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  • melsh
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    Post count: 4
    AmyG wrote:
    Hello –
    I know you aren’t allowed to post actual doctor’s names on the forum but I’m in need of a new Endo. I have a terrible feeling that my doctor thinks I’m a nutcase and his office staff isn’t even that helpful. In fact, I’ve cried after talking to him on the phone because he thinks NOTHING is related to my grave’s.

    Anyone in the San Diego are who can PM their doctor’s name (presuming you like them)? Or even just the name of someone to stay away from. It’s hard to find someone that will listen to you and not make you feel like you’re mental :(

    Thanks!

    I would love to know if you found a good doctor, thank you!

    melsh
    Participant
    Post count: 4

    Thank you for your help!

    After 7 months & numerous doctors (neuro, endo, neuro opth x2, opth x4 , Dr Kikkawa & Granet) TED is confirmed along with my non lazy eye refusing to work independently so patching will not help. The lazy eye is causing the double vision. Several of the docs use the term “very unique”, yeah (not)! ;)

    I haven’t driven since last year. I am in a waiting game as it is still getting worse (I see Dr Kikkawa & Granet together next month (thyroid eye clinic). Once it stabilizes Dr Kikkawa will do his surgeries then Dr Granet will do his). My TSH is still low, I am still hoping to find a good Endocrinologist (not happy with the one I saw as his office was too busy and they never return calls or results). I have Aetna PPO (until 12/31 when Aetna is dropping all individual plans in California).

    If anyone could recommend a good endo in San Diego I sure would appreciate it.

    melsh
    Participant
    Post count: 4

    Thanks so much for your reply!

    aves (they both said it could be graves or a tumor with no other options). My PCP said perhaps a Neuro-Ophthalmologist. I would say the double vision is my chief complaint.

    Honestly this is very confusing to me as I have been going along well with a few dose changes now & then.

    I did loose just over 100 pounds (on purpose) and my weight is stable with a good blood pressure and pulse is usually 55-60 so the graves suggestion doesn’t fit so well.

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