[Mish5572]

in reply to: Tired of being tired #1064824

Thanks to everyone for their input. I don’t know what I would do without this BB. Anyway, I thought I would post an update. As I stated in my original post I started coming down with this rash a week ago Friday, and I thought I would lose my mind from the itching. Well, by Sunday it was on my shins and on my fore arms and my whole body itched. Sunday night I was at church and after service we were just hanging out and all of a sudden I fainted. One minute I’m talking to a friend and the next I’m on the ground looking up at all of these people staring at me…(ever feel like a gold fish?). Monday I call the Endo and he lowers my dosage of Tapazole from 30mg to 20mg daily, and lowers my Propranalol from 120mg to 40mg daily.

I went back to the Endo yesterday and the rash is gone, but the itch stayed behind to keep me company. The Endo said I would just have to live with it because he doesn’t want to take me off of the Tapazole since my levels are so high. Benadryl and I have become very close friends…the upside to this is that I have discovered that Benadryl makes me sleepy so for the moment I am not suffering from insomnia. See…there always is a silver lining

Anyway, since he lowered my Propranalol the tremors and chest pains are back and my heat intolerance is much, much worse but I haven’t fainted again. The Endo said that he had hoped to get my levels down to normal or close to it before doing RAI, but he may not be able to since I am not responding the way that he hoped. He said that it would make it much harder post-RAI when my levels go up. I go back to see him in September unless something weird happens between now and then and will take another look at my labs at that time.

Meanwhile, I have been doing some research on RAI online and most of what I have found consists of generalities instead of specifics about pre and post RAI and the procedure itself. I want to know the do’s and don’ts and what I can expect to experience. Will I have to limit my exposure to my family? Will I be able to work? I think that GD has turned me into an information junkie! Does anyone have any suggestions for informative websites, would anyone want to share personal experiences?

Thanks so much,
Michelle

[Mish5572]

in reply to: Overwhelmed #1064924

I go to the opthamologist tomorrow and was just wondering what to expect. So far my eye symptoms are dry, gritty and irritated eyes along with pain behind the eyeball that feels like it is pushing on the backside of my eyes and pain when I look side to side and up and down, they are extremely sensitive to light, and as weird as this sounds the pain is better when I close my eyes and I press down on them. As far as I can tell my eyes are not actually moving even though it looks as though my upper eyelids have disappeared. Does this sound familiar? Is there anything else that I can look forward to?

Thanks,
Michelle

[Mish5572]

in reply to: Overwhelmed #1064923

Thank you Joanie. I am so grateful for having found this BB for support. You are right when you say that most people don’t understand because we don’t look sick…well, most of the time anyway. My husband tries to be understanding but since I have never been sick this is difficult for him. Like last night when I made a comment about my eyes hurting, he asked if saying that made them feel better. Now, I typically try to be an understanding and forgiving person, but at that moment in time I really wanted to hurt him…badly. Anyway. Thank you again, and I hope that you are able to receive your treatment soon.

Michelle

[Mish5572]

in reply to: Overwhelmed #1064921

Thank you both for your posts. At this point any information helps. I have done quite a bit of research online, but sometimes it is better to get information from someone that is going through it rather than sterile clinical overviews. I have another question. I have been having pains in my joints (feet, hands, hips, knees and shoulders) that seem to move around…and come and go. I might have a sharp, stabbing pain in my knee that lasts for 10-20 minutes and then it will go away, later I might have the same pain in my hand, or foot. It hurts pretty bad and is very annoying. Has anyone experienced this? Also, now I have this excruciating pain in my right side that will not go away. Does that sound familiar?

Thanks,
Michelle

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