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Hi.
I am new to this forum as I am trying to find some answers myself. I read your post and wanted to let you know that you are NOT crazy and you are not alone.
I had a complete thyroid ablation – RAI – a year and a half ago. Same as you, I had terrible graves symptoms that became life threatening. At the time, my crazy Graves Brain was only concerned with what the HYPO symptoms would be and how I would function. All my doctors told me that I “wouldn’t even notice that I was HYPO”.
Right. I feel like a walking zombie. A year and a half later. For me, the brain fog is the worst.
I can tell you that I started on Synthroid.
Felt terrible.
Changed Docs and started Armour thyroid – natural thyroid hormone from a pig’s gland – giving you both T3 and T4. We kept increasing the dose over an 8 month period. No change.
My current doc has me back on synthroid. 175mcg. Also telling me to start Cytomel if I’m still feeling terrible this week.
I am currently doing nutri system to lose the 10 lbs that I gained in the process. (not really helping)
Getting to the gym is tough, because all I want to do is sleep ALL. THE. TIME.
The depression I had initially after RAI has improved GREATLY.
The depression you have most likely is not you, it’s this crazy disease!
Trying to get these levels to your body’s “Normal range” is frustrating. My docs say my bloods come back “Normal” every time, yet I never feel better.
I keep telling myself that this too, is only temporary. I have talked to people who have also suffered from this and feel 100% back to normal.
It takes a lot of time and a lot of open dialog with your doctor. Many times I pushed them to raise the synthroid despite the “Normal” results.
Maybe talk to the doc about Armour. Some docs like it some docs don’t. It’s what people used to take before pharmaceuticals made synthetic thyroid hormone. The Cytomel may also help – as mentioned in previous posts. I don’t think doctors like the Cytomel because it’s harder get an accurate read on your labs.
Hang in there. You’re not crazy. You will get better and be restored to perfect health. (It just may take longer than expected)
Best!
