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Ok, cool. Maybe at some point in the conference you can bring this idea up to the group and also forward it to the group leaders of all the suppport groups to let their members know we are trying to make this happen. As it would open the doors for a lot more people to come to the conferences and make more money for the foundation to further research and find a cure!
Peter had told me there was a lady who had said the expense of coming was too high and i told him to tell her she can stay with us. I have not heard back from Peter yet to see if she would like to stay with us.
in reply to: New to Grave’s and think I’m losing my mind! #1067847You certainly do feel like it takes you a very long time to complete simple tasks. i do the books for our business and remember taking forever to input payroll, now i do it within just a few minutes again. i am also on PTU. i had started on methimazole but had a whole body rash reaction to it and was taken off and put on PTU 2 weeks later. PTU seems to take a lot longer to lower the thyroid levels but causes less adverse reactions for me anyway than the methimazole. I also felt like i had no patience and was constantly nervous and tense-which equated to me barely sleeping. i have been on PTU now about 6 or 7 months and my thyroid Free T4 is now below normal after having been off the charts(extremely high). Over time they will reduce the PTU so try not to stress about the dose and concentrate on eating healthy and attempting to get more rest and reduce stress. Believe me this is a slow process to change your lifestyle to help get well but you CAN do it. I would tell you to try to remain calm but the hormones won’t allow this right now but you will feel better and be able to function again in time. Try to find some fun things to do to help take your mind off of it(i know this is hard but it helps). I am also a mom and know how frustrating and scary this can be especially when you have small children. Hang in there, it’ll get better. My oldest son who is 12 understand what is wrong with me and has also gone to the support group with me and as young as he is has been a great source of support. So if your kids are old enough to understand let them know what is going on and let them help you also. This affects the whole family so they all need to be involved in your recovery.
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