[mama_44]

in reply to: hyper again #1169394

I had RAI Sept 2009. Ive been on levo 100 since. Here recently Ive felt symptons of hyper, so i made dr appt. she lowered my dosage to 88. Thats only been 2 days ago. so im not feeling any better. have to go back in 3 months to check my levels. I hate feeling like this again. Im having awful mood swings, driving my family crazy. Im keeping my fingers crossed that i start feeling better soon.
Thank you for all the advice. ” title=”Wink” />

[mama_44]

in reply to: Back Pain #1066996

I too am having back problems. It hurts with every move i make. I can barely stand long enough to get the dishes done. I went to the er, they prescribed me pain pills and suggest I talk this over with my doctor.

[mama_44]

in reply to: I JUST DON’T UNDERSTAND #1066828

Thanks for the replies, i appreciate all of them. it always helps to know thier are ppl who understand what it is like living with graves disease. my family just don’t understand the things i go through. they all still think i’m super woman.
i will start keeping track of my lab results. thank you again.
i hope this is readable, i cannot find my glasses any where or i’ve misplaced them.

[mama_44]

in reply to: How long did it take you to go hypo after ablation? #1067051

I HAD MY RAI DONE SEPT.15. I AM STILL HYPER. WENT TO MY DOC APPT. YESTERDAY. WAITING ON MY LAB RESULTS NOW. MY DOSAGE OF RAI 29.7. MY DOC SAID IT WOULD TAKE AWHILE, BUT MY LAST LEVELS HE SAID THEY WERE GOING DOWN SOME AND I WAS GETTING THERE. I ‘M STILL HAVING HYPER SYMPTONS BUT NOT AS BAD. I’M STILL TAKING MY BB. I WISH THIS COULD BE OVER WITH. I AM SO TIRED OF FEELING LIKE THIS. BUT IT’S A LONG ROAD MY DOC SAID, SOME LONGER THAN OTHERS.

[mama_44]

in reply to: Thyroid Storm #1067658

I had TS, i was very ill, my heart rate sky rocketed, i had to rushed to the hospital, the doctor in the er told me if i didnt come there it could have killed me. I was very lucky. It took them forever to get my heart rate down, i was hospitalized for 5 days. I had GD for years and did nt no it, i had symptons, but ignored them till it was almost to late. That day I was feeling so bad, dizzy, extreme pain in my neck, short of breath, shaky all over, chest pain and rapid heart beat. Later that evening, I jumped screaming pulling my hair yelling I cant take it no more. My husband called a ambulance. Since then I have been feeling better. Ive had RAI 5 weeks ago. ” title=”Wink” />

[mama_44]

in reply to: RAI four weeks in OH BOY #1067880

hi, when i got my rai done, i was the same way. my thyroid was enlarged as well, its still swollen some, but not as bad. it’s been 2 weeks and 5 days. i feel so much better. at first i was very hyper, my doctor said there was so much dumping. he told me to take beta blockers to help with my symptons, i could not sleep at all, i had to be doing something all the time. that has calm down, i’ve been sleeping somewhat better, slept 10 hrs last nite, waking about every 2 hrs, but would fall back asleep. usally could not sleep at all.
glad to here your doing better, it’s a rough road, but in the long run, it’s all worth it. ” title=”Wink” />

[mama_44]

in reply to: feeling better #1067929

No need to be nervous about rai, i guess everyone feels differently though. I just wanted to get it over with. As far as being away from home afterwards, i went straight home. I took alot precautions, I have two girls at home, 13 and 9. I stayed away from them, wash my hands alot and flushed 3 times. My husband helped out on cooking and cleaning ” title=”Smile” /> . After the 4th day I started to do light housework, but still being careful.
After my RAI the only side effects I got was a slight sore throat, abdominal cramps. I’m still feeling hyper somewhat, but that is expected, I take Beta Blockers when I feel I need to. But not so much as when I first came home, I was taking 20mgs 4x a day, now I’ve only needed one in two days.
I will be praying for you, Take care, Karen ” title=”Wink” />

[mama_44]

in reply to: RAI #1068234

I am feeling somewhat better right now, since i took a BB. I called my doctor and he put me on propanolol 20mgs 4 x a day. Thank you all for your replies, Karen ” title=”Wink” />

[mama_44]

in reply to: Re: A Question and a comment #1068191

mamabear wrote:It’s funny the only thing I really saw in your post was that you are feeling "hyper". Are you hyper because you are bored or are your not "feeling" ok. Racing heartbeat anything like that?…. Don’t mine me, it’s just my perception of reading into things that I shouldn’t be reading into. lol Just making sure you’re ok. ” title=”Wink” />

