[missygail]

in reply to: ** If you have ever gone into remission, please come in ** #1182647

I was diagnosed with Graves in 2012. I took 4 months of methimazole, starting with 10mg and by the time I stopped I was taking 2.5 mg twice weekly. I stayed in remission for 22 months then became hyper again. I went back on methimazole for another 4 months and did the same dosage. I have been in remission since August now. Hoping for a longer remission this time! I knew I was in remission because the Dr did my labs right before I went off then once a month for 3 months. If my levels stay normal for 1 year they consider it remission. Hope this helped!

[missygail]

in reply to: Methimazole trigger Graves eye? #1183398

I have taken methimazole twice in the past 3 years for about 4 months at a time and have never had an eye issue. Good luck!

[missygail]

in reply to: Anyone else “here” homophones? #1183441

I have noticed I tend to do it more if I am tired or feeling like I have too much to do. My husband says I need to slow down but telling someone with Graves to slow down is like telling the sun not to shine! LOL

[missygail]

in reply to: Anyone else “here” homophones? #1183439

I have been having trouble lately with in my head hearing myself say one word but my family saying I said something different! Or I repeat a question but think I only asked it once! this is very frustrating because I really don’t hear myself say the wrong word so I argue with the person Anyone else have this trouble? It can make you feel like you’re going crazy!

[missygail]

in reply to: Out of remission #1182503

I have noticed since my remission ended I am having trouble remembering how to do things I have done 100 time before, such as the way to hold my moisturizer cream bottle the same way I have always done!! Anyone else have this problem? It can be quite alarming! Thanks

[missygail]

in reply to: Out of remission #1182501

I just found out today I am out of remission after 21 months. It is disheartening but I am glad I recognized the symptoms this time and didn’t let it go as long as the first time! I am starting back on 10 mg Methimazole tomorrow, wish me luck!

[missygail]

in reply to: symptoms with normal bloods – maybe this will be useful for anyone else in the same situation #1178547

I did have the physical and they confirmed with a FSH test that I am in early menopause! ( I am only 43):o:o So, I guess between the Graves and the menopause it’s no wonder I feel the way I do. She did do a free T3 & T4 but I haven’t requested the results, I will make sure to do that! Thanks!

[missygail]

in reply to: symptoms with normal bloods – maybe this will be useful for anyone else in the same situation #1178545

When I first found out I had Graves I was having extreme pain in my thighs, as if I had done 100 squats that never ended! When I went on the methimazole it went away ( I have since learned that muscle weakness and pain especially in arms and legs is normal with Graves). I have been off the med since August however there are still times my legs ache just as they did before. I get worried that my levels are bad again but when blood work is done they are great, last level was 1.4. I have wondered if hormonal fluctuations as in menopause can cause what feels like Graves symptoms? Anyone else had this experience? It is frustrating because doctors want to tell you it must be something else, even though I think it’s all related! Thanks for your input

[missygail]

in reply to: Is this a thyroid problem or menopause? Opinions please #1177033

So good to hear I am not alone in this crazy thing:) The “episodes” as I call them, are very disconcerting and leave me feeling off for a good while. I will be having my TSH levels checked in about 2 weeks so that will help determine if those are still ok. Thanks for everyone’s input!

[missygail]

in reply to: Is this a thyroid problem or menopause? Opinions please #1177029

I am 43 and was diagnosed with Graves disease in April 2012. I was having classic symptoms, night sweats, heart palpitations, weight loss, increased appetite and mood swings. Endo put me on methimazole 10mg, went hypo within 2 weeks (34 TSH!) then began cutting back on dose. By August my TSH was 3 and he took me off med completely. Continued to feel weakness in thighs ( it was a BIG problem when I first was diagnosed ) and heart palps. TSH was normal and has continued to be but still felt not right. MyPCP did a FSH screen and found it was 56 which indicates early menopause. I have symptoms like when my TSH was 0 but it’s hard to tell if it’s that or the menopause! Yesterday at work I was starving and couldn’t get enough to eat then had a very strange episode. The only way to describe it is I became hot/cold at the same time and felt very weak, flushed and aggitated. It lasted apprx 30 minutes then I felt ok the rest of the day. Very frustrating since my TSH is normal and I can’t tell if it’s Graves or menopause! I felt so bad when I was diagnosed I am scared for it to get that way again, if anyone else has Graves and menopause with similar symptoms I would love to hear them, sometimes you feel crazy! Thanks

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