[mdcomeau]

in reply to: scarred #1064289

hope that all goes well from me also shirley.. let us know once you are able

Kimberly, I will get into that routine with the blood work prior to my appointments. ah ok, I understand about the range now, thanks for everything once again and for taking care of the duplicates ; ) dianne

[mdcomeau]

in reply to: scarred #1064286

Ruby.. thank you, I will check out this groups facebook site. Extra overwhelming is right, I have been having a really hard time distracting myself as its hitting me in every direction. By saying in range is not the same as being stable.. do you mean staying stable in range for a longer period of time for things to get better. thank you.. for your email address, you might just be hearing from me.

Kimberly.. thank you, and thanks for the hugs. I have been going for blood test every two weeks, I’ve gone this morning. I used to see my doc every other week, the last time I saw him was September 7, he said i’m in range now since august 10th, and wants to see me on a monthly bases now instead of bi weekly. He said if I need to change my tapazole dose he will give me a call in-between appointments to let me know. My last reading that I know about was from the 24th of august and it was fty 15.7. Once I see him again later this month he will give me all my readings, everything should be ok so far as I have not heard from him since that last visit. Also I see my eye doctor every two weeks.. he has me on 25mg prednisone, going down to 20mg on Thursday of this week and seeing him again the following Thursday. ok.. I’ll keep in mind that I will not be stuck with this eye issue forever.. I’m finding that light at the end of the tunnel so far away.

azroses.. thank you, I have been living in the dark since this has started, I have only very recently been able to tolerate light, but still on some days I cannot as much. oh do I ever hear you once you type “when it’s your eyes, it is a constant reminder anytime that you have them open” . And that I am.. over-sensitive to stress and everything is feeding each other. I have spent many days in the darkness of my bedroom with the curtains shut tight. My pressure is monitored every two weeks, visual field is also monitored. I wish the conferences were closer to home…

Again.. thank you everyone for taking the time to share your story and listenting to mine and responding.. you’ve all given me a boost of courage again.. hugs

[mdcomeau]

in reply to: scarred #1064282

this is so hard, crying most every day for the past while, just can’t stop myself.. don’t know how i’m going to get threw this ;(

[mdcomeau]

in reply to: scarred #1064281

i wanted to say thank you to everyone for replying to my post. you’ve been all helpful and encouraging, its good to hear from folks that are going threw this

[mdcomeau]

in reply to: scarred #1064276

Thank you very much Kimberly. It’s good to have a place like this. I’m glad to hear that there “is” light at the end of the tunnel.. that is very encouraging words.

I have many ups and downs.. I can get very discouraged at times, other times I’m not as bad, and sometimes I’m ok.. this is all so new to me. 2 to 3 years.. wow, ok. my doctor has told me about a surgical procedure that could be done later on if I should need it. I will watch for reds looking like pink, so far red is still red for me.

I will find the posters with this eye disease, that would good for me to see how they are doing and post with them. There is a saying I found the other day that I like and I say it to myself a couple of times every day.. “never let the best of you leave”

” title=”Wink” /> dianne

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