My son also just seen the endo at u of m/motts and they recommended RAI as well. Though we are seeking a second opinion, we are struggling with giving our son the RAI. We are heading to children’s hospital in Detroit Monday to see what her opinion is. Would love to connect with other on here with kids going through graves. My sons main problem with it is high BP. Though we did just have a echo, EKG and ultrasound of his heart and know that there is currently no damage to his heart from the high BP. We have opted not to try the meds and look for a more permanent solution (RAI or TT).
