[lmatthews522]

in reply to: New and worried #1074311

I truly understand your fears and worries with how your spouse and family treat you since being diagnosed with Graves. I have been living with Graves and thyroid disearse for more than 12 years and there are times when I fall in and out of remission. During this time, I often feel so alone because everyone look to me as being the person that can save the world. My husband says "I don’t want to treat you like you are sick". Well sometimes I am sick and it’s not always easily seen. Wanting to take a nap because I’ve been up all night or just feeling tired, confused about basic things or headaches often become a sense of normalcy in my life.

I have tried sooooo many times to tell him I do not feel well and that it’s associated with the disease…that lasts for a day or so and then I get the same questions over again. It’s very frustrating. Don’t get me wrong…my husband loves me and tries his best to understand but I think its just a world I live in alone and often will minimize my pain. I am new to this sight as well and have found it very therapeutic.

Best wishes,

Lisa

[lmatthews522]

in reply to: Surgery to Remove Thyroid, Can it Reverse Eye Bulge? #1074380

Ski,

I am very interested to receive information you have available from the convention related to Thyroid Eye Disease. Please let me know if you need my email or home address to send this information.

As I mentioned in a different post yesterday, I too was recently diagnosed with Graves Eye Disease and while the bulging has gone down considerably…my meds forthe thyroid disease have changed and I am uncertain of the possibility to have radiation treatment for my eyes. While I now understand these are two different diseases, I feel that since the eyes are back to normal do I need to consider radiation or any type of surgury down the road. Any help you can provide to give me insight on research or studies done related to the eye disease would be appreciated.

Many thanks for your help…while new to this sight this is the first time in years I feel I am amongst friends.

[lmatthews522]

in reply to: I’m new to NGDF Board…with old thyroid problems #1074452

Ski you are awesome…thanks for responding and helping me sort through some of the anxieties I am feeling as I have to adjust to new meds (changed from 112 mcg Unithyroid to 137 mcg Levothyroxine). So the brand and dosage changed after all these years. They told me at the pharmacy that Unithyroid was not made at 137 mcg so they changed it…I tried to find a chart to verify the levels per brand but so far I feel okay.

It had been a few years since I had to change medication because of lab results and I was beginning to feel unbalanced (now that’s funny one cause I have vertigo issues too ” title=”Confused” /> ). You would not think I have all these issues with the active life I lead with the many projects I volunteer on in my community. I actually think the volunteering is what keeps me grounded and not as stressed…I also take time for myself which is not always understandable with my husband. I am off every other Friday and I will sometimes go to the movies, spa or out to lunch by myself. A good book or my journal and I’m in heaven.

Are there folks out there married that find it challenging that your spouse do not always understand when you are tired, moody, sex drive is low, etc.? How do you find a way for them to understand you (when you are not at your best because of your thyroid problem) and find a balance in your marriage that will keep you both happy?

Thanks again Ski…I feel like someone is listening.

[lmatthews522]

in reply to: I’m new to NGDF Board…with old thyroid problems #1074450

Actually as I understand it..(and bear with me cause most of the technical terms I am not as familiar with) I now am hypoactive as a result of the RAI treatments. The first one did not work and I had a huge goiter. I don’t know if the shellfish plays a part in the a reaction to the thyroid antibodies. The doctors have not thought so when I raised this as an issue in the past. Just recently, I had lobster at least 2 to 3 times a week for about 3 weeks and then went to have labwork done and my TSH was 19.0 (range 0.4 – 4.0). Yes stress was another factor in my life during this period so that could have been it as well. I was just curious if anyone else had a similar reaction.

As far as my eyes…they tend to lose shape (or enlarge) when I’m stressed or my levels are off but are not in any way protruding to where I need to consider the surgery. They actually go back to normal (whatever that is) when I fell okay. In fact the opthamologist is recommending radiation to the eyes (not sure of the pros and cons with that right as yet) to I guess help with delaying the obvious of the end result for someone with Graves. Thanks for listening…

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