1178599

Shirley, thanks for telling me about your kids and gardasil. I probably would have said yes before being diagnosed with GD, but now am hesitant, for fear of activating thyroid problems in my kids. mine are still young (oldest is 11), so I will wait a little longer, but it scares me

[Author]

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