[mamabear]

in reply to: Cushings Syndrome #1075648

I have nothing medical to add….just sending prayers and hoping you get the answers you need and find a dr. who actually cares.

[mamabear]

in reply to: Choosing Thyroidectomy on Purpose #1075714

I have to agree with that cynna. I know that I have heard from bobbi and ski (girls from old boards) that have said that every single case of Graves is so different and that is why dr’s opt for something different for each one.

I was told the very 1st time i was diagnosed to do RAI and be done with it, i didn’t do that , i tried the PTU and it worked.

I know someone that did the RAI and is suffering with trying to get on the right dose of Synthroid now because now she is hypo and is so angry that she did the RAI.

I know someone who did RAI and is doing great.

SUrgery always comes with risks regardless of what the surgery is for so I think that might be dr’s don’t shoot for that first.

Graves is so dependent on the individual person.

Prayers for all going through this.

[mamabear]

in reply to: Choosing Thyroidectomy on Purpose #1075711

I am so not good at the giving information. I only know that I have graves disease and I was put on PTU and am doing ok. I was told to have RAI the very first time i was diagnosed though and I didn’t do it. I just wrote a fast post about this to someone else, you can find My post here.

I don’t know what to say to you all except researching is your best bet. Talk to people who have had the surgery and the RAI and see what they say. I know that in NJ all dr’s shoot for killing the entire thyroid when they do RAI so eventually you will have to depend on thyroid supplement when they become hypo.

I’ll try to find out where everyone went, there was a great team of people who was on the boards. I hope they come back soon.

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