I don’t know about RAI and the info that most here know but I do know that you should not over do anything that you might want to do. You might think that you are feeling up to par and then do it and then be so tired that you can’t move. So take it slowly what ever you do, ok.

yes i do have racing heartbeat, shakes, i cannot sit still. i took a beta blocker about 30 mins ago, hopefully it kicks in soon. thank you for your concern, it’s good to know people here understand. KAREN

[mama_44]

in reply to: weight gain #1068466

Sue Conard wrote:Hello mama 44…how long have you been diagnosed with GD? I’ve gained a lot of weight too with this disease…mostly from the fatigue and steroids, I believe. It’s a struggle, no doubt, but I know there’s a "weight gain" chain that is on this site you might want to sign up for…lots and lots of support here!!

i was diagnosed with graves 5 months ago. although ive had it for years, just overlooked the systems, telling myself it was stress. one night, 5 months ago, my heart starting beating really fast & i passed out. my husband called the ambulance. when i come to, i was at the hospital on monitors. they said my heart rate was 226 beats a min. they run all sorts of tests, come back four weeks later and i have graves. thank you, Karen

[mama_44]

in reply to: weight gain #1068465

Ski wrote:There are several elements that play into the weight gain, but I want to make note of the fact that it is *not* the meds ~ it just feels that way because you start taking the meds, and the weight comes on. The fact is that it’s a function of getting well, and we need to understand why it happens so we can minimize it ~ and also accept it, JUST for a little while, until our thyroid hormone levels are normal and stable.

When we are hyperthyroid, we lose muscle mass in our largest muscles (upper arms, upper legs, chest and back), which is weight loss, but is BAD weight loss. Muscle mass helps our body burn up calories, even while we’re sitting still, so in losing muscle mass, we also lose the ability to burn as many calories as we used to. That’s while we’re hyperthyroid. Then we take meds to bring our thyroid hormone levels back into normal range, and not only have we got that loss of muscle mass, we’ve also got a lowered metabolism to deal with ~ even if we’ve only been hyper a short time, it’s easy to get used to a body that can eat as much as it wants and keep losing, so after that metabolism comes down, again, we’re at a disadvantage.

The muscle mass begins to return as we get our thyroid hormone levels under control, but it’s "baby" muscle, and it needs to be carefully toned and strengthened to return to the state it was in before you lost it. Bobbi had to begin doing arm lifts with two thin paperback books in order to bring the strength back and not hurt herself.

You’d be well advised to go see a physical therapist. Have your strength and stamina evaluated, and come up with a plan to return your body to its former health ~ safely. It will go far in helping you control your weight. In the meantime, keep doing what you’re doing ~ eat healthy, no wasted calories, and do whatever exercise you are COMFORTABLE with (no pushing yourself, you’ll pay too dearly). If you must, go to the local Goodwill and pick up some nice clothes that fit your "current" body, so you’re not straining at the waistline everytime you need to move your body. Believe it or not, that will encourage you to MOVE, and that will help bring the weight down as well.

thank you for the advice, i will try that,

[mama_44]

in reply to: PTU? #1069816

Sue Conard wrote:I feel so dumb asking this ? What does PTU represent? I’ve been on tapazole since last yr. I see my Endo dr. tomorrow & think he may change me so I was curious if someone could explain to me what PTU is and if it’s a beta blocker or what family this falls into?? THANKS!!

ptu is proplythiouracil, ive been on it 5 months, it has messed with my liver enzymes and my bone marrow, but i am 400mg a day. lower doses might not be so bad. also a lot of weight gain. it dont work for me, so ive decided rai. it is not a beta blocker, i also take propranolol, its a beta blocker.

[mama_44]

in reply to: A Question and a comment #1073191

ewmb wrote:You are most likely going to have a scan of your thyroid to see if there are any nodules and whether the pattern that occurs is concurrent with Graves or not. You will get a shot with a radioactive tracer, can’t remember the name. It’s just so the thyroid will take it up and show a pattern during the scan. There isn’t any worry about staying away from people after this as there is when you have Radio Active Iodine treatment. Have you already had an uptake test? That’s the one that you have after you swallow a small capsule with radioactivity and they take a scan of your thyroid sitting up at 6 hours and 24 hours.

ewmb

i have’nt had the uptake test. is that next.

[mama_44]

in reply to: A Question and a comment #1073189

could someone please tell me the purpose of a nuclear scan, i am getting one in a couple days, my doc is unreachable, he left me a voicemail telling me about my appt. but not explaining a thing to me. When i hear the word nuclear, i freak out.

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