[Marlan]

in reply to: Struggling to stay patient and optimistic #1174406

Hi, I read your post and I can really relate. My situation is a little different, but we have things alike. My left eye bulges and is swollen and constantly waters. I have normal thyroid function tests, but my antibodies are sky high [590]. The endocrinologist doesn’t feel that TSI is an accurate gage indicating things are better or worse. In other words just because I get a lower reading doesn’t mean I’m getting over this horrid disease. I have had this disease for 1 and 1/2 years. Right now I’m going thru an especially bad period. I had an eye surgery because my eye lid was very retracted. Steroids do not help.

I wish I had something positive to say. I did go thru a 6 week period without symptoms, and my eye started to look better and felt great, but I am back to square one now.

I see a regular eye md and a specialist in my problem. There are only 2 of these mds in Oregon. The specialist is the one who has put me on steroids and also did the eye lid surgery.

I’m thinking of trying a drastic diet measure to see if there is any improvement. I guess I feel that it’s better to keep trying new things to keep hope up. Because without hope there is really nothing.

Stay strong. Marlan

[Marlan]

in reply to: Recurrence of TED after orbital decompression surgery?? #1071533

I find all of the reoccurance of TED symptom stories to be a real bummer. I’ve had TED since April in my left eye. My thyroid function tests are normal and my TRAb and others are high. So my official diagnosis is euthyroid Graves. My endo. says "You haven’t had this very long". This disease has certainly changed my every day life. I live in a beach town. The wind is terrible for walking and I am very light sensitive. My eye waters all the time and always looks blood shot, swollen and bulging. Wish ther was a magic pill for this.

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