My experience with pretibia myxedema is this… I got it 12 years ago. It took a year and 4 biopsies to finally get a correct diagnosis due to the odd presentation of the disease. It has never gone away and any treatment has been a temporary fix. Because this condition is so rare, doctors tend to misdiagnosis or bloy you off insisting it’s so rare that "you couldn’t possibly have this". My suggestion to you would be to research all you can about this condition and go into your doctor’s office informed and prepared and be your own advocate. The only way to diagnosis this condition is by biopsy. I cannot say if early diagnosis would help to stop progression but it certainly can’t hurt.
I wish you the best.
