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in reply to: Just found out today I have graves disease #1070019
thank you for the info ski. i agree, after reading some info on gd, that i can’t go untreated in this hyperthyroid condition. it has been longer than 6 weeks for my blood work to be hyper. can i wait for my appt mid august? i’m just a bit nervous if i do begin to notice symptoms. how quickly can things change…i have no idea? i guess i can only hope for a cancellation.
in reply to: the rai is working:-) #1070054that is great news about your RAI. from what i understand, the rai is the best option for me. the meds may not work, and surgery can be tricky. i’m scared about radiation though. i hate medicine. like a said in another post, i’m not sure radiation is the way for me since i HATE taking any meds.
your posts have so much stuff in them i don’t even understand, like your tsh level, etc. will a good endo actually explain all this to me?
good luck and look forward to your updates that i hope continue to include good news.
in reply to: Just found out today I have graves disease #1070017hi all! i just found out as well that i have gd. however, neither of the endos i’ve seen have really explained how they have come to that conclusion. i’ve been dealing with a nurse over the phone. she sounds really knowledgable with this but since this is a big deal for me, i’d love to be hearing from the doc. when i went to the doc to get some face-to-face clarification, he kept looking at his watch then said he had to go. needless to say, i feel like i’m just floating out there, with no endo willing to explain how they came to the diagnosis and also willing to go through all my treatment options. all i’ve gotten is info from the nurse, who said there really aren’t any side effects to RAI expect it kills the thyroid gland which is what i want it to to do. i hate medicine, i never take it. i can’t stand the idea of something foreign in body, so starting with something radioactive seems so drastic to me. then to have to take a pill everyday, that hormone supplement, would be huge for me, i never take meds.
unlike some of you who have written, i have no symptoms, other than my family practice doc who found abnormal thyroid scores at my physical. so with no symptoms, what does that mean? i have no idea. the endo has not really explained anything. i’ve found info myself but i’d love to hear it from someone whho is an expert. i have so many questions. and besides "how did you come up with this diagnosis?" which i believe is correct, i’d just love an explanation, i’d like to know what all this gd stuff means to me since i have no symptoms, like can i run three times a week for 30 minutes?
and since my endo experience has been so bad i’ve had to look for another one, which i won’t be able to see till mid august. can i wait that long? uuhh, so many questions.
i’m glad to have found this group. i’m looking forward to the info that will be shared here. this is really a new thing for me. i had been the picture of perfect health. i’ve never even had a ear infection. i’ve been really blessed and i have to believe this isn’t the end of the world but for me, even though it has kind of been feeling like it. i look forward to when i’m not feeling so sorry for myself.
i’ve been venting. sorry but thanks for reading. all of your posts have been very helpful for me. i look forward to any info you all would be willing to share. things can only get better for all of us, right?
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