[Lorrainydaz]

in reply to: Surgery on April 9th #1072468

Hi Ridefamily, I just had my TT surgery last Wednesday and even though my calcium was low and I had to stay a few hours more, I feel much better already! My heart rate is down, my tremors gone, my anxiety gone – it’s wonderful. Actually, once I started taking the SSKI to prepare me for surgery my palpitations went way down and since surgery – none! My eye is no better, but wasn’t expecting it to be any better yet, maybe in the future it will go down and if not there is always surgery to fix it. It actually seems a little worse, probably due to the SSKI, but you know what, I can live with that since I feel soooooo much better! Good luck on your surgery, I will pray for you and hope you feel as good as I do (a little sore but good despite that!). Good luck.

[Lorrainydaz]

in reply to: Confused and Oh So Tired! #1073563

Thanks Nancy for the encouragement. You are right that part of this is anxiety and it’s just more out of control than usual. My cardiologist said I was fine for the surgery and hopefully my heart will calm down once this thyroid is out. I have some Xanex which the doctor said I should take when I feel like I need it. I can bear it most of the times but sometimes I do take one just to feel a little calm. I’m glad this board is here – it’s nice to be able to read about others who are experiencing what I am. Thank you for listening!

[Lorrainydaz]

in reply to: Still feeling so ill – think I am going off my head #1073533

I feel your pain, as I have been feeling the same way and I have not just given birth. You have double the stress and hormones. Every time my heart starts to go crazy I tell myself, it’s just the thyroid, it’ll slow down. There are other things they can give you, beside beta blockers, for your heart issues. If you feel that bad get to a hospital and let the ER handle things, they will at least get you under some control and maybe some anxiety meds to help you through this. Even though your endo is sick, isn’t there a doctor covering for him/her? Know that you are in good company here, hang in there and know, this will pass, it WILL GET BETTER. Keep that thought every time you feel bad. Those kids need their mother, it’s just the disease making you feel lousy, so kick it in the butt with some survival thoughts, it’s just the thyroid, it’ll go away soon. Hang in there and keep us posted! Lorrainydaz

[Lorrainydaz]

in reply to: Anti-Thyroid Drugs #1073892

Hi Pizzicatto, sorry you are having such a tough time but I understand how you feel. It took the doctors (several) to figure out I had Graves Disease. When my eye first bulged I made an emergency appointment with my opthamologist (who I have gone to for years) and he thought I was there because my eyelids were crusty, due to sinus infection (if he had really looked he could have seen my left eye was bulging out!). Due to miscommunications we had, I didn’t realize that was his thought until I had been to my regular doctor who prescribed antibiotics for my sinus infection, my ENT doctor who sent me for a CT scan and 2 months later back to my the original opthamologist who asked me if I was still using the eyelid gel he gave me. At this point, I asked him, "so you are saying that my crusty eyelids are making my eye bulge?" He looked at me like I was nuts (mind you I have been going to him for years for my glasses) and asked to see my drivers license so he could compare my eyes!! I was not happy. He sent me for an MRI, tried me on steriods (which made my heart pound so bad at night I thought I would die) and then did the best thing ever by sending me to an expert eye plastic surgeon – this guy was fantastic and thought it was Graves but he also told me to go to an expert at a hospital to get a second opinion – I did this and I had to pay $500 out of pocket since my health insurance didn’t cover it but it was well worth it. All the while this was happening my thyroid levels were perfect, if the eye plastic surgeon hadn’t suggested the antibodies test, they probably would still be sending me to doctors. My point to this whole little story is don’t be afraid to go to another doctor, (I am in the process of switching my endrocrinologist as he does not give me enough information or make me feel real confident in him). It’s a pain with the co-pay but it’ll be worth it. I find that monthly I’m spending over $250 for doctors and this year alone I paid so much I’ll be able to deduct some on my taxes! I am currently scheduled to see the surgeon to schedule an appointment to remove my thyroid. I’m on PTU and just want this to be done. Find a doctor you like and makes you feel confident, as you’ll have to work with this person for a very lonnnnnnng time. I know it’s tough to spend the money searching for a good doctor, as it seems like such a waste to hear the same thing again, but it’ll be worth it if you can find a Doctor who cares about you and understands what you are going through, besides you are worth it! Good luck and hang in there!

[Lorrainydaz]

in reply to: Surgery to Remove Thyroid, Can it Reverse Eye Bulge? #1074384

To Hypermom72, thanks for your post, that really helped. Your symptoms sound identical to mine but I’m hitting 53 (on Monday) and I’m thinking, this is nuts, let’s take the thyroid out and get on with my life. I hate worrying about the PTU side effects, I’ve only been on it since Sunday but I’m so tired and so anxious lately it just adds to the stress. I appreciate you sharing your story. Thanks!

[Lorrainydaz]

in reply to: Surgery to Remove Thyroid, Can it Reverse Eye Bulge? #1074377

Thanks, that helps! After my biopsy (my eye surgeon took out some errant muscle that was also growing where it shouldn’t have been) my eye looked almost normal, except for a little lid retraction but slowly it’s become "my big eye" again! I guess I’m lucky though since my thyroid has just begun to go crazy this is the real only symptom I have.

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