[lizlair]

in reply to: Hair Loss #1066010

As I stated in a previous post, my RAI was November 15th and I am currently in the hyper to hypo shift. As I was still on a low level of Methamizole at the time of the last lab work, I have about one more week to go before they can re-test and hopefully start the hypo medication. One of my clues that I was shifting to hypo was the sudden thinning of my hair. Heretofore, I had really thick, fast growing hair. In the past few weeks, it seems like my hair loss is competing with the cat’s! AND, it seems like what is left is gray! The good news is that I’m saving money on haircuts and I don’t have to shave my legs as often! Hopefully, once I stablize, some normalcy will return to my life!

[lizlair]

in reply to: Graves’ Eye Disease #1066478

The good news is that your TED may improve with time. I was diagnosed with Graves and TED in 2007. Some of the initial symptoms were double vision, redness, swelling, and generally looking like a deer caught in the headlights. The double vision initially subsided about a year ago. I had my RAI in November of 2009. Just in the past few days I noticed that my eyelids are actually touching the top of my irises again. I had a doctor (not my endocrinologist) recently comment that "your eyes look a lot better." My eyes still have more than the usual amount of redness, but that is an ongoing battle.

Keep the faith and know that you are not alone in your worries.

[lizlair]

in reply to: 2 1/2 post RAI..feelin’ good. #1067235

Congratulations on feeling good and hope it continues for weeks and months to come.

I haven’t been quite so lucky. Had my RAI on the November 12th. Since that time, I have experienced rapid heartbeat, tremors, additional weight loss, and general shakiness. In other words, all of my pre-medication hyper symptoms. Of course, some of this could be due to the prednisone for the TED. On Friday, I believed I experienced somewhat of a thyroid "dump." My heart rate really increased, I became very flushed and hot, and my mind was a bit disoriented. it scared my husband and the cat. (Well, no, maybe not the cat)

I know that I made the correct choice. The road is just a little more bumpy than I expected.

[lizlair]

in reply to: First Day Post RAI #1067360

Thanks for the support. I actually had a fairly good day but overdid a bit. Other than some tiredness, my main symptom seems to be an elevated heart rate. Next week should be interesting as I start back to work. I am accustomed to working 10-12 hour days in a fairly stressful job. This may be the time for me to start heeding my Husband’s advice to slow down and pace myself.

[lizlair]

in reply to: Graves Eye Disease #1075501

I strongly suggest that you see a opthamologist that specilizes in TED. My TED started with double vision, redness/irritation, and bulging. The double vision was so bad that I could not watch TV, read, or even drive at night. Repeated complaints to my local optha resulted in a diagnosis of conjuncitivitis or pink eye. After multiple visits and questions of "Could this be related to Graves Disease," the doctor finally admitted it was possible, but stated that they do not treat for Graves. I am now with a specialist at the Mayo Clinic.

The good news is that the double vision has subsided and my eyes have now entered a "cold" phase. In other words, I’m not getting any worse. So, hang in there, see a specialist, and keep your eyes really lubricated.

[lizlair]

in reply to: double vision #1070081

Your double vision may improve in the next several months. One of the early symptoms of my TED was double vision, especially in the evenings. At times, it was so bad that I could not drive, read, watch TV or work on the computer. I discussed prisms with the opthamologist and decided against their use. Elevating the head did seem to help as well as making sure that you keep the eyes really hydrated with preservative free drops and gels. In the past few months, I have (finally) entered a cold phase and the double vision has somewhat subsided.

Just hang in there and know that you are not alone. The double vision is probably one of the more frustrating elements of TED. If it does not improve, I would suggest talking with eye doctor who specializes in TED.

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