[misslex]

in reply to: Newly Diagnosed, Reacting to MMI and Starting PTU #1179579

cmac wrote:

Hello Misslex, There is a dermatological condition called Grover’s Disease which I have been diagnosed with. I have a minor case and control it with Triamcinolone Acetonide Cream or Ointment, which is a low cost generic. When I first got it I wondered if it was related to talking MMI. I doubt that it is, I think I got it from swimming in a pool which the management keeps at too warm a temperature, thereby turning it into a gigantic petri dish. I have switched to a cooler pool and it seems to be going away. Anyway, before concluding that a rash is GD or MMI related, it’s worth considering this as a possible cause.

Thanks cmac! This is good to know for the future. Unfortunately the reason my endo took me off of the MMI is because my left eyelid swelled up, making me look like someone had punched me, in addition to the normal side effect of itching and hives that many have on MMI. Right now I’m on my second day of PTU and so far so good!

[misslex]

in reply to: Newly Diagnosed, Reacting to MMI and Starting PTU #1179577

Hi Steph82! I’m glad to hear that PTU didn’t cause a reaction for you and that you are feeling better!

[misslex]

in reply to: Newly Diagnosed, Reacting to MMI and Starting PTU #1179576

I’m so glad to hear this, LaurelM! I’m on day 2 of the PTU and so far there’s been no reaction, but obviously it’ll take a little time before it’s clear that I’m out of the woods, so to speak. I’m going in to get blood drawn next week to test my levels for for the first time since being on medication, as well as my liver enzymes. I’ve got my fingers crossed that this will be the drug for me.

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