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  • Missionfield
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    Post count: 10

    Kimberly-
    Thanks that information it is helpful. I appreciate it! I guess I will talk over again with my doctor.

    Take care- :)

    Missionfield
    Participant
    Post count: 10

    Alexis,

    I took Atenolol for 2-3 months and had no side effects and it helped a lot! It may have made me a bit sleepy, but other then that it helped A LOT! Don’t worry about taking it. My mom took this also to lower blood pressure for 10yrs. in a higher dose, and had no issues. Sorry you are going through this. Hope you can get the symptoms under control. I think the Atenolol will help you though.

    :) Hang in there!

    Missionfield
    Participant
    Post count: 10

    Hi! I wanted to make sure and update my final decision on treatment. I have decided to stay on meds. for now!

    I am currently taking 5mg. of Tapazole daily. And after lowering the dose have felt better. I called my Dr.’s office- and didn’t get to talk to her, but let them know my decision. The nurse called back and said that was fine and that the Dr. wanted me to get blood work done in 4-6wks. I wish it was sooner, so I could track the progress. I would like to eventually go down to 2.5mg. and if I could see numbers sooner (FT4 especially) I would know if that would make a difference.

    I feel better that I made the decision. Now I hope I can try to make some of these side effects subside. I recently have started taking Acetyl L-Carnitine 500mg. daily. Does anyone else know about this supplement? Has anyone had good results from taking it? I read about it on the Elaine Moore site, and it seemed like something to try. I am also interested in Alpha Lipoic Acid. If Anyone has any info. on this or any other supplements I would be interested in learning more!

    May we all have strength this week!! Thanks again everyone :)

    Missionfield
    Participant
    Post count: 10

    Thanks again everyone!!

    And Cat- I am with you on the numbers. I feel so much better on 5mg then 7.5mg. Weird! I looked at my FT4 when I was on 5mg the last time, and it was higher then when on 7.5mg, and I felt more sane then too. I think I am going to have to decide weather or not to keep trying meds or not. For now I am happy the headaches and the other extreme symptoms have subsided. I don’t think I realized what a roller coaster ride this was going to be. I am glad you have found some balance though!!

    Alexis- I will keep praying, and researching for sure! I think there is something to be said to not have to keep balancing these crazy numbers! I have to make a decision by Monday, and I am still not sure. I think there are pros and cons to all of the treatment options. I wish it were simpler. I will keep you posted with my decision. Thanks for your input.

    Thanks! Stay strong everyone– :)

    Missionfield
    Participant
    Post count: 10

    PS- Kimberly, I just saw the post on finding a doctor. Thank you! I have checked two of the sites, but definitely will check the others. That is really helpful!

    Missionfield
    Participant
    Post count: 10

    Thanks for all of the feedback and encouragement everyone!!
    catstuart7 wanted me to post my labs from one of my ER visits. This is from my one of my visits:

    TSH 1.77 (range: 0.49-4.67)

    Free T4 0.94 (range 0.89-1.76)

    Free T3 3.5 (range 2.3-4.2)

    I spoke with my Dr. yesterday and was surprised that she didn’t even offer PTU as an option. I am glad b/c I don’t think I wanted to go that route anyway, but instead she offered RAI or Surgery. I don’t think I had even thought of surgery before I read the posts on here, and even then had not thought I would ever think of it as an option. Now I am though.

    To be honest I am having a really hard time with my current Endo. She did not do T3/T4 on my last visit (before I became super sick). I asked her why and she said, “Your TSH is good.” ugh!! Even the second Endo. I saw would not look at T4 more. She responded with, “It is in range.” Even though I told both doctors I had heard it is important. I live in Columbus, OH and have tried to see a few of the more recommended doctors, but the ones I have tried that are listed aren’t taking new patients, or they don’t take my insurance.

    Since some of the severe symptoms have left for now- maybe I SHOULD get another opinion first before deciding?? Or do you think I may get a similar answer? This is complicated.

    Thanks for reading and responding!

    And again any input is welcome—:)

    Missionfield
    Participant
    Post count: 10

    Kimberly,
    I guess I should have mentioned that the article doesn’t talk about treatment or go into diagnosis. Thanks for mentioning that! I could really relate with her feelings though. Feeling like you will never be yourself again. We all have to keep hoping and persevering!

    Thanks for reading!

